scholarly journals Trends in Pediatric Palliative Care Research (TPPCR) 2021; Issue #10: Commentary on Battista et al.

2021 ◽  
Author(s):  
Arun Ghoshal ◽  
- TPPCR
Keyword(s):  
Palliative Care ◽  
Young Adults ◽  
Advance Directives ◽  
Neuromuscular Disease ◽  
Adolescents And Young Adults ◽  
Integrative Review ◽  
Pediatric Palliative Care ◽  
Review Of The Literature ◽  
Care Research

This TPPCR commentary discusses the 2021 paper by Battista et al, “Advance Directives for Adolescents and Young Adults Living with Neuromuscular Disease: An Integrative Review of the Literature.” published in Journal of Hospice and Palliative Nursing.

Advance Directives for Adolescents and Young Adults Living With Neuromuscular Disease

2021 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Vanessa Battista ◽  
Deborah J. Baker ◽  
Tara Trimarchi ◽  
Bushra Sabri ◽  
Rita F. D'Aoust ◽  
...  
Keyword(s):  
Young Adults ◽  
Advance Directives ◽  
Neuromuscular Disease ◽  
Adolescents And Young Adults

scholarly journals Opioid-Induced Respiratory Depression in Pediatric Palliative Care Patients with Severe Neurological Impairment—A Scoping Literature Review and Case Reports

Children ◽  
2020 ◽  
Vol 7 (12) ◽  
pp. 312
Author(s):  
Maximilian David Mauritz ◽  
Carola Hasan ◽  
Larissa Alice Dreier ◽  
Pia Schmidt ◽  
Boris Zernikow
Keyword(s):  
Risk Factors ◽  
Palliative Care ◽  
Young Adults ◽  
Scoping Review ◽  
Pediatric Patients ◽  
Case Reports ◽  
Neurological Impairment ◽  
Opioid Therapy ◽  
Pediatric Palliative Care ◽  
Severe Neurological Impairment

Pediatric Palliative Care (PPC) addresses children, adolescents, and young adults with a broad spectrum of underlying diseases. A substantial proportion of these patients have irreversible conditions accompanied by Severe Neurological Impairment (SNI). For the treatment of pain and dyspnea, strong opioids are widely used in PPC. Nonetheless, there is considerable uncertainty regarding the opioid-related side effects in pediatric patients with SNI, particularly concerning Opioid-Induced Respiratory Depression (OIRD). Research on pain and OIRD in pediatric patients with SNI is limited. Using scoping review methodology, we performed a systematic literature search for OIRD in pediatric patients with SNI. Out of n = 521 identified articles, n = 6 studies were included in the review. Most studies examined the effects of short-term intravenous opioid therapy. The incidence of OIRD varied between 0.13% and 4.6%; besides SNI, comorbidities, and polypharmacy were the most relevant risk factors. Additionally, three clinical cases of OIRD in PPC patients receiving oral or transdermal opioids are presented and discussed. The case reports indicate that the risk factors identified in the scoping review also apply to adolescents and young adults with SNI receiving low-dose oral or transdermal opioid therapy. However, the risk of OIRD should never be a barrier to adequate symptom relief. We recommend careful consideration and systematic observation of opioid therapy in this population of patients.

scholarly journals Palliative Care in Adolescents and Young Adults with Cancer

2015 ◽  
Vol 22 (4) ◽  
pp. 475-479 ◽  
Author(s):  
Kristine A. Donovan ◽  
Dianne Knight ◽  
Gwendolyn P. Quinn
Keyword(s):  
Palliative Care ◽  
Young Adults ◽  
Adolescents And Young Adults

Issues experienced and support provided to adolescents and young adults at the end of active treatment for cancer: A rapid review of the literature

2018 ◽  
Vol 27 (6) ◽  
pp. e12972 ◽  
Author(s):  
Sarah Lea ◽  
Ana Martins ◽  
Matt Bassett ◽  
Maria Cable ◽  
Gary Doig ◽  
...  
Keyword(s):  
Young Adults ◽  
Active Treatment ◽  
Adolescents And Young Adults ◽  
Rapid Review ◽  
Review Of The Literature

Challenges to participation in paediatric palliative care research: a review of the literature

2007 ◽  
Vol 21 (5) ◽  
pp. 435-440 ◽  
Author(s):  
Deborah Tomlinson ◽  
Ute Bartels ◽  
Eleanor Hendershot ◽  
Julie Constantin ◽  
Glynis Wrathall ◽  
...  
Keyword(s):  
Palliative Care ◽  
Review Of The Literature ◽  
Care Research ◽  
Paediatric Palliative Care

Palliative Care for Adolescents and Young Adults

2008 ◽  
pp. 317-330 ◽  
Author(s):  
Daniel Kelly ◽  
Jacqueline Edwards
Keyword(s):  
Palliative Care ◽  
Young Adults ◽  
Adolescents And Young Adults

Place of death of adolescents and young adults with cancer: First study in a French population

2009 ◽  
Vol 7 (1) ◽  
pp. 27-35 ◽  
Author(s):  
Sebastien Montel ◽  
Valerie Laurence ◽  
Laure Copel ◽  
Helene Pacquement ◽  
Cecile Flahault
Keyword(s):  
Palliative Care ◽  
Young Adults ◽  
End Of Life ◽  
Young Patients ◽  
Adolescents And Young Adults ◽  
Place Of Death ◽  
Cancer Center ◽  
Life And Death ◽  
Factors Influencing ◽  
Child's Death

ABSTRACTObjective:To improve the palliative care and more effectively meet the needs of young patients and their families at the end of life, the authors investigated the place of death of adolescents and young adults treated in their institution and identified some of the factors influencing the choice of place of death.Methods:The parents and/or partners of adolescents and young adults (15 to 25 years old) who died at Institut Curie (cancer center) between 2000 and 2003 were contacted. Twenty-one families agreed to participate in the interview between October 2005 and April 2006. Analysis of the interviews comprised a descriptive part and a thematic part.Results:Nineteen out of 21 (90%) families declared that they did not really choose their child's place of death due to lack of time. However, all families said that they preferred the hospital. No family attended a bereavement group after their child's death and only 3 families (14%) consulted a mental health care professional. Thematic analysis showed that representations and beliefs concerning life and death at least partly determined the family's capacity to discuss the place of death with their child.Significance of results:Although progress has been made over recent years in France, there is still considerable room for improvement of palliative care to more effectively meet the needs of young patients and their families at the end of life.

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