scholarly journals The Lived Experience of Inequalities in the Provision of Treatment for Hepatitis C

2021 ◽  
Vol 6 ◽  
Author(s):  
Sarah Louise Skyrme
Keyword(s):  
Hepatitis C ◽  
Lived Experience ◽  
Energy Levels ◽  
Viral Disease ◽  
Healthcare Provision ◽  
Self Blame ◽  
The United Kingdom ◽  
Healthcare Needs ◽  
Personal Use ◽  
Systemic Nature

The issues of health, illness, stigma and inequalities in healthcare provision, areas that in my role as a social researcher were already of interest and concern, shifted to a different perspective when I was diagnosed with hepatitis C. From this altered position, my body and lifeworld were a nexus point for a range of ongoing challenges around staying as well as possible, and the struggle to get my healthcare needs met. There is a gap between the support provided for some ill and disabled people, and the help that they actually require. This is particularly so for conditions that are not well understood, that have a low public profile, limited funding, and/or are in some way stigmatised due to perceived differences to social norms. Hepatitis C is one such condition, it is a viral disease that is transmitted through blood-to-blood contact and it causes ongoing damage to the liver. Because of the systemic nature of the disease, individuals may struggle to cope with the demands of work and daily living, and their lifeworld and opportunities are frequently limited. It can be challenging for the patient to advocate for themselves due to low energy levels, self-blame for getting ill, and the stigma associated with the condition. The first generation of effective anti-viral drugs emerged from clinical trials in 2013, but in the United Kingdom context, access was only possible for those with advanced liver disease. Therefore, many patients felt compelled to purchase the anti-virals through Buyers Clubs, whereby generic versions of the drugs are imported for personal use at a fraction of the market cost. In this article I draw on my own lived experience of joining a Buyers Club as an example of how risks and benefits are weighed, and to explain the contexts in which decisions are shaped and made.

Is peginterferon alfa-2B plus ribavirin cost-effective for treating chronic hepatitis C in the United Kingdom?

2003 ◽  
Vol 38 ◽  
pp. 181
Author(s):  
J.B. Wong ◽  
W.M. Rosenberg ◽  
M.P. Manns ◽  
J.G. McHutchison ◽  
G.L. Davis ◽  
...  
Keyword(s):  
Chronic Hepatitis ◽  
United Kingdom ◽  
Hepatitis C ◽  
Chronic Hepatitis C ◽  
Cost Effective ◽  
The United Kingdom ◽  
Peginterferon Alfa

scholarly journals Prevalence of HIV/hepatitis B and HIV/hepatitis C coinfection among people of East, South, Central and West African ancestry in the United Kingdom

AIDS ◽  
2021 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Rachel Hung ◽  
Nisha Patel ◽  
Julie Fox ◽  
Catherine Cosgrove ◽  
Sarah L. Pett ◽  
...  
Keyword(s):  
United Kingdom ◽  
Hepatitis C ◽  
Hepatitis B ◽  
African Ancestry ◽  
West African ◽  
The United Kingdom ◽  
South Central ◽  
West African Ancestry

scholarly journals Prevalence of Hepatitis C Virus in the Population of Albania for the Period 2007-2010

2014 ◽  
Vol 2 (3) ◽  
pp. 525-528 ◽  
Author(s):  
Hysaj Vila Brunilda ◽  
Shundi Lila ◽  
Abazaj Erjona ◽  
Bino Silva ◽  
Rexha Tefta
Keyword(s):  
Hepatitis C Virus ◽  
Hepatitis C ◽  
Age Groups ◽  
Viral Disease ◽  
Hcv Infection ◽  
University Hospital ◽  
P Value ◽  
Hcv Rna ◽  
Significant Difference ◽  
Males And Females

BACKGROUND: Hepatitis C is a blood-borne, infectious, viral disease that is caused by a hepatotropic virus called Hepatitis C virus (HCV).AIM: The aim of this study is to determine the prevalence of active HCV infection (HCV–RNA) in the cases that were anti-HCV positive.MATERIAL AND METHODS: Plasma of 301 high-risk for HCV infection consecutive from University Hospital Centre “Mother Theresa” Tirana-Albania, during January 2007 to December 2010 was included in this study. To identify the presence of HCV RNA, the samples were examined by Cobas Amplicor HCV test (qualitative method).RESULTS: From 301 samples analyzed in total, 214 of them resulted positive for the presence of HCV-RNA's, corresponding to a prevalence of 71.1%, with 95% CI interval [65.8 - 75.9] for value of χ2 = 52.7 p value <0.0001. Divide by the sex 56% were males and 44% females, with statistically significant difference between them for value χ2 =4306 p value=0.0380. Among the age groups the highest prevalence was observed in the age groups > 25 years with a significant difference with other age groups for p value <0.001.CONCLUSION: Among tested samples, 71.1 % were confirmed to be positive for HCV –RNA infections. The prevalence of male was highest compared to female. For males and females infected the prevalence was highest in the age group of > 25 years.

Ethical Implications of Electroconvulsive Therapy: A Review

2021 ◽  
pp. EHPP-D-21-00002
Author(s):  
David González-Pando ◽  
Ana González-Menéndez ◽  
Víctor Aparicio-Basauri ◽  
César Luís Sanz de la Garza ◽  
José Esteban Torracchi-Carrasco ◽  
...  
Keyword(s):  
Lived Experience ◽  
Electroconvulsive Therapy ◽  
Medical Literature ◽  
Well Being ◽  