scholarly journals Dödshjälpsdebatten i Finland

2020 ◽  
pp. 75-102
Author(s):  
Kalle Mäki
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Political Process ◽  
Public Debate ◽  
The Political ◽  
Expert Group ◽  
Life Care ◽  
The Public ◽  
Expert Opinions ◽  
Health Committee

The citizens’ initiative to legalise euthanasia was addressed in the Finnish Parliament in 2017. The Parliament rejected the initiative and appointed an expert group to investigate the need for legislation regarding end-of-life care and the need for euthanasia. Thus, the debate continues. This chapter provides an overview of the public debate and the political process associated with the citizens’ initiative. The initiative is critically examined on the basis of expert opinions requested by the Parliament’s Social and Health Committee. In a vote, the MPs rejected the initiative. One of the central arguments has been that it is not appropriate to legalise euthanasia when end-of-life care is not sufficiently developed in Finland. From many quarters, opinions were raised against the legalisation of euthanasia, promoting support for legislation on end-of-life care instead.

scholarly journals The public health end-of-life care movement: history, principles, and styles of practice

2018 ◽  
Author(s):  
Aliki Karapliagou ◽  
Allan Kellehear ◽  
Klaus Wegleitner
Keyword(s):  
Public Health ◽  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Psychosocial Care ◽  
Care Practice ◽  
Life Care ◽  
The Public ◽  
Civic Practice ◽  
Practice Methods

This chapter briefly outlines the history, key concepts, and main practice methods from public health approaches to end-of-life care. Although linked to psychosocial care approaches, its main methods draw not from psychology or health services inspired approaches but rather from health promotion, community development, and civic engagement. Key methods covered include community volunteering, social networking, community engagement, and compassionate communities and cities. The aim of these kinds of approaches is to embed palliative care practice as a social and civic practice in all sectors of society and to ensure that palliative care as a policy is represented in all civic policies (e.g. schools, workplaces, faith groups, and cultural activities) and not solely in health care.

Comfort while Dying: a Transnational History of Pediatric End of Life Care

2018 ◽  
Author(s):  
Emilie Hill-Smith
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Hospice Care ◽  
Well Being ◽  
Life Care ◽  
The Public ◽  
Depth Analysis ◽  
Personal Experiences ◽  
History Of ◽  
Being There

Through an in-depth analysis of current and historical literature, this thesis explores the question: what is hospice and end of life care for children? I will dissect the various dimensions of children’s hospice care and how it has evolved over time. Also in my thesis, I will draw from my personal experiences in volunteering at a children’s hospice to discuss the support and care that volunteers receive. Through this literature review I hope to bring to light to a subject that is often overlooked or too difficult for people to discuss. I will propose plans to better the care for children and families who are facing the end of life. My thesis will summarize the current literature available about the type of care that children receive worldwide and how this care affects families and children’s well-being. There has been minimal research done on children in end of life due to the topic’s sensitive nature. My goals is to inform the public of an under discussed but important topic in paediatric medicine.

Equality for followers of South Asian religions in end-of-life care

2012 ◽  
Vol 20 (4) ◽  
pp. 382-391 ◽  
Author(s):  
Jo Samanta
Keyword(s):  
End Of Life ◽  
South Asian ◽  
End Of Life Care ◽  
British Society ◽  
Minority Populations ◽  
Life Care ◽  
The Public ◽  
Asian Religions ◽  
The Government ◽  
Enhance Patient Care

Significant minority populations confer richness and diversity to British society. Responsive end-of-life care is a universal need that has ascended the public agenda following myriad reports of inadequate provision. Nevertheless, the potential exists for unwitting discrimination when caring for terminally ill patients on the basis of their religion or faith. Recent implementation of the Equality Act 2010, together with the government and professional initiatives, promises to positively impact upon this area of contemporary relevance and concern, although the extent to which facilitative policies can truly enhance patient care will depend upon how these are translated into care at the bedside. The contributions of health professionals will be central in meeting the challenges and seizing the opportunities for meeting the religion and faith interests of patients of South Asian descent.

scholarly journals Providing a “Good Death”: Critical Care Nurses’ Suggestions for Improving End-of-Life Care

2006 ◽  
Vol 15 (1) ◽  
pp. 38-45 ◽  
Author(s):  
Renea L. Beckstrand ◽  
Lynn Clark Callister ◽  
Karin T. Kirchhoff
Keyword(s):  
Critical Care ◽  
Intensive Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Critical Care Nurses ◽  
Good Death ◽  
Primary Concern ◽  
Major Theme ◽  
Life Care ◽  
The Public

• Background Providing appropriate end-of-life care has become a primary concern of nurses and the public. The highly technological critical care environment may not facilitate such care. • Objective To collect suggestions from critical care nurses for improving end-of-life care in intensive care units. • Methods A geographically dispersed, random sample of 1409 members of the American Association of Critical-Care Nurses was sent a 72-item survey on perceptions of end-of life care. The survey included a request for suggestions on ways to improve end-of life care. • Results Of the 861 critical care nurses who responded to the survey, 485 offered 530 suggestions for improving end-of-life care. Providing a “good death” was the major theme; specific suggestions included ways to help ensure death with dignity and peace. Barriers to providing good deaths included nursing time constraints, staffing patterns, communication challenges, and treatment decisions that were based on physicians’ rather than patients’ needs. Suggestions for providing a good death included facilitating dying with dignity; not allowing patients to be alone while dying; managing patients’ pain and discomfort; knowing, and then following, patients’ wishes for end-of-life care; promoting earlier cessation of treatment or not initiating aggressive treatment at all; and communicating effectively as a health-care team. Educational initiatives for professionals and the public were also suggested. • Conclusions Implementation of specific suggestions provided by experienced critical care nurses might increase the quality of end-of-life care, facilitating a good death for intensive care patients.

