scholarly journals Trastorno del espectro del autismo: intervención educativa y formación a lo largo de la vida

2017 ◽  
Vol 8 (2) ◽  
pp. 157 ◽  
Author(s):  
José L. Cuesta ◽  
Sergio Sánchez ◽  
Martha L. Orozco ◽  
Antonella Valenti ◽  
Lucio Cottini
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Daily Living ◽  
Autism Spectrum ◽  
Intervention Programs ◽  
Life Stages ◽  
Life Project ◽  
Calidad De Vida ◽  
Main Intervention

Resumen: El presente artículo pone de relieve la idea de que la intervención con personas con TEA debe basarse siempre en un planteamiento integral y de futuro. Para ello deben consolidarse redes de servicios que cubran todas las necesidades, derechos, ámbitos y etapas vitales. El objetivo es potenciar el mantenimiento y el desarrollo continuo tanto de las habilidades básicas de la vida diaria como de todas aquellas que faciliten su acceso a los mismos ámbitos que el conjunto de la población, siguiendo el modelo de calidad de vida para asegurar el Proyecto de Vida de estas personas frente a concepciones asistenciales dirigidas solo a evitar el deterioro. Con dicho objetivo a la vista se exponen los principios en los que debe basarse esta intervención, recogiendo además los principales programas de intervención dirigidos a la formación, ocupación y trabajo en la etapa adulta. Autism spectrum disorder: Educational intervention and lifelong learning Abstract: In this paper, we highlight the idea that the intervention on people with ASD should always be based on a comprehensive and forward-looking approach, consolidating networks of services that cover all the vital needs, rights, areas and the life stages, with the aim to enhance the maintenance and the continued development of both basic skills of daily living and all those skills that help them to access to the same areas as the general population, following the model of quality of life to ensure their Life Project against welfare conceptions addressed to prevent deterioration only. We present the principles on which this intervention must be based, and gather the main intervention programs aimed at training, employment and working in adulthood.

scholarly journals The Potential Benefits of Dance Movement Therapy in Improving Couple Relations of Individuals Diagnosed With Autism Spectrum Disorder—A Review

2021 ◽  
Vol 12 ◽  
Author(s):  
Einat Shuper Engelhard ◽  
Maya Vulcan
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Movement Therapy ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Intervention Programs ◽  
Dance Movement Therapy ◽  
Dance Movement ◽  
Adults With Asd

A review of current literature indicates that adults diagnosed with autism spectrum disorder (ASD) feel the need for intimate and sexual relationships and maintain such relationships despite and alongside their difficulties in emotional communication, social interactions, reciprocity, and verbal and non-verbal expression. This understanding calls for the development of intervention programs designed to support the specific needs and address the problems of couples where one partner is diagnosed with ASD. In view of the relevance and significant part played by body and movement in emotional development and psychotherapy, the present article offers a review of studies examining the contribution of dance movement therapy to both the quality of life and functioning of adults with ASD and therapeutic processes in couple therapy. This review aims to establish an infrastructure for the construction of intervention programs and for future studies designed to enhance the quality of life and independence of adults with ASD.

Development and Validation of a Questionnaire to Assess Parent Reported Quality of Life Pre and Post Vision Therapy in a Population with Autism Spectrum Disorder

2019 ◽  
pp. 195-207
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Social Behavior ◽  
Psychometric Properties ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Visual Behavior ◽  
The Mean ◽  
Vision Therapy

