scholarly journals Relationship between the quality of life of the caregiver and motor function of children with cerebral palsy

2017 ◽  
Vol 6 (1) ◽  
pp. 26-32 ◽  
Author(s):  
Chang-Kyo Yun
Author(s):  
Sonam . ◽  
Mahapatra Arun Kumar ◽  
Rajagopala Shrikrishna

Introduction - Cerebral Palsy (CP) being the leading cause of disability in children is a symptom complex, whichv has worldwide incidence of 2.1/1000 live births, and for India it is 3/1000 live births. In Ayurveda, the cerebral palsy can be correlated with various conditions due to Vata predominance. There is no satisfactory criterion in managing this condition is developed till date. The present study is planned with Abhaya Ghrita and procedure based therapy to provide possible improvement in gross motor function of children with cerebral palsy and thereby improving their quality of life. Material and Methods - A Trial was conducted at a tertiary health care setting to evaluate the clinical efficacy of Ayurvedic Intervention (Abhaya Ghrita and procedure based therapy Udvartana, Sarvanga Abhyanga, Nadi Sweda and Matra Basti). Diagnosed children of cerebral palsy, aged 1-12 years of either gender were selected. The scale gross motor function manual (GMFM) and Cerebral Palsy quality of life (CP-QOL) were used for assessment. Results - Total 20 patients were registered in the present study. 70% patients were below 8 years of age with clear male predominance comprised of 85% of the total sample size. As per the birth history of the patients 15% were preterm, home delivery was present in 20%. 45% and 10% were Low birth weight (LBW) and Very Low birth weight (VLBW) after birth respectively. History of delayed cry was present in 80% cases. 45% required Hospitalization and 65% were subjected to Resuscitation and need of incubator just after birth was present in 25% patients. Discussion - Gross Motor Function scale has shown significant improvement in motor activities like lying and rolling, sitting and total score with pandlt;0.001, on crawling and kneeling and standing with pandlt;0.01 and on walking and running with pandlt;0.02. The CP-QOL has also shown significant results on health and family and friends component. Conclusion - Thus, it may be concluded that the Ayurveda approach is effective in improving the gross motor function and quality of life of children with cerebral palsy.


2019 ◽  
Author(s):  
Juliana MP Starling ◽  
Ana Paula B Gontijo ◽  
Rosana F Sampaio ◽  
Juliana V Mambrini ◽  
Sergio T Fonseca ◽  
...  

Abstract Background Hippotherapy is a complementary therapeutic modality that seeks to promote functional changes in children with cerebral palsy (CP). Knowledge of the direct and indirect changes resulting from this therapy will help identify which groups of children with cerebral palsy can benefit from this type of therapy. The present study aimed to analyze the effects of hippotherapy for children with cerebral palsy with regard to age, topography, and severity using the rehabilitation treatment taxonomy. Methods We conducted a before-after clinical trial. Thirty-one children with CP, stratified by age (4-7 years; 8-12 years), severity (mild, moderate, severe), topography (hemiplegia, diplegia, quadriplegia) and previous time in hippotherapy (3-6 months, over 6 months) underwent individual weekly 30-minute hippotherapy sessions for 6 months in addition to regular rehabilitation. Postural control and balance were evaluated by the Early Clinical Assessment of Balance (ECAB). Secondary outcome measures included the Gross Motor Function Measure (GMFM) and the Cerebral Palsy Quality of Life for Children self-report of the primary caregiver questionnaire. Blinding was used for scoring the outcome measures. Results Postural control and balance and gross motor function showed small improvements after 6 months of intervention, with larger effects in dimensions D and E of the children’s gross motor function. These changes were influenced by the severity and topography of the CP. The taxonomy of rehabilitation treatments structured the interpretation of the hippotherapy effects, identifying the possible mechanism of action (horse’s step and movement demands), active ingredients (activation of muscles involved in postural correction, vestibular and visual stimuli), target outcomes (postural control and balance) and indirect outcomes (gross motor function and quality of life). Conclusion Hippotherapy sessions, in addition to rehabilitation, produced small, but positive changes in motor and psychosocial outcomes in children with CP. The benefits varied from 3 to 7 points in postural control and balance (ECAB) and in all dimensions of the GMFM. The changes in gross motor function were influenced by the type and severity of CP.


Author(s):  
Retno Dwi Rohaniyati ◽  
◽  
Harsono Salimo ◽  
Eti Poncorini Pamungkasari ◽  
◽  
...  

ABSTRACT Background: Children with cerebral palsy (CP) often represent a subgroup within children with special healthcare needs (CSHCN), children with medical complexity, and/or children with disabilities. Poor disability integrating health post access may leads to healthcare disparities and poor quality of life in children with CP. This study aimed to investigate effect of the disability integrating health post on the quality of life of children with cerebral palsy using a path analysis model. Subjects and Method: A cross-sectional study was carried out at 12 inclusion studio in Sukoharjo, Central Java, Indonesia, in October 2019. A sample of 100 children with cerebral palsy aged 4-18 years was selected by fixed disease sampling. The dependent variable was quality of life. The independent variables were gross motor function, parental cope, frequency of visit, and quality of service. Quality of life was measured by the cerebral palsy-quality of life (CP-QoL) questionnaire version parental proxy. Gross motor was measured by gross motor function classification system (GMFCS). The other variables were collected by questionnaire. The data were analyzed by path analysis run on Stata 13. Results: Good quality of life in children with cerebral palsy was directly decreased by high GMFCS score (b= -49.66; 95% CI= -69.58 to -29.75; p= 0.001). Good quality of life was directly increased by strong parental cope (b= 32.51; 95% CI= 9.45 to 55.58; p= 0.006) and good quality of service (b= 33.70; 95% CI= 10.98 to 56.42; p= 0.004). Quality of life was indirectly affected by frequency of visit through parental cope and quality of service. Conclusion: Good quality of life in children with cerebral palsy is directly decreased by high GMFCS score. Good quality of life is directly increased by strong parental cope and good quality of service. Quality of life is indirectly affected by frequency of visit through parental cope and quality of service. Keywords: quality of life, cerebral palsy, disability Correspondence: Retno Dwi Rohaniyati, Masters Program in Public Health, Universitas Sebelas Maret. Jl. Ir. Sutami 36A, Surakarta 57126, Central Java, Indonesia. Email: [email protected]. Mobile: 081546268418. DOI: https://doi.org/10.26911/the7thicph.03.98


2010 ◽  
Vol 18 (2) ◽  
pp. 149-155 ◽  
Author(s):  
Cejane Oliveira Martins Prudente ◽  
Maria Alves Barbosa ◽  
Celmo Celeno Porto

This study aims to analyze the quality of life of mothers of children with cerebral palsy, correlated with the evolution of their children's gross motor function after ten months of rehabilitation. An observational, longitudinal study was carried out in Goiânia, Goiás, Brazil, involving 100 mothers and children with cerebral palsy. The children's motor function was evaluated using the Gross Motor Function Measure (GMFM) and the mothers' quality of life using the Medical Outcomes Study 36-item Short Form Health Survey (SF-36). After ten months of rehabilitation, the children's gross motor function had significantly improved (p<0.001), while the mothers only presented a significant improvement (p<0.001) in the bodily pain domain. The improvement in the motor function of children with cerebral palsy did not influence the changes in the mothers' quality of life.


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