scholarly journals The Educational Needs of Home-Based Stroke Patients and Family Caregivers in Malaysia

2021 ◽  
Author(s):  
◽  
Che Rabiaah Mohamed

<p>Many research studies have been done in relation to the educational needs of patients and families post-stroke based in Western countries but limited studies have been conducted in non-Western countries. This study explored the educational needs of home-based stroke patients (HBSP) and family caregivers in the Kelantan state located at the northern part of Peninsular Malaysia. The other areas of focus were to identify the resources available for HBSP and their families, the practice of health professionals in relation to the provision of information and education and the early rehabilitation needs for HBSP and family caregivers. A further aim was to develop education strategies that will help patients and their families to minimise risk of complication post-stroke and support the advancement of their quality of life. This study used a qualitative approach guided by a theoretical framework "Stroke Care Community Model (SCCM)" developed for this research. This study was in two phases. Phase 1 involved semi-structured interviews with three kinds of participants: stroke patients (n=5), family caregivers (n= 5) and key members from health professional groups (n=12). Phase 1 established the educational activities currently received and needed by patients and families. Phase 2 involved presenting the findings from Phase 1 to the previously interviewed health professionals through focus groups and individual interviews with the aim of establishing priorities and processes to develop education strategies for HBSP and their families. The findings revealed that the provision of information and education does not meet the needs of many patients and families. There is no national or local programme provided to address patients' and families' needs. The educational needs are on a wide range of topics including the nature and the impacts of stroke, how and why stroke happens, how to prevent stroke recurring, prevention of complications and promoting faster recovery. The need for skills on managing patients at home include positioning, strengthening, mobilisation, prevention of complications, feeding, swallowing, managing co-morbid conditions, basic exercise and safety. The findings also revealed some needs are religiously and culturally bound around prayer and traditional healthcare practice such as urutan tradisional (traditional massage). Prayer and reciting Holy Qur'an are part of cognitive training, coping strategies, rehabilitation therapy and a source of psychological support. Therefore, there is a need to take the knowledge of what makes a difference to health outcomes of patients and families in a western context and work with this, utilising what is important in the culture of people at a local level. The next step to progress addressing educational needs requires a structured approach involving the formation of a multi-disciplinary stroke team that incorporates cultural and religious practice.</p>


2021 ◽  
Author(s):  
◽  
Che Rabiaah Mohamed

<p>Many research studies have been done in relation to the educational needs of patients and families post-stroke based in Western countries but limited studies have been conducted in non-Western countries. This study explored the educational needs of home-based stroke patients (HBSP) and family caregivers in the Kelantan state located at the northern part of Peninsular Malaysia. The other areas of focus were to identify the resources available for HBSP and their families, the practice of health professionals in relation to the provision of information and education and the early rehabilitation needs for HBSP and family caregivers. A further aim was to develop education strategies that will help patients and their families to minimise risk of complication post-stroke and support the advancement of their quality of life. This study used a qualitative approach guided by a theoretical framework "Stroke Care Community Model (SCCM)" developed for this research. This study was in two phases. Phase 1 involved semi-structured interviews with three kinds of participants: stroke patients (n=5), family caregivers (n= 5) and key members from health professional groups (n=12). Phase 1 established the educational activities currently received and needed by patients and families. Phase 2 involved presenting the findings from Phase 1 to the previously interviewed health professionals through focus groups and individual interviews with the aim of establishing priorities and processes to develop education strategies for HBSP and their families. The findings revealed that the provision of information and education does not meet the needs of many patients and families. There is no national or local programme provided to address patients' and families' needs. The educational needs are on a wide range of topics including the nature and the impacts of stroke, how and why stroke happens, how to prevent stroke recurring, prevention of complications and promoting faster recovery. The need for skills on managing patients at home include positioning, strengthening, mobilisation, prevention of complications, feeding, swallowing, managing co-morbid conditions, basic exercise and safety. The findings also revealed some needs are religiously and culturally bound around prayer and traditional healthcare practice such as urutan tradisional (traditional massage). Prayer and reciting Holy Qur'an are part of cognitive training, coping strategies, rehabilitation therapy and a source of psychological support. Therefore, there is a need to take the knowledge of what makes a difference to health outcomes of patients and families in a western context and work with this, utilising what is important in the culture of people at a local level. The next step to progress addressing educational needs requires a structured approach involving the formation of a multi-disciplinary stroke team that incorporates cultural and religious practice.</p>