Background: Autism spectrum disorder is characterized in part by atypical behavior in the communication, social, and visual domains. Success in vision therapy is judged not only by changes in optometric findings, but through improvement in quality of life involving communication, social behavior and visual behavior. It would therefore be beneficial to have a validated questionnaire to assess parent reported quality of life pre and post vision therapy specific to patients with autism spectrum disorder. To our knowledge, a questionnaire of this nature has not been previously published in the literature. Methods: Questionnaire items were generated through surveying medical literature based on symptoms in three different categories: visual behavior, social behavior and communication. A pool of 34 questions was developed initially and then with thorough discussion with other experts, a 20-point questionnaire was developed with each item reflected in the construct concept. A draft of 20 questions was then sent to 10 subject experts with clinical experience in the field for more than 20 years, to review the pooled items. Validity and reliability was established prior to assessing the psychometric properties of the ASD/QOL-VT. Prospective observational study was conducted for a duration of 18 months. The study included individuals undergoing vision therapy in the age range of 3 to 15 years who had been diagnosed with ASD. The questionnaire was administered to parents of these children prior to the start of vision therapy. All subjects completed a minimum of 60 vision therapy sessions. The questionnaire was readministered after completing 60 sessions of vision therapy. Results: Cronbach’s alpha value for this questionnaire was 0.93, which reflected very good internal consistency. Factorial analysis yielded four factors with an Eigen value exceeding 1.0 which accounted for 68% variation in the model. The Cronbach alpha value for subscales identified by factorial analysis is 0.97 indicating excellent internal reliability. The mean pre vision therapy social behavior, communication and visual behavior score was 12.0±3.21, 17.07±4.57 and 26.97±6.41 respectively. The mean post vision therapy scores for social behavior, communication and visual behavior was 8.27±4.16, 11.33±5.27 and 17.93±6.52 respectively. On paired t test, the mean difference in score was statistically significant with P<0.001 in all three subcategories. Conclusions: Our study presents the development of a valid and reliable parent questionnaire, the ASD/QOL-VT, that judges communication, social behavior, and visual behavior in autism. Results of the study conducted indicate that vision therapy can result in significant improvements in the quality of life of patients with ASD as judged by their parents. This is evidenced by statistically significant changes in psychometric properties of the ASD/QOL-VT in social behavior, communication and visual behavior.

Examining the experiences and quality of life of patients with an autism spectrum disorder detained in high secure psychiatric care

2017 ◽  
Vol 3 (1) ◽  
pp. 3-14 ◽  
Author(s):  
David Murphy ◽  
Hannah Mullens
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Psychiatric Care ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Living Situation ◽  
Diverse Range ◽  
Content Type ◽  
Secure Psychiatric Care

Purpose Although individuals with an autism spectrum disorder (ASD) represent a small proportion of forensic psychiatric patients as a group they present with specific difficulties and needs. There is also evidence that if detained individuals with an ASD experience particular difficulties within custodial environments as a result of a mismatch between the difficulties associated with their ASD and the environmental demands. The purpose of this paper is to explore the experience of individuals with an ASD admitted to a high secure psychiatric care (HSPC) hospital. Design/methodology/approach Using both a semi-structured interview and a quality of life self-report measure (the Lancashire Quality of Life Profile) the experiences and views of seven patients with an ASD detained in one HSPC hospital were qualitatively explored. Findings Whilst a diverse range of negative and positive aspects of being within HSPC were identified by patients interviewed, those with prison experience thought HSPC was a less stressful environment with more therapeutic opportunities. As a group, patients with an ASD reported a similar or significantly better quality of life in many domains (global, leisure, financial and living situation) compared to other detained forensic patient groups. Practical implications Although most patients with an ASD interviewed reported positive experiences, there are a number of practical improvements that could be made within the hospital to reduce experienced stress levels and perhaps improve therapeutic outcomes. Originality/value Within the context of the Department of Health's autism strategy (2010) and subsequent update think autism (2014), the survey highlights continued ASD awareness training for staff as important. In responding to the risks and needs of individuals with an ASD in HSPC there is further support for the development of an ASD specialist service.

scholarly journals Exploring possible predictors and moderators of an executive function training for children with an autism spectrum disorder

Autism ◽  
2017 ◽  
Vol 22 (4) ◽  
pp. 440-449 ◽  
Author(s):  
Marieke de Vries ◽  
Mathilde GE Verdam ◽  
Pier JM Prins ◽  
Ben A Schmand ◽  
Hilde M Geurts
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Autism Spectrum ◽  
Reward Sensitivity ◽  
Spectrum Disorder ◽  
Autism Traits ◽  
Moderating Factors ◽  
Flexibility Training ◽  
Executive Function Training

