scholarly journals Communicating with Library Patrons and Dementia Patients: Tracing an Ethic of Care Practice in Professional Communication Guidelines

2018 ◽  
Author(s):  
Nicole K. Dalmer ◽  
D. Grant Campbell
Keyword(s):  
Ethic Of Care ◽  
Dementia Care ◽  
Professional Communication ◽  
Care Practice ◽  
Information Communication ◽  
Dementia Patients ◽  
Reference Librarians ◽  
Initial Results ◽  
Funded Research Project

This presentation reports on the initial results ofa SSHRC-funded research project involving thecomplex interactions between information,communication and dementia. We use an ethic ofcare framework to compare prominent guidelinesfor reference librarians with guidelines forworkers in long-term dementia care settings. In so doing, we explore how both sets of guidelines frame the act of communication as a combination of regulated procedure and empathetic discourse.

scholarly journals Communicating with library patrons and people with dementia: Tracing an ethic of care in professional communication guidelines

Dementia ◽  
2018 ◽  
Vol 19 (3) ◽  
pp. 899-914
Author(s):  
Nicole K Dalmer ◽  
DG Campbell
Keyword(s):  
Interpersonal Relationships ◽  
Ethic Of Care ◽  
Service Providers ◽  
Information Service ◽  
Dementia Care ◽  
Professional Communication ◽  
Moral Principles ◽  
People With Dementia ◽  
Health And Social Care ◽  
Reference Librarians

In both library reference work and dementia care, communication between personnel and service recipients can be both complex and complicated. Professionals in both fields have therefore developed protocols and standards to assist personnel in handling these interactions. In this article we detail an exploratory comparative study that used an ethic of care framework to compare prominent guidelines for reference librarians (American Library Association’s Reference and User Services Association’s Guidelines for behavioral performance of reference and information service providers) with guidelines for workers in long-term dementia care settings (the National Institute for Health and Care Excellence’s Guideline on supporting people with dementia and their carers in health and social care). We explored how both sets of Guidelines frame the act of communication as a combination of regulated procedure and empathetic discourse to determine how the similarities among and differences between these two guidelines provide useful insights into each other. Our examination was structured using an ethic of care lens, which emphasizes the importance of interpersonal relationships, reciprocity, and empathetic benevolence. Using specific phrases in each set of Guidelines that align with and are evidence of Tronto’s four moral principles of care, we ultimately discovered, in both sets of Guidelines, an underlying ethic of care: a repeated insistence upon embedding procedures within behaviour that manifests attentiveness, responsibility, responsiveness, and competence.

scholarly journals Wellbeing-enhancing occupation and organizational and environmental contributors in long-term dementia care facilities: an explorative study

2013 ◽  
Vol 26 (1) ◽  
pp. 69-80 ◽  
Author(s):  
Dieneke Smit ◽  
Bernadette Willemse ◽  
Jacomine de Lange ◽  
Anne Margriet Pot
Keyword(s):  
Physical Environment ◽  
Dementia Care ◽  
Care Practice ◽  
Care Organization ◽  
Environmental Characteristics ◽  
Explorative Study ◽  
Care Facilities ◽  
Care Mapping ◽  
Dementia Care Mapping

ABSTRACTBackground:Occupation remains an unmet need in long-term dementia care. To increase residents’ occupation, knowledge of types of occupation related to wellbeing, and organizational and environmental characteristics encouraging involvement in these types of occupation, is indispensable.Methods:In this explorative study, Dementia Care Mapping was used to study involvement in different types of occupation and wellbeing among 57 residents of 10 dementia care facilities. For each type of occupation, mean experienced wellbeing was studied. Occupation types with high mean wellbeing scores were classified as “wellbeing-enhancing occupation.” Care facilities were ranked according to the mean time residents spent in types of wellbeing-enhancing occupation. Using information on staff-to-resident ratio, individual space, and items of the Physical Environment Evaluation Component of Dementia Care Mapping, organizational and environmental characteristics of the facilities were compared to study their relationship with wellbeing-enhancing occupation.Results:Reminiscence, leisure, expression, and vocational occupation had greatest potential to enhance wellbeing, but these types were seldom offered. Much variation existed in the extent to which wellbeing-enhancing occupation was provided. Long-term care facilities that did so more frequently generally had a more homelike atmosphere, supported social interaction through the environment, and had no central activity program.Conclusions:This study suggests that it is possible to engage residents in wellbeing-enhancing occupation, within current means of budget and staff. The physical environment and care organization might play a role, but the key factor seems to equip staff with skills to integrate wellbeing-enhancing occupation into care practice.

