scholarly journals The relationship between quality of life and functioning for children with cerebral palsy

2008 ◽  
Vol 50 (3) ◽  
pp. 199-203 ◽  
Author(s):  
A Shelly ◽  
E Davis ◽  
E Waters ◽  
A Mackinnon ◽  
D Reddihough ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Children With Cerebral Palsy ◽  
The Relationship

scholarly journals The Relationship Between Gross Motor Function,Manual Ability, and Cognitive Function With Quality of Life in Children with Cerebral Palsy

2021 ◽  
Author(s):  
Mehdi Rasafiani ◽  
zahra Nobakht ◽  
farin soleimani ◽  
Nazila Akbarfahimi ◽  
Roshanak Vameghi
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Motor Function ◽  
Classification System ◽  
Cognitive Level ◽  
Gross Motor ◽  
Gross Motor Function ◽  
Children With Cerebral Palsy ◽  
The Relationship

Abstract Background:Cerebral palsy (CP) is the most common type of permanent movement and posturedisorder in childrenleading to contractures, deformities, and activity limitations. Quality of life is considered as an outcome variable to evaluate the effectiveness of interventions for children with CP. Therefore, we aimed to examine the relationship between quality of life and gross motor function,manual ability, and cognitivefunction inchildren with CP. Methods:200children with CP aged 4-12 years participated in this study through convenient sampling. Then, their quality of life, gross motor ability, hand function, and cognitive level were assessed using Cerebral Palsy Quality of Life Questionnaire (CPQOL), Gross Motor Function Classification System scale, Manual abilities Classification System Scales and SPARCLE (Study of Participation of Children with Cerebral Palsy Living in Europe) scale, respectively. Results: The results demonstrated that only the functional domain of the CPQOL was significantly correlated withthe manual ability and cognitive level in these children (P=0.001, P=0.001 respectively). Conclusions:A child with CP with poor performance has the potential to report a poorQOL. This needs more evidence for elaboration.

A Cross-Sectional Study to Evaluate the Quality of Life of Caregivers for Children with Cerebral Palsy in Saudi Arabia, Jeddah

2021 ◽  
Author(s):  
Alanoud Akram Aman ◽  
Bashaer Baharoon ◽  
Haifa Jamal Idrees ◽  
Ahad Mohammedyusuf Taj ◽  
Bassmah Ali Alzahrani ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Saudi Arabia ◽  
Cerebral Palsy ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Children With Cerebral Palsy

scholarly journals Measuring Effects on Pain and Quality of Life after Abobotulinum Toxin A Injections in Children with Cerebral Palsy

Toxins ◽  
2022 ◽  
Vol 14 (1) ◽  
pp. 43
Author(s):  
Christian Wong ◽  
Ian Westphall ◽  
Josephine Sandahl Michelsen
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Goal Attainment ◽  
Clinical Problem ◽  
Pain Reduction ◽  
Toxin A ◽  
Children With Cerebral Palsy ◽  
Goal Attainment Scale ◽  
Daily Pain

Sixty-seven percent of children with cerebral palsy (CCP) experience pain. Pain is closely interrelated to diminished quality of life. Despite this, pain is an overlooked and undertreated clinical problem. The objective of this study was to examine the analgesic effect of a single lower extremity intramuscular injection of Abobotulinum toxin A/Dysport in CCP. Twenty-five CCP with at least moderate pain (r-FLACC ≥ 4) during passive range of motion were included. Localized pain and pain in everyday living were measured by r-FLACC and the Paediatric Pain Profile (PPP), respectively. Functional improvements were evaluated by the goal attainment scale (SMART GAS). Quality of life was evaluated by either the CPCHILD or the CP-QOL. The subjects were evaluated at baseline before injection, then after 4, 12, and 28 weeks. Twenty-two subjects had a significant mean and maximum localized pain reduction (p < 0.001) at four weeks post-treatment in 96% (21/22). The reduction was maintained at 12 (19/19) and 28 weeks (12/15). Daily pain evaluated by the PPP was significantly reduced and functional SMART GAS goals were significantly achieved from 4 to 28 weeks. Quality of life improved significantly at four weeks (CPCHILD). Significant functional gains and localized and daily pain reduction were seen from 4 to 28 weeks.

scholarly journals The Dynamics of the Quality of Life of Mothers Bringing up Children with Cerebral Palsy

2019 ◽  
Vol 8 (4) ◽  
pp. 58-73
Author(s):  
A. Pevneva
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Structural Components ◽  
Core Element ◽  
Dominant Position ◽  
Structural Hierarchy ◽  
Children With Cerebral Palsy ◽  
Core Elements ◽  
Theoretical Issues

In studies of psychological problems of mothers bringing up children with cerebral palsy, the least explored is the problem of the quality of life. The knowledge of the structural and dynamic characteristics of the quality of life may give an answer to a number of methodological and theoretical issues on the change in the quality of life over time, its structural hierarchy and organization, structure sustainability/unsustainability and core elements. The aim of present study was to identify the dynamics of the quality of life of the mother of a child with cerebral palsy. 66 mothers raising a child with cerebral palsy have been surveyed; 48 respondents participated in a repeated measurement. The outcome of the study is the proof that the quality of life is not stable, it depends on the situation and is reproduced in the context of the situation. The dynamics of the quality of life of the mother of a child with cerebral palsy is characterized by difference in indicators of all structural components with the tendency to change positively, constancy of dominant position of physical functioning, structural transformation of the organization, its flexibility, as well as change of the structural core element.

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