Transition Care for Adolescents and Young Adults with Neuromuscular Disease and Chronic Pulmonary Care Needs

Author(s):  
Kathleen S. Irby ◽  
Jeanette P. Brown
2021 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Vanessa Battista ◽  
Deborah J. Baker ◽  
Tara Trimarchi ◽  
Bushra Sabri ◽  
Rita F. D'Aoust ◽  
...  

2021 ◽  
Author(s):  
Arun Ghoshal ◽  
- TPPCR

This TPPCR commentary discusses the 2021 paper by Battista et al, “Advance Directives for Adolescents and Young Adults Living with Neuromuscular Disease: An Integrative Review of the Literature.” published in Journal of Hospice and Palliative Nursing.


Author(s):  
Catherine Benedict ◽  
Zeba Ahmad ◽  
Vicky Lehmann ◽  
Jennifer S. Ford

Adolescents and young adults (AYA) represent a unique patient population with a number of age-specific care needs that should be understood and attended to as a part of comprehensive cancer care. The effects of cancer and its treatment on sexual functioning and fertility are common and ranked as among the most distressing survivorship issues faced by this age group. Difficulties associated with sexuality, body image, and intimacy; facing infertility risk; and coping with loss of fertility are all relevant issues for patients across disease and treatment groups. Further, when cancer occurs during this age range, its sequelae can disrupt key developmental tasks and have long-lasting effects on areas of life connected to and affected by sexual and reproductive health problems. Patients are often not fully informed about the sexual side effects and infertility risks associated with treatment and as a result are typically unprepared for the challenges they experience. This chapter describes the challenges AYAs face related to their sexual and reproductive health after a cancer diagnosis, provides information for screening patients for heightened distress and dysfunction, and reviews treatment strategies to help clinicians prepare to discuss these complex issues with AYA patients and survivors.


Author(s):  
Marc Allroggen ◽  
Peter Rehmann ◽  
Eva Schürch ◽  
Carolyn C. Morf ◽  
Michael Kölch

Abstract.Narcissism is seen as a multidimensional construct that consists of two manifestations: grandiose and vulnerable narcissism. In order to define these two manifestations, their relationship to personality factors has increasingly become of interest. However, so far no studies have considered the relationship between different phenotypes of narcissism and personality factors in adolescents. Method: In a cross-sectional study, we examine a group of adolescents (n = 98; average age 16.77 years; 23.5 % female) with regard to the relationship between Big Five personality factors and pathological narcissism using self-report instruments. This group is compared to a group of young adults (n = 38; average age 19.69 years; 25.6 % female). Results: Grandiose narcissism is primarily related to low Agreeableness and Extraversion, vulnerable narcissism to Neuroticism. We do not find differences between adolescents and young adults concerning the relationship between grandiose and vulnerable narcissism and personality traits. Discussion: Vulnerable and grandiose narcissism can be well differentiated in adolescents, and the pattern does not show substantial differences compared to young adults.


Crisis ◽  
2009 ◽  
Vol 30 (3) ◽  
pp. 115-119 ◽  
Author(s):  
Stephanie De Munck ◽  
Gwendolyn Portzky ◽  
Kees Van Heeringen

Background: Notwithstanding the epidemiological studies indicating an increased risk of attempted suicide among adolescents and young adults, there is a scarcity of international studies that examine long-term epidemiological trends in rates and characteristics of this vulnerable group. Aims: This article describes the results of a 9-year monitoring study of suicide attempts in adolescents and young adults referred to the Accident and Emergency Department of the Gent University Hospital (Belgium). Methods: Between January 1996 and December 2004, trends, sociodemographic, and methodrelated characteristics of suicide attempts were assessed by a psychiatrist on data sheets. Results: Attempted suicide rates declined from 1996 to 2001 and then rose until 2004, but did not exceed previous rates. During the 9 years of monitoring, there was a preponderance of female suicide attempters, except for 1997. Rates of attempts and of fatal suicide were negatively correlated. Significantly more males than females deliberately injured themselves. Younger attempters, especially females, significantly more often poisoned themselves with analgesics. In nearly one in five attempts, alcohol was used in combination with other methods, and alcohol intake was more commonly observed in older suicide attempters. Nearly half of the adolescents were identified as repeaters. Conclusions: The results of this study warrant further monitoring of trends and characteristics of young suicide attempters.


2017 ◽  
Vol 33 (2) ◽  
pp. 123-128 ◽  
Author(s):  
Anne van Alebeek ◽  
Paul T. van der Heijden ◽  
Christel Hessels ◽  
Melissa S.Y. Thong ◽  
Marcel van Aken

Abstract. One of the most common personality disorders among adolescents and young adults is the Borderline Personality Disorder (BPD). The objective of current study was to assess three questionnaires that can reliably screen for BPD in adolescents and young adults (N = 53): the McLean Screening Instrument for BPD (MSI-BPD; Zanarini et al., 2003 ), the Personality Diagnostic Questionnaire 4th edition – BPD scale (PDQ-4 BPD; Hyler, 1994 ), and the SCID-II Patient Questionnaire – BPD scale (SCID-II-PQ BPD). The nine criteria of BPD according to the Diagnostic and Statistical Manual of Mental Disorders-IV (DSM-IV; APA, 1994 ) were measured with the Structural Clinical Interview for DSM-IV Axis II disorders – BPD scale (SCID-II; First, Spitzer, Gibbon, Williams, & Benjamin, 1995 ). Correlations between the questionnaires and the SCID-II were calculated. In addition, the sensitivity and specificity of the questionnaires were tested. All instruments predicted the BPD diagnosis equally well.


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