Camouflaging in Developmental Language Disorder: The views of speech and language therapists and parents

2021 ◽  
Author(s):  
Hannah Hobson ◽  
Annabel Lee

Background: Camouflaging has been the subject of research in conditions which affect communication skills and social functioning such as autism, and has been shown to have negative impacts on mental health outcomes. However, camouflaging has received no systematic study in Developmental Language Disorder (DLD). Aims: This study aimed to explore the topic of camouflaging in DLD, drawing on the experience and expertise of both speech and language therapists and parents of children with DLD. We aimed to capture the nature and appearance of camouflaging in this population, and its potential impact on the children. Methods & procedures: Using a qualitative descriptive design, we interviewed 6 speech and language therapists and 6 parents of children with DLD. We applied inductive thematic analysis to the interview transcripts. Outcomes & Results: We organised our findings into three broad areas: who camouflages and why, the many strategies for camouflaging, and the impacts of camouflaging. It was clear that camouflaging could take a range of forms, although there we identified 8 common presentations. Participants felt that camouflaging delayed recognition of children’s language needs, and had implications for interventions and support. There were also negative impacts on children’s levels of exhaustion, mental health and self-esteem, their personality and friendships, and how staff and those around them perceived children and young people with DLD. Conclusions & Implications: Our study provides a first look at the topic of camouflaging in DLD. Wesuggest how camouflaging could be taken into account when working with children and young people with DLD, especially when involving other colleagues such as teachers or assistants, who may not see the language needs underneath the camouflaging. Further research that characterises camouflaging DLD could lead to the development of tools that help mitigate against the under-detection of children’s language needs.

2020 ◽  
Vol 5 (1) ◽  
pp. 6-11 ◽  
Author(s):  
Laurence B. Leonard

Purpose The current “specific language impairment” and “developmental language disorder” discussion might lead to important changes in how we refer to children with language disorders of unknown origin. The field has seen other changes in terminology. This article reviews many of these changes. Method A literature review of previous clinical labels was conducted, and possible reasons for the changes in labels were identified. Results References to children with significant yet unexplained deficits in language ability have been part of the scientific literature since, at least, the early 1800s. Terms have changed from those with a neurological emphasis to those that do not imply a cause for the language disorder. Diagnostic criteria have become more explicit but have become, at certain points, too narrow to represent the wider range of children with language disorders of unknown origin. Conclusions The field was not well served by the many changes in terminology that have transpired in the past. A new label at this point must be accompanied by strong efforts to recruit its adoption by clinical speech-language pathologists and the general public.


Trials ◽  
2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Sophie D. Bennett ◽  
◽  
J. Helen Cross ◽  
Anna E. Coughtrey ◽  
Isobel Heyman ◽  
...  

Abstract Background Mental health disorders in the context of long-term conditions in children and young people are currently overlooked and undertreated. Evidence-based psychological treatments for common childhood mental health disorders (anxiety, depression and disruptive behaviour disorders) have not been systematically evaluated in young people with epilepsy despite their high prevalence in this population. The aim of this multi-site randomised controlled trial is to determine the clinical and cost-effectiveness of adding a modular psychological intervention to usual care for the mental health disorders in comparison to assessment-enhanced usual care alone. Methods In total, 334 participants aged 3–18 years attending epilepsy services will be screened for mental health disorders with the Strengths and Difficulties Questionnaire (SDQ) and the diagnostic Development and Wellbeing Assessment (DAWBA). Those identified as having a mental health disorder and consenting to the trial will be randomised to either receive up to 22 sessions of the modular psychological intervention (MATCH-ADTC) delivered over the telephone over 6 months by non-mental health professionals in addition to usual care or to assessment-enhanced usual care alone. Outcomes will be measured at baseline, 6 months and 12 months post-randomisation. It is hypothesised that MATCH-ADTC plus usual care will be superior to assessment-enhanced usual care in improving emotional and behavioural symptoms. The primary outcome is the SDQ reported by parents at 6 months. Secondary outcomes include parent-reported mental health measures such as the Revised Children’s Anxiety and Depression Scale, quality of life measures such as the Paediatric Quality of Life Inventory and physical health measures such as the Hague Seizure Severity Scale. Outcome assessors will be blinded to group assignment. Qualitative process evaluations and a health economic evaluation will also be completed. Discussion This trial aims to determine whether a systematic and integrated approach to the identification and treatment of mental health disorders in children and young people with epilepsy is clinically and cost-effective. The findings will contribute to policies and practice with regard to addressing mental health needs in children and young people with other long-term conditions. Trial registration ISRCTN ISRCTN57823197. Registered on 25 February 2019.


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