Author(s):  
Azrulhizam Shapii

Traditional rehabilitation is a tedious process which is reducing the patients' motivation to perform rehabilitation exercises. Therefore, patients need a program that can entice them to do rehabilitation exercises at home. This research aims to identify the game's needs based on the traditional rehabilitation, design a prototype of a recovery game based on traditional rehabilitation, and test the effectiveness of the rehabilitation game. There are two different game types in this rehabilitation game, with three different movement types used to interact. The prototype developed based on four elements, which are the elements of rehabilitation game, type of movement rehabilitation exercises, technology constraints faced by post-stroke patients, and the basic principle of interface design. Because of patients face physical constraints, Kinect was used in this game to interact with. Using Kinect, the patient is not bound to any device to interact with the game. The game also introduces a social background that encourages patients to have a friend to play either through competition or cooperation.By evaluating by observation and interviews, the game was accepted by post-stroke patients and their family members. They also provide a suggestion for improvement in the future. The contribution of this research is to measure whether the Kinect game console and this game can help patients do additional recovery exercises at home without the supervision of the therapist



Author(s):  
Dr. Manish Bhardwaj ◽  
Dr. R. K. Sureka ◽  
Dr. Surendra Kumar Meena ◽  
Dr. Neha Jain

The occupational therapy has a decisive role in restoring fine motor skills in post stroke patients. The purpose of this study was to compile all the information pertaining to the assessment and treatment performed by occupational therapist. This study amass the complete personification of occupational therapy from the need of theoretical basis to the practical treatment aspects. The study covers the basic idea of stroke and complications arose in the normal movements and leads towards the complete functional aspects of the motor function of human hand. The position of occupational therapy in a rehabilitation team and a detailed knowledge of areas of occupational therapy related to fine motor skills helps to grab the evaluation process used and treatment protocol prescribed to restore fine motor skills after stroke. It helps to gain a detailed know-how of tools and instruments used for assessment and techniques used in the treatment of stroke that focuses on fine motor skills. This study reveals that occupational therapy as its specialty in hand rehabilitation has a wide range of assessments, treatment and management protocols to pursue the treatment of a variety of areas of hand rehabilitation including fine motor skills after an event of stroke



Stroke ◽  
2021 ◽  
Vol 52 (Suppl_1) ◽  
Author(s):  
Ashok Kumar ◽  
Dheeraj Khurana ◽  
Smita Pattanaik ◽  
Mukesh Kumar ◽  
Manish Modi ◽  
...  

Introduction: Stroke nurse is functioning as a vital member of the stroke team. She/he provides care to the stroke patients in acute as well as post-acute periods. She/he coordinates among other team members to facilitate the stroke care continuum. Post-stroke care is always a challenge for health care professional as well as caregivers. During current pandemic conditions, it is essential to provide quality care at their home. Purpose: To develop a mobile application to provide home based care for prevention and management of post stroke complications among survivors. Methods: Survey was carried out among 170 bedridden stroke survivors and their caregivers to assess problems faced like aspiration pneumonia, bedsore, urinary tract infection, deep vein thrombosis, frozen shoulder, contractures, and caregiver burden. On the basis of findings ‘Stroke home care’ a bilingual (in Hindi and English) mobile application was developed which contains step by step nursing-care-procedural videos to prevent bedsore, bedsore dressing, positioning change, Ryle’s tube feeding, Foley’s catheter care, active and passive range of motion exercises, hand washing with soap-water as well with sanitizer, psychological support to patients. Results: Through this intervention, caregivers of bedridden stroke patients get trained for care procedures so that they can provide best possible nursing care to their patients at home and can prevent post stroke complications and ultimately enhances quality of life of survivors and reduce caregivers’ burden. Conclusion: ‘Stroke Home Care’ is a novel intervention developed by a stroke nurse which has been developed and tested not just for its feasibility and acceptability but also proven for its clinical applicability through PROBE designed study. This web based intervention can provide rehabilitation services to bedridden stroke survivors at their home in this pandemic.





