Reproducibility, Construct Validity, and Responsiveness of the “How Are You?” (HAY), a Self-Report Quality of Life Questionnaire for Children with Asthma

2000 ◽  
Vol 37 (1) ◽  
pp. 43-58 ◽  
Author(s):  
Elise M. le Coq ◽  
Vivian T. Colland ◽  
A. Joan P. Boeke ◽  
Dick P. Bezemer ◽  
Jacques Th. M. van Eijk
2013 ◽  
Vol 29 (2) ◽  
pp. 167-181 ◽  
Author(s):  
Simona Orcesi ◽  
Giada Ariaudo ◽  
Eugenio Mercuri ◽  
Ettore Beghi ◽  
Cristiana Rezzani ◽  
...  

2012 ◽  
Vol 22 (1) ◽  
pp. 123-129 ◽  
Author(s):  
Susanne Singer ◽  
Philipp M. Engelberg ◽  
Gregor Weißflog ◽  
Susanne Kuhnt ◽  
Jochen Ernst

2000 ◽  
Vol 177 (1) ◽  
pp. 42-46 ◽  
Author(s):  
Greg Wilkinson ◽  
Bernadette Hesdon ◽  
Diane Wild ◽  
Ron Cookson ◽  
Carole Farina ◽  
...  

BackgroundQuality of life is the subject of growing interest and investigation.AimsTo develop and validate a short, self-report quality of life questionnaire (the Schizophrenia Quality of Life Scale, SQLS).MethodPeople with schizophrenia in Liverpool were recruited via the NHS. Items, generated from in-depth interviews, were developed into an 80-item self-report questionnaire. Data were factor analysed, and a shorter form measure was tested for reliability and validity. This measure was administered together with other self-report measures – SF–36, GHQ–12 and HADS – to assess validity.ResultsData were analysed to produce a final 30-item questionnaire, comprising three scales (‘psychosocial’, ‘motivation and energy’, and ‘symptoms and side-effects’) addressing different SQLS dimensions. Internal consistency reliability of the scale was found to be satisfactory. There was a high level of association with relevant SF–36, GHQ–12 and HADS scores.ConclusionsThe SQLS was completed within 5–10 minutes. It possesses internal reliability and construct validity, and promises to be a useful tool for the evaluation of new treatment regimes for people with schizophrenia.


Author(s):  
Helen Beckmann ◽  
Christoph Heesen ◽  
Matthias Augustin ◽  
Christine Blome

Abstract Background: Treatment- and work-related aspects have been neglected in health-related quality of life (HRQOL) measures in multiple sclerosis (MS). We aimed to develop a brief instrument covering all important impairment-, activity-, participation-, and treatment-related aspects for use in research and practice. Methods: The 27-item Multiple Sclerosis Quality of Life Questionnaire (MS-QLQ27) was developed using open item collection, a multidisciplinary expert panel, and cognitive pretesting. It was evaluated for reliability, construct validity, and responsiveness with 100 patients presenting with relapse (84 at follow-up ~14 days later). Construct validity was analyzed by correlating the MS-QLQ27 with the disease-specific Hamburg Quality of Life Questionnaire in MS (HAQUAMS) and generic HRQOL instuments. The Expanded Disability Status Scale (EDSS) was used to analyze known-groups validity. Responsiveness was determined as the correlation of changes in MS-QLQ27 scores with changes in validation criteria. Results: Internal consistency was high (Cronbach α = 0.94 at baseline and 0.93 at follow-up). Convergent validity was supported by direction and magnitude of associations with disease-specific and generic instruments. Correlations with change in convergent criteria were strong, indicating responsiveness. The HAQUAMS showed the strongest associations with the MSQLQ27. The MS-QLQ27 showed the highest effect size compared with other patient-reported outcomes and the EDSS. It successfully distinguished between levels of disease severity. Conclusions: These results indicate that the MS-QLQ27 is a reliable, valid, and highly responsive instrument for assessing HRQOL during relapse evolution in MS. Its advantages are that it is brief yet comprehensive, covering work- and treatment-related aspects not addressed in previous measures.


2021 ◽  
Vol 61 (1) ◽  
Author(s):  
Rafaela Silva Guimaraes Gonçalves ◽  
Alice Heaney ◽  
Stephen P. McKenna ◽  
Jonas Braynner Carvalho ◽  
Maria Eduarda Lima Vidal ◽  
...  

Abstract Introduction Psoriatic arthritis (PsA) is a multifaceted inflammatory disease that can cause joint destruction and impair quality of life. The Psoriatic Arthritis Quality of Life Questionnaire (PsAQoL) was the first disease-specific tool for determining the impact of the disease on the quality of life of people with PsA. Objectives The primary objective was to develop and validate a Brazilian Portuguese version of the PsAQoL. Methods The UK PsAQoL was translated into Brazilian Portuguese using two translation panels. This translation then checked for face validity and construct validity with new samples of patients. Finally, a test-retest validation study was conducted with 52 patients with PsA. The survey included the Nottingham Health Profile (NHP) as a comparator instrument. Results Internal consistency and reproducibility were both excellent for the new adaptation (0.91 and 0.90 respectively Scores on the PsAQoL were found to correlate as expected with the comparator measure and the instrument was able to detect differences in score related to perceived severity of PsA, general health status and presence of a flare. Conclusion The Brazilian PsAQoL was found easy to understand and complete and has excellent reliability and construct validity. The new measure will be a valuable new tool for use in routine PsA practice and clinical trials.


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