The Netherlands

2019 ◽  
pp. 195-202
Author(s):  
Marcel Olde Rikkert
Keyword(s):  
Nursing Home ◽  
The Netherlands ◽  
Ad Hoc ◽  
Dementia Care ◽  
Nursing Home Care ◽  
Great Promise ◽  
Dementia Patients ◽  
Care At Home ◽  
Fragmentation Of Care

In the Netherlands, there is currently an ongoing transition whereby a relevant part of long-term institutionalized care for dementia patients is being shifted to care at home. Legislation was changed in 2015 to achieve this goal. However, primary and nursing home care still needs to be redesigned to meet the needs of dementia patients and society. Improving network care holds great promise for this transition, as current dementia care in the Netherlands still falls short in terms of fragmentation of care, ad hoc collaboration, lack of feedback on quality and efficiency of care to healthcare professionals involved, and inadequate implementation of established multidisciplinary guidelines.

scholarly journals 440 - Dementia villages: rethinking dementia care

2020 ◽  
Vol 32 (S1) ◽  
pp. 158-158
Author(s):  
Catarina Pedro ◽  
Mariana Duarte ◽  
Beatriz Jorge ◽  
Daniela Freitas
Keyword(s):  
Local Community ◽  
Dementia Care ◽  
Western World ◽  
Term Care ◽  
Ordinary Life ◽  
Dementia Patients ◽  
Care Models ◽  
Real Community ◽  
Person With Dementia

Introduction:Over the past 20 to 30 years, alternative dementia care models have been developed. Dementia villages challenge popular perceptions about life with dementia and contrast to the traditional model of long-term care facilities that are often seen as institutional, impersonal, and risk-averse. The first dementia village, De Hogeweyk, was developed in 2009 and is located in Weesp, Netherlands. Hogeweyk aims to create a safe environment, enabling the person with dementia to live an “ordinary life” with as much autonomy as possible and also maintaining integration with the local community. Other dementia villages have been established in several countries, following De Hogeweyk model.Objectives:The aim of this presentation is to describe the functioning of dementia villages and evaluate its benefits on dementia patients.Methods:A non-systematic review of the literature was performed on PubMed, PsycINFO and Web of science using selected keywords. We also consult the official websites of the institutions.Results:Dementia villages seem to improve functioning and reduce the need for medication. Anxiety, restlessness and homesickness can still persist, but are reduced by the homelike and hospitable setting in which residents live. In fact, antipsychotic medication use at the residence has decreased from approximately 50% of residents, before the dementia village was introduced, to approximately 12% in 2019. The staff also reported greater job satisfaction. Although dementia villages are growing throughout the Western world, this concept has also been criticized, arguing that this type of living is dishonest, misleading the residents to believe that they are still living in the ‘real community’.Conclusions:Dementia villages are guided by the principles “deinstitutionalize, transform and normalize” care for people with advanced dementia. Although its intuitive advantages, there is no research evidence to demonstrate that this environment has any beneficial effect in behaviour, functional ability or cognition. In future studies, clinical outcomes could be used as a measure of quality of care. Hogeweyk concept has made societies rethinking dementia care and has been inspiring the development of other innovative models of dementia care.

Micro-citizenship, dementia and long-term care

Dementia ◽  
2016 ◽  
Vol 15 (3) ◽  
pp. 289-303 ◽  
Author(s):  
Clive Baldwin ◽  
Michelle Greason
Keyword(s):  
Social Inclusion ◽  
Long Term Care ◽  
Dementia Care ◽  
Care Staff ◽  
Care Practice ◽  
Family Carers ◽  
Front Line ◽  
Term Care ◽  
People With Dementia

In recent years there has been an increasing interest in the concept of citizenship as a lens through which to understand dementia practice. This move from an individualist, personhood-based approach towards an understanding of people with dementia as a group facing social and structural discrimination parallels, in some ways, that previously seen in the realms of disability and mental health which have sought to politicize those experiences. In so doing, the debate has sought to reconfigure power relations, insisting that members of such discriminated groups are people with power entitled to the same from life as everyone else. Much of the discussion to date has, understandably, focused on the larger issues of social inclusion, rights and responsibilities – reflecting the traditional concern of citizenship of individuals’ relationship to the state or the society in which they live. More recently, there has been a move to conceptualising citizenship as a practice – something that is realised through action and in relationship – rather than a status bestowed. In this paper, we seek to contribute to the discussion by introducing the concepts of midi- and micro-citizenship, taken from organisation studies, as a further means by which to link the personal and the political, and as grounds to build citizenship-alliances between people with dementia living in long-term care (LTC) facilities and front-line dementia care staff. We will then seek to illustrate the usefulness of these concepts in understanding citizenship in practice in LTC facilities through analysis of data drawn from focus groups involving LTC staff, and interviews with family carers whose relatives live in LTC facilities. In conclusion, we will explore some of the possibilities that such an approach holds for dementia care practice.

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