The Work of Patient Advocacy

2011 ◽  
Author(s):  
Duana Fullwiley
Keyword(s):  
Global Health ◽  
Sickle Cell ◽  
Patient Advocacy ◽  
World Health ◽  
Humanitarian Crisis ◽  
Multilateral Institutions ◽  
The World ◽  
Patient Advocates ◽  
Umbrella Organization ◽  
Health Organization

This chapter further explores issues of patients' tenacity to shape science, through advocacy on an international level, and investigates the ways that making a disease public in Africa often entails locating it within discourses of humanitarian “crisis,” emergency, and global health prioritization. In this way, tireless patient advocates of African origin living in France created the sickle cell disease umbrella organization of the International Organization for the Fight against Sickle Cell (OILD), which succeeded in getting sickle cell anemia the attention of the World Health Organization and the United Nations in 2008. The OILD's strategy of making sickle cell visible to these multilateral institutions consisted of linking the disease to other pressing global health problems for development through means that often deployed uncertainty as “data.”

scholarly journals The Covid infodemic

2021 ◽  
Author(s):  
Ken Hyland ◽  
Feng (Kevin) Jiang
Keyword(s):  
Social Anxiety ◽  
Global Health ◽  
Medical Research ◽  
World Health Organization ◽  
Research Methods ◽  
World Health ◽  
Health Crisis ◽  
The World ◽  
Health Organization ◽  
Highly Cited

Abstract Covid-19, the greatest global health crisis for a century, brought a new immediacy and urgency to international bio-medical research. The pandemic generated intense competition to produce a vaccine and contain the virus, creating what the World Health Organization referred to as an ‘infodemic’ of published output. In this frantic atmosphere, researchers were keen to get their research noticed. In this paper, we explore whether this enthusiasm influenced the rhetorical presentation of research and encouraged scientists to “sell” their studies. Examining a corpus of the most highly cited SCI articles on the virus published in the first seven months of 2020, we explore authors’ use of hyperbolic and promotional language to boost aspects of their research. Our results show a significant increase in hype to stress certainty, contribution, novelty and potential, especially regarding research methods, outcomes and primacy. Our study sheds light on scientific persuasion at a time of intense social anxiety.

scholarly journals Global Governance and the WHO’s Mandate Post-COVID-19 Crisis

2021 ◽  
Author(s):  
Jean Vilbert
Keyword(s):  
Global Health ◽  
Negative Relationship ◽  
World Health ◽  
First Year ◽  
Health Crisis ◽  
Nation States ◽  
Democratic Principle ◽  
The World ◽  
Distribution Of Power ◽  
Health Organization

The COVID-19 has renovated the debate about global health governance. A number of scholars have proposed that the World Health Organization should assume the position of a central coordinator with hierarchical powers, demanding nation-states to “share their sovereignty”. This article presents four main objections to this project. First, when international institutions receive leverage, they use to impose “one-size-fits-all” policies, which conflicts with the characteristic heterogeny across countries. Second, geopolitical questions and the distribution of power in multilateral institutions put developing countries in a position of vulnerability within a hierarchical order. Third, the risk of crowding out parallel initiatives, especially from non-state actors. Fourth, decisions about health can have a major impact on countries, which may thwart the internal democratic principle. A Pareto improvement would be possible by strengthening the WHO’s operational capacity and its ability to issue technical guidance and coordinate with countries. To test this hypothesis, this study analyses the possible influence of the WHO’s guidance in the first year of the coronavirus health crisis, from January 2020 to January 2021, in 37 countries reported in the World Values Survey Wave 7 (2017-2020). The OLS regression performed shows a statistically significant negative relationship between the trust in the WHO, assumed as a proxy for the level of the organization's penetration, and the number of cases of COVID-19 (per million people) in the countries of the sample. These findings reinforce the hypothesis that there is a valid case for the countries to strengthen the WHO’s mandate post-COVID-19, but they should enhance the operations of provision of reliable information and support. Nation-states, in particular the developing ones, should eschew the temptation to create a hierarchical global health structure, which may not only fail due to countries’ asymmetries but is likely to create losers in the process.

Participation in the World Health Organization

2020 ◽  
Vol 17 (1) ◽  
pp. 261-290 ◽  
Author(s):  
Steven A. Solomon ◽  
Claudia Nannini
Keyword(s):  
Public Health ◽  
Global Health ◽  
World Health Organization ◽  
Regional Level ◽  
World Health ◽  
Global Public Health ◽  
The World ◽  
Health Organization ◽  
Collaborative Efforts

Participation in the World Health Organization (WHO) is a multifaceted matter and should be understood as not only referring to the governance of WHO, but also to its scientific and technical work as well as its collaborative efforts towards advancing global public health more generally. The article is concerned, in particular, with the legal and political framework surrounding attendance and participation of states and various entities in the governing bodies of the Organization, at the global and regional level. It shows that participation in the governance of WHO is still today a domain reserved to the determination of its Member States. At the same time, solutions have been found and continued efforts are necessary to take into account geopolitical considerations and to ensure a meaningful and inclusive participation of all relevant actors in global health discussions.

scholarly journals The World Health Organization in Crisis—Lessons to be Learned Beyond the Ebola Outbreak

2016 ◽  
Vol 2 (1) ◽  
pp. 1-29 ◽  
Author(s):  
Nadja Meisterhans
Keyword(s):  
Global Health ◽  
World Health Organization ◽  
Legal Theory ◽  
World Health ◽  
Health Crisis ◽  
Democratic Reform ◽  
The World ◽  
The Media ◽  
Health Organization ◽  
Do So

Blaming the World Health Organization (who) for its failures in the Ebola crisis was a common reaction of the media. However, exclusively denouncing the who for the spread of Ebola falls short as it does not recognize the structural deficits of those recent governance procedures financing global health that lead to a chronic underfunding of the who. Against this background, the article reflects perspectives of a democratic reform of global health funding. It concludes that only the who can provide a leadership on global health matters, but to do so it depends on states willing to rebuild the who’s capacities to act. To address the global health crisis properly, the revitalization of who’s constitutional mandate is critically necessary. The discussion is based on normative legal theory, which argues that processes of globalization have transformed international law into a global rule of law, placing specific duties on states and international institutions.

COVID-19 alters focus of cyberespionage

2020 ◽  
Keyword(s):  
Civil Society ◽  
World Health Organization ◽  
World Health ◽  
Research Institutions ◽  
Content Type ◽  
Pharmaceutical Firms ◽  
Civil Society Organisations ◽  
Multilateral Institutions ◽  
The World ◽  
Health Organization

Significance Calls by the UN and civil society organisations for a cyberspace ‘ceasefire’ have made little difference. Impacts Trust in multilateral institutions such as the World Health Organization will be undermined if they suffer cyberattacks. Post-pandemic, China is likely to experience a rise in cyber intrusions from upcoming cyber actors such as Vietnam. Although better prepared than research institutions, large pharmaceutical firms are not immune to cyberespionage.

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