2018 ◽  
Vol 3 (2) ◽  
pp. e0302107
Author(s):  
Olga Kovalenko ◽  
Maryna Chizhukova

Introduction Vascular and cerebrovascular diseases remain an actual problem of modern society. More than 70% of post-stroke patients suffered from different pains. Although a headache is the common complaint of post-stroke patients it is not described good in specialized literature and its pathophysiology has not yet been sufficiently studied. In order to relieve headaches, the patients usually use a lot of medicaments often without an agreement with a doctor. Since unnecessary polypharmacy is ineffective and leads to a wide range of adverse effects, the search for pathogenically valid and effective alternative approaches deserves the great attention. Acupuncture is one of such approaches. Methods We analyzed 2 groups of patients who had the stroke in anamnesis and suffered from a headache: the main (acupuncture) group (n = 30) that underwent acupuncture and traditional medications and the control group that received medication alone (n = 30). The average age of patients in the main group was 70 (SD 8.06) years. Among them 13 women and 17 men. The average age of participants in the control group was 70.3 (SD 9.00) years and it included 8  and 22 individuals of male and female gender. In both groups, the ischemic stroke type predominated. Most patients in both groups were in residual stroke period. Along with the corporal acupuncture we used a combined method which included an effect on several microsystems. Evaluation of a headache was based on 4 criteria: intensity, duration, characteristics, and localization. Results The data analysis showed that the complex treatment of a headache including combined acupuncture method statistically significantly (p<0.05) affects three indicators of a headache - intensity, duration, and characteristics. The pain localization had a tendency to positive changes (p<0.1). Control group showed good results (p<0.05) only on two headache indicators - intensity and duration, whereas the effect of treatment on pain characteristics and localization was not significant. The comparative analysis of the treatment results of the two groups demonstrated the statistically significant positive effect (p<0,05) in favor to acupuncture on the four headache criteria: intensity, duration, characteristics, and localization. Conclusion Acupuncture in the complex treatment of post-stroke patients significantly reduces a headache in comparison to standard treatment alone. It can allow improving the effectiveness of rehabilitation and quality of life.



2012 ◽  
Vol 27 (1) ◽  
pp. 61-66
Author(s):  
Seiichi TAKEMASA ◽  
Ryoma NAKAGOSHI ◽  
Masahito MURAKAMI ◽  
Masayuki UESUGI ◽  
Yuri INOUE ◽  
...  


2021 ◽  
pp. 1-21
Author(s):  
Tun Wang ◽  
Enea Olivoni ◽  
Emmanouil Spyrakos-Papastavridis ◽  
Rory J O'Connor ◽  
Jian S Dai

Abstract This paper presents a novel ankle rehabilitation exoskeleton for post-stroke patients, with its rotational centre automatically conforming with ankle complex once people wear it. This exoskeleton has 2 rotation DOFs and is able to provide 2 different rotation patterns by reconfiguring. In the combined-rotation pattern arrangement, the mechanism can generate all three kinds of rotations that the ankle complex is naturally capable of realising. Among these rotational motions, adduction/abduction rotation is coupled motion. This rotation can be further reduced, or eliminated, by minimizing the distance between the lower connection points of the actuated links and the human ankle complex, and vice versa. For the other rotation pattern, a 90-degree arrangement of the side link offers decoupled motion control of the mechanism. Numerical studies reveal that the required rehabilitation workspace for dynamical gait exercises can be achieved with high dexterity, without generating singularities. Further investigations indicate that this mechanism has great potential for rehabilitating post-stroke patients of a wide range of heights and weights.



2013 ◽  
Vol 56 ◽  
pp. e144 ◽  
Author(s):  
D. Bernikier ◽  
R. Sautreau ◽  
B. Kammoun ◽  
S. Louty ◽  
J.C. Daviet ◽  
...  


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