scholarly journals Patient made Long Covid empowers the patient voice

2021 ◽  
Elisa Perego

Successful, patient-driven advocacy and research in Long Covid is contributing to change our understanding of SARS-CoV-2 infection, viral-onset diseases, and knowledge building in medicine and beyond. Events and epistemic shifts surrounding the rise of Long Covid represent a massive opportunity for empowering the patient voice. Strategies that have proven key to grassroots Long Covid advocacy in our digital era could be further explored and expanded across different patient communities. It is my hope that patient-centred expertise will be further incorporated into the biomedical community. This would contribute to critical changes in medical awareness of chronic diseases and patient care.

2016 ◽  
Vol 3 (4) ◽  
pp. 151-154 ◽  
Mary Kate Springman ◽  
Yalissa Bermeo ◽  
Heather M Limper ◽  
Alison S Tothy

The amount of data available to health-care institutions regarding the patient care experience has grown tremendously. Purposeful approaches to condensing, interpreting, and disseminating these data are becoming necessary to further understand how clinical and operational constructs relate to patient satisfaction with their care, identify areas for improvement, and accurately measure the impact of initiatives designed to improve the patient experience. We set out to develop an analytic reporting tool deeply rooted in the patient voice that would compile patient experience data obtained throughout the medical center.

1973 ◽  
Vol 51 (4) ◽  
pp. 722-730
Barton D. Schmitt

The comprehensive management of chronic diseases can be very taxing on the pediatrician. One of the more difficult aspects is how to locate the pertinent data, both past and current, necessary for making medical decisions. The chronic disease flow sheet provides a system for easier monitoring of the multiple interacting variables present in chronic diseases. General recommendations are offered for designing new flow sheets. Sample flow sheets are included as working models for 19 common chronic conditions. The value of chronic disease flow sheets in patient care, teaching, and clinical research is discussed.

JAMA ◽  
1966 ◽  
Vol 195 (1) ◽  
pp. 36-37 ◽  
J. C. Quint

2014 ◽  
Vol 4 (1) ◽  
pp. 23-29
Constance Hilory Tomberlin

There are a multitude of reasons that a teletinnitus program can be beneficial, not only to the patients, but also within the hospital and audiology department. The ability to use technology for the purpose of tinnitus management allows for improved appointment access for all patients, especially those who live at a distance, has been shown to be more cost effective when the patients travel is otherwise monetarily compensated, and allows for multiple patient's to be seen in the same time slots, allowing for greater access to the clinic for the patients wishing to be seen in-house. There is also the patient's excitement in being part of a new technology-based program. The Gulf Coast Veterans Health Care System (GCVHCS) saw the potential benefits of incorporating a teletinnitus program and began implementation in 2013. There were a few hurdles to work through during the beginning organizational process and the initial execution of the program. Since the establishment of the Teletinnitus program, the GCVHCS has seen an enhancement in patient care, reduction in travel compensation, improvement in clinic utilization, clinic availability, the genuine excitement of the use of a new healthcare media amongst staff and patients, and overall patient satisfaction.

2011 ◽  
Vol 20 (4) ◽  
pp. 121-123
Jeri A. Logemann

Evidence-based practice requires astute clinicians to blend our best clinical judgment with the best available external evidence and the patient's own values and expectations. Sometimes, we value one more than another during clinical decision-making, though it is never wise to do so, and sometimes other factors that we are unaware of produce unanticipated clinical outcomes. Sometimes, we feel very strongly about one clinical method or another, and hopefully that belief is founded in evidence. Some beliefs, however, are not founded in evidence. The sound use of evidence is the best way to navigate the debates within our field of practice.

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