scholarly journals The Landscape of Severe Combined Immunodeficiency Newborn Screening in the United States in 2020: A Review of Screening Methodologies and Targets, Communication Pathways, and Long-Term Follow-Up Practices

2020 ◽  
Vol 11 ◽  
Author(s):  
Ruthanne Sheller ◽  
Jelili Ojodu ◽  
Emma Griffin ◽  
Sari Edelman ◽  
Careema Yusuf ◽  
...  
Keyword(s):  
United States ◽  
Newborn Screening ◽  
Severe Combined Immunodeficiency ◽  
The United States ◽  
Combined Immunodeficiency ◽  
Long Term Follow Up

scholarly journals Long-Term Follow-Up of Legacy Services Offered by Children's Hospitals in the United States

2021 ◽  
Vol 2 (1) ◽  
pp. 218-225
Author(s):  
Terrah Foster Akard ◽  
Samantha Burley ◽  
Maggie C. Root ◽  
Mary S. Dietrich ◽  
Brittany Cowfer ◽  
...  
Keyword(s):  
United States ◽  
The United States ◽  
Children's Hospitals ◽  
Children’S Hospitals ◽  
Long Term Follow Up

scholarly journals Survey of long-term follow-up programs in the United States for survivors of childhood brain tumors

2009 ◽  
Vol 53 (7) ◽  
pp. 1295-1301 ◽  
Author(s):  
Daniel C. Bowers ◽  
Soumya Adhikari ◽  
Yasmin M. El-Khashab ◽  
Lynn Gargan ◽  
Kevin C. Oeffinger
Keyword(s):  
United States ◽  
Brain Tumors ◽  
The United States ◽  
Childhood Brain Tumors ◽  
Long Term Follow Up

scholarly journals Newborn Screening for Severe Combined Immunodeficiency in 11 Screening Programs in the United States

JAMA ◽  
2014 ◽  
Vol 312 (7) ◽  
pp. 729 ◽  
Author(s):  
Antonia Kwan ◽  
Roshini S. Abraham ◽  
Robert Currier ◽  
Amy Brower ◽  
Karen Andruszewski ◽  
...  
Keyword(s):  
United States ◽  
Newborn Screening ◽  
Severe Combined Immunodeficiency ◽  
The United States ◽  
Combined Immunodeficiency ◽  
Screening Programs

Neonatal Extracorporeal Membrane Oxygenation

PEDIATRICS ◽  
1988 ◽  
Vol 82 (2) ◽  
pp. 276-277
Author(s):  
STEVEN M. DONN
Keyword(s):  
United States ◽  
Respiratory Failure ◽  
Extracorporeal Membrane Oxygenation ◽  
The United States ◽  
Membrane Oxygenation ◽  
Widespread Acceptance ◽  
Long Term Follow Up ◽  
Ecmo Therapy

The number of centers providing extracorporeal membrane oxygenation (ECMO) therapy to newborns with intractable respiratory failure has grown dramatically. The ECMO registry now includes 37 institutions in the United States,1 and there may be additional centers offering ECMO but not participating in the registry. To date, more than 1,400 patients have been treated with ECMO with a survival rate exceeding 80%. Widespread acceptance of ECMO therapy has been accomplished despite a paucity of controlled clinical trials2 and without the benefit of long-term follow-up of survivors. Initial fervor about neonatal ECMO has stemmed from the excellent survival statistics cited by most of the earlier investigators.2-4

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