Canada’s Evolving Medicare: End-of-Life Care

2020 ◽  
pp. 082585972092416
Author(s):  
Nicole MacPherson ◽  
Terrence Montague ◽  
John Aylen ◽  
Lesli Martin ◽  
Amédé Gogovor ◽  
...  
Keyword(s):  
Palliative Care ◽  
Home Care ◽  
End Of Life ◽  
Health Professionals ◽  
End Of Life Care ◽  
Life Care ◽  
Assisted Death ◽  
The Public ◽  
Hospice And Palliative Care ◽  
Over Time

A challenging issue in contemporary Canadian Medicare is the evolution of end-of-life care. Utilizing data from the 2016 and 2018 Health Care in Canada (HCIC) surveys, this paper compares the support and priorities of the adult public (n = 1500), health professionals (n = 400), and administrators (n = 100) regarding key components for end-of-life care just prior to and post legalization of medical assistance in dying (MAiD) in Canada. In 2016 and 2018, the public, health professionals and administrators strongly supported enhanced availability of all proposed end-of-life care options: pain management, hospice and palliative care, home care supports, and medically assisted death. In 2018, when asked which option should be top priority, the public rated enhanced medically assisted death first (32%), followed by enhanced hospice and palliative care (22%) and home care (21%). Enhanced hospice and palliative care was the top priority for health professionals (33%), while administrators rated enhanced medically assisted death first (26%). Despite legalization and increasing support for MAiD over time, health professionals have increasing fear of legal or regulatory reprisal for personal involvement in medically assisted death, ranging from 38% to 84% in 2018, versus 23% to 42% in 2016. While administrators fear doubled since 2016 (40%-84%), they felt the necessary system supports were in place to easily implement medically assisted death. Optimal management of end-of-life care is strongly supported by all stakeholders, although priorities for specific approaches vary. Over time, professionals increasingly supported MAiD but with a rising fear of legal/regulatory reprisal despite legalization. To enhance future end-of-life care patterns, continued measurement and reporting of implemented treatment options and their system supports, particularly around medically assisted death, are needed.

Case study method to design and evaluate person-centred integrated palliative and end-of-life care

2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Giovanna I. Cruz ◽  
Sarah M. McGhee
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Third Sector ◽  
Life Care ◽  
Case Study Method ◽  
Content Type ◽  
The Public ◽  
The Third ◽  
The Third Sector

PurposeThis case study aims to understand the experience of care from a patient/carer perspective and to describe how the method can be replicated to address gaps in evidence relating to integrated person-centred care.Design/methodology/approachThe case study was constructed using data extracted from personal diaries and medical records kept by a person with a complex condition, correspondence with family from the last 18 months of life and interviews with the carer and long-term conditions coordinator. The number of professionals or teams involved in providing care from statutory services, the third sector, and private providers were counted to understand the ecosystem of care. The number of contacts was plotted by provider and purpose of care. The type of care and hours of respite were estimated. A protocol was developed to assess the feasibility of replicating the data and analyses used.FindingsThere were 35 care providers from the public, private and the third sector, demonstrating that only the patient or carer can identify the ecosystem of care. The majority of care was for respite and on average, the carer provided four hours of care per every respite care hour. The method was replicated successfully.Research limitations/implicationsThe case study formed the basis of a workshop that brought together health care professionals from the public services and the third sector. The discussion led to the identification of gaps and areas where greater coordination between providers would benefit patients.Originality/valueThe case study method combines contemporaneous patient and carer sources of data and health service activity to create a detailed account of care at the end of life. The approach addresses gaps in person-centred evidence for the development and evaluation of integrated palliative and end-of-life care.

scholarly journals Learning from the public: citizens describe the need to improve end-of-life care access, provision and recognition across Europe

2013 ◽  
Vol 24 (3) ◽  
pp. 521-527 ◽  
Author(s):  
Barbara A. Daveson ◽  
Juan P. Alonso ◽  
Natalia Calanzani ◽  
Christina Ramsenthaler ◽  
Marjolein Gysels ◽  
...  
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Life Care ◽  
The Public ◽  
Care Access

Dysphagia in Hospice Care: The Roles of Social Work and Speech-Language Pathologists

2014 ◽  
Vol 23 (4) ◽  
pp. 173-186 ◽  
Author(s):  
Deborah Hinson ◽  
Aaron J. Goldsmith ◽  
Joseph Murray
Keyword(s):  
Social Work ◽  
End Of Life ◽  
Case Studies ◽  
End Of Life Care ◽  
Hospice Care ◽  
Patient Communication ◽  
Life Care ◽  
Speech Language Pathologists ◽  
Four Levels

This article addresses the unique roles of social work and speech-language pathologists (SLPs) in end-of-life and hospice care settings. The four levels of hospice care are explained. Suggested social work and SLP interventions for end-of-life nutrition and approaches to patient communication are offered. Case studies are used to illustrate the specialized roles that social work and SLP have in end-of-life care settings.

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