scholarly journals The Effect of Insight Questions Inventory and Visual Support Strategies on Carer-Reported Quality of Life for Children With Cerebral Palsy and Perceptual Visual Dysfunction in Nigeria: A Randomized Controlled Trial

2021 ◽  
Vol 15 ◽  
Author(s):  
Roseline E. Duke ◽  
Torty Chimaeze ◽  
Min J. Kim ◽  
Soter Ameh ◽  
Kathryn Burton ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Standard Therapy ◽  
Improve Quality ◽  
Visual Dysfunction ◽  
Support Strategies ◽  
Children With Cerebral Palsy ◽  
Visual Support ◽  
Pedsql 4.0

Structured clinical history question inventories have previously been used to try and elicit symptoms of perceptual visual dysfunction (PVD) in children with cerebral palsy (CP) in different settings. Earlier studies have suggested that PVD may affect quality of life and specific habilitational strategies, linked to inventory responses, may improve quality of life. Through an RCT, based on a community based sample of children with CP in Cross River State, Nigeria, we aimed to determine if a structured history inventory such as the Insight question inventory (IQI) and associated tailored visual support strategies (IQI VSS) for the management of those children who have PVD, can improve quality of life and is superior to standard therapy. Children with CP were recruited by the key informant method and confirmed by clinical examination. The parent reported IQI was used to identify children with PVD. Primary outcome measures were both Pediatric Quality of Life 4.0 Generic (PedsQL 4.0 Generic) and Pediatric Quality of Life 3.0 Cerebral Palsy (PedsQL 3.0 CP) scale scores. Children were enrolled with a parallel arm allocation to either IQI and IQI VSS or to standard therapy for CP. Children were followed up for 6 weeks with weekly phone call session and the questionnaires repeated at the end of the 6 weeks’ period. Results show that the children in the treatment group (n = 191) showed no significantly different change between baseline and follow up in quality of life (PedsQL 4.0 Generic p = 0.943: and PedsQL-CP 3.0 p = 0.287), compared to the control group. There was suggestion of a better improvement (p = 0.035) in the PedsQL 3.0 CP subscale of speech and communication for the intervention group. The use of IQI VSS for the treatment of PVD in children with CP in this population does not show any superiority over current standard CP management in terms of overall quality of life. However, there was some evidence of improvement in quality of life in the area of speech and communication. Further research and refinement of these management method is required.Clinical Trial Registration:www.ClinicalTrials.gov, identifier [PACTR20161200188] 6396.

A Cross-Sectional Study to Evaluate the Quality of Life of Caregivers for Children with Cerebral Palsy in Saudi Arabia, Jeddah

2021 ◽  
Author(s):  
Alanoud Akram Aman ◽  
Bashaer Baharoon ◽  
Haifa Jamal Idrees ◽  
Ahad Mohammedyusuf Taj ◽  
Bassmah Ali Alzahrani ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Saudi Arabia ◽  
Cerebral Palsy ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Children With Cerebral Palsy

scholarly journals The relationship between quality of life and functioning for children with cerebral palsy

2008 ◽  
Vol 50 (3) ◽  
pp. 199-203 ◽  
Author(s):  
A Shelly ◽  
E Davis ◽  
E Waters ◽  
A Mackinnon ◽  
D Reddihough ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Children With Cerebral Palsy ◽  
The Relationship

scholarly journals Measuring Effects on Pain and Quality of Life after Abobotulinum Toxin A Injections in Children with Cerebral Palsy

Toxins ◽  
2022 ◽  
Vol 14 (1) ◽  
pp. 43
Author(s):  
Christian Wong ◽  
Ian Westphall ◽  
Josephine Sandahl Michelsen
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Goal Attainment ◽  
Clinical Problem ◽  
Pain Reduction ◽  
Toxin A ◽  
Children With Cerebral Palsy ◽  
Goal Attainment Scale ◽  
Daily Pain

Sixty-seven percent of children with cerebral palsy (CCP) experience pain. Pain is closely interrelated to diminished quality of life. Despite this, pain is an overlooked and undertreated clinical problem. The objective of this study was to examine the analgesic effect of a single lower extremity intramuscular injection of Abobotulinum toxin A/Dysport in CCP. Twenty-five CCP with at least moderate pain (r-FLACC ≥ 4) during passive range of motion were included. Localized pain and pain in everyday living were measured by r-FLACC and the Paediatric Pain Profile (PPP), respectively. Functional improvements were evaluated by the goal attainment scale (SMART GAS). Quality of life was evaluated by either the CPCHILD or the CP-QOL. The subjects were evaluated at baseline before injection, then after 4, 12, and 28 weeks. Twenty-two subjects had a significant mean and maximum localized pain reduction (p < 0.001) at four weeks post-treatment in 96% (21/22). The reduction was maintained at 12 (19/19) and 28 weeks (12/15). Daily pain evaluated by the PPP was significantly reduced and functional SMART GAS goals were significantly achieved from 4 to 28 weeks. Quality of life improved significantly at four weeks (CPCHILD). Significant functional gains and localized and daily pain reduction were seen from 4 to 28 weeks.

scholarly journals The Dynamics of the Quality of Life of Mothers Bringing up Children with Cerebral Palsy

2019 ◽  
Vol 8 (4) ◽  
pp. 58-73
Author(s):  
A. Pevneva
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Structural Components ◽  
Core Element ◽  
Dominant Position ◽  
Structural Hierarchy ◽  
Children With Cerebral Palsy ◽  
Core Elements ◽  
Theoretical Issues

In studies of psychological problems of mothers bringing up children with cerebral palsy, the least explored is the problem of the quality of life. The knowledge of the structural and dynamic characteristics of the quality of life may give an answer to a number of methodological and theoretical issues on the change in the quality of life over time, its structural hierarchy and organization, structure sustainability/unsustainability and core elements. The aim of present study was to identify the dynamics of the quality of life of the mother of a child with cerebral palsy. 66 mothers raising a child with cerebral palsy have been surveyed; 48 respondents participated in a repeated measurement. The outcome of the study is the proof that the quality of life is not stable, it depends on the situation and is reproduced in the context of the situation. The dynamics of the quality of life of the mother of a child with cerebral palsy is characterized by difference in indicators of all structural components with the tendency to change positively, constancy of dominant position of physical functioning, structural transformation of the organization, its flexibility, as well as change of the structural core element.

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