Previously, a total of 121 children with an autism spectrum disorder (ASD) performed an adaptive working memory (WM)-training, an adaptive flexibility-training, or a non-adaptive control (mock)-training. Despite overall improvement, there were minor differences between the adaptive and mock-training conditions. Moreover, dropout was relatively high (26%). In the current study we explored potential predicting and moderating factors to clarify these findings. The effects of intelligence, autism traits, WM, flexibility, reward sensitivity and Theory of Mind on dropout, improvement during training, and improvement in everyday executive functioning (EF), ASD-like behavior, and Quality of Life (QoL) were studied. None of the predictors influenced dropout or training improvement. However, 1) more pre-training autism traits related to less improvement in EF and QoL, and 2) higher reward sensitivity was related to more improvement in QoL and ASD-like behavior. These findings suggest that these EF-training procedures may be beneficial for children with fewer autism traits and higher reward sensitivity. However, the exploratory nature of the analyses warrant further research before applying the findings clinically.

Dance, functioning and quality of life in children with Down syndrome and autism spectrum disorder dance, functioning and quality of life in Down syndrome and autism spectrum disorder

2021 ◽  
pp. 135910452110617
Author(s):  
Evanilza T. Adorno ◽  
Daiany C de J. Dos Santos ◽  
Beatriz M. DeJesus ◽  
Adrielle A. Passos ◽  
Lavínia Teixeira-Machado
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Down Syndrome ◽  
Rating Scale ◽  
Functional Independence Measure ◽  
Functional Independence ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Children With Down Syndrome

This study investigated dance practice in psychosocial and functional aspects, and quality of life in children with Down syndrome and autism spectrum disorder. Children with DS and ASD, between 3 and 12 years old, attended a dance program during 16 sessions/lessons, lasting 60 min, twice a week, in suitable place. Functional Independence Measure (FIM), Childhood Autism Rating Scale SF-36 quality of life survey, and Knowledge, Attitude and Practice Inquiry (KAP Inquiry) were applied before and after dance classes. Eleven participants concluded the study. Functional independence changes were observed in relation to self-care, sphincter control, locomotion, and communication domains. Children’ “quality of life” reported by parents showed changes in functional capacity, vitality, mental health, physical and social aspects, and general state of health domains. These findings suggest that regular dance practice can underlie psychosocial adjustments in children with DS and ASD.

Quality of life of French Canadian parents raising a child with autism spectrum disorder and effects of psychosocial factors

2017 ◽  
Vol 27 (4) ◽  
pp. 955-967 ◽  
Author(s):  
Émilie Cappe ◽  
Nathalie Poirier ◽  
Carol Sankey ◽  
Andréa Belzil ◽  
Carmen Dionne
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Psychosocial Factors ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
French Canadian

Gross Motor Function and Health Quality of Life Among Children with Autism Spectrum Disorder Participating in a Gymnastics Program: A Pilot Study

2020 ◽  
Vol 31 (1) ◽  
Author(s):  
M. Dannielle Ayers ◽  
E. Laurette Taylor ◽  
Paul Branscum ◽  
Craig Hofford
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Motor Function ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Gross Motor ◽  
Gross Motor Function ◽  
Health Quality ◽  
Health Quality Of Life

The current study assessed impact of a gymnastics program on gross motor function and health quality of life in children with autism spectrum disorder (ASD). Eleven children participating in gymnastics were compared to ten children in a comparison group. Measurement tools were the Test of Gross Motor Development-second edition (TGMD-2) and Pediatric Quality of Life- fourth edition (PedsQL-4.0). Results showed no between group differences for overall gross motor function and health quality of life. Statistically significant differences were found for two individual skills on the TGMD-2: run (p=.026) and gallop (p=.041). Potential confounding factors were observed (i.e. rater bias, dose response, and “toe-walking”).

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