Extending public consultation via the Internet: the experience of the UK Advisory Committee on Genetic Testing electronic consultation

1999 ◽  
Vol 26 (5) ◽  
pp. 361-373 ◽  
Author(s):  
Colin Finney
Keyword(s):  
Genetic Testing ◽  
Advisory Committee ◽  
Public Consultation ◽  
The Internet ◽  
Electronic Consultation ◽  
The Uk

Social Exclusion and Transport in the UK: A Role for Virtual Accessibility in the Alleviation of Mobility-Related Social Exclusion?

2003 ◽  
Vol 32 (3) ◽  
pp. 317-338 ◽  
Author(s):  
SUSAN KENYON ◽  
JACKIE RAFFERTY ◽  
GLENN LYONS
Keyword(s):  
Social Networks ◽  
Social Policy ◽  
Social Exclusion ◽  
Causal Link ◽  
Public Consultation ◽  
The Internet ◽  
Physical Mobility ◽  
Viable Solution ◽  
Virtual Mobility ◽  
The Uk

This paper reports findings from research into the possibility that mobility-related social exclusion could be affected by an increase in access to virtual mobility – access to opportunities, services and social networks, via the Internet – amongst populations that experience exclusion. Transport is starting to be recognised as a key component of social policy, particularly in light of a number of recent studies, which have highlighted the link between transport and social exclusion, suggesting that low access to mobility can reduce the opportunity to participate in society – a finding with which this research concurs. Following the identification of this causal link, the majority of studies suggest that an increase in access to adequate physical mobility can provide a viable solution to mobility-related aspects of social exclusion.This paper questions the likelihood that increased physical mobility can, by itself, provide a fully viable or sustainable solution to mobility-related aspects of social exclusion. Findings from both a desk study and public consultation suggest that virtual mobility is already fulfilling an accessibility role, both substituting for and supplementing physical mobility, working to alleviate some aspects of mobility-related social exclusion in some sectors of society. The paper incorporates an analysis of the barriers to and problems with an increase in virtual mobility in society, and concludes that virtual mobility could be a valuable tool in both social and transport policy.

scholarly journals Cystic fibrosis

2019 ◽  
Vol 13 (1) ◽  
pp. 39-46
Author(s):  
Jen Standen
Keyword(s):  
Cystic Fibrosis ◽  
Genetic Testing ◽  
Neonatal Screening ◽  
Tertiary Care ◽  
Multidisciplinary Care ◽  
Shared Care ◽  
The Uk

In the UK over 10 000 people live with cystic fibrosis (CF), with 1-in-25 people being carriers of the disease. Multidisciplinary care is provided by tertiary care CF centres, with or without local secondary service shared care agreements. There are still, however, several reasons why CF sufferers or their families present to their GPs. This article aims to provide a brief overview of CF and its management. It also gives the information needed to guide patients about genetic testing and neonatal screening for the disease.

scholarly journals Social media and sentiment in bioenergy consultation

2016 ◽  
Vol 10 (1) ◽  
pp. 87-98 ◽  
Author(s):  
Victoria Uren ◽  
Daniel Wright ◽  
James Scott ◽  
Yulan He ◽  
Hassan Saif
Keyword(s):  
Social Media ◽  
New Media ◽  
Sentiment Analysis ◽  
Opinion Mining ◽  
Public Consultation ◽  
Short Paper ◽  
Consultation Process ◽  
Content Type ◽  
The Public ◽  
The Uk

Purpose – This paper aims to address the following challenge: the push to widen participation in public consultation suggests social media as an additional mechanism through which to engage the public. Bioenergy companies need to build their capacity to communicate in these new media and to monitor the attitudes of the public and opposition organizations towards energy development projects. Design/methodology/approach – This short paper outlines the planning issues bioenergy developments face and the main methods of communication used in the public consultation process in the UK. The potential role of social media in communication with stakeholders is identified. The capacity of sentiment analysis to mine opinions from social media is summarised and illustrated using a sample of tweets containing the term “bioenergy”. Findings – Social media have the potential to improve information flows between stakeholders and developers. Sentiment analysis is a viable methodology, which bioenergy companies should be using to measure public opinion in the consultation process. Preliminary analysis shows promising results. Research limitations/implications – Analysis is preliminary and based on a small dataset. It is intended only to illustrate the potential of sentiment analysis and not to draw general conclusions about the bioenergy sector. Social implications – Social media have the potential to open access to the consultation process and help bioenergy companies to make use of waste for energy developments. Originality/value – Opinion mining, though established in marketing and political analysis, is not yet systematically applied as a planning consultation tool. This is a missed opportunity.

scholarly journals The role of the internet in testimony: the case of the ‘Forgotten Australians’

2014 ◽  
Vol 36 (8) ◽  
pp. 1151-1167 ◽  
Author(s):  
Barbara Adkins ◽  
Donna Hancox
Keyword(s):  
Web 2.0 ◽  
Social Inclusion ◽  
Church And State ◽  
The Internet ◽  
Case Examples ◽  
Abuse And Neglect ◽  
The Uk ◽  
Past Experiences ◽  
National Museum Of Australia

This article examines the case of the Forgotten Australians as an opportunity to examine the role of the internet in the presentation of testimony. ‘Forgotten Australians’ are a group who suffered abuse and neglect after being removed from their parents – either in Australia or in the UK – and placed in Church- and State-run institutions in Australia between 1930 and 1970. The campaign by this profoundly marginalized group coincided with the decade in which the opportunities of Web 2.0 were seen to be diffusing throughout different social groups, and were considered a tool for social inclusion. We outline a conceptual framework that positions the role of the internet as an environment in which the difficult relationships between painful past experiences and contemporary injunctions to remember them, are negotiated. We then apply this framework to the analysis of case examples of posts and interaction on websites with web 2.0 functionality: YouTube and the National Museum of Australia. The analysis points to commonalities and differences in the agency of the internet in these two contexts, arguing that in both cases the websites provided support for the development of a testimony-like narrative and the claiming, sharing and acknowledgement of loss.

scholarly journals The policy worker and the professor: understanding how New Zealand policy workers utilise academic research

2015 ◽  
Vol 11 (3) ◽  
Author(s):  
Karl Lofgren ◽  
Dona Cavagnoli
Keyword(s):  
New Zealand ◽  
Advisory Committee ◽  
Academic Research ◽  
Science Advisory ◽  
Everyday Work ◽  
The Uk ◽  
Science Advisory Committee ◽  
Local Research

How do policy workers actually use academic research and advice? While there are several recent studies regarding this question from other Westminster jurisdictions (e.g. Talbot and Talbot, 2014, for the UK; Head et al., 2014, for Australia; Amara, Ouimet and Landry, 2004 and Ouimet et al., 2010, Canada), similar academic studies have been rare in New Zealand. So far, most of the local research in this field has been conducted by the prime minister’s chief science advisor and the Office of the Prime Minister’s Science Advisory Committee, with the particular instrumental purpose of improving the government’s ministries and agencies’ ‘use of evidence in both the formation and evaluation of policy’. However, none of these studies have asked how, and to what extent, policy workers in government are utilising academic research  in their everyday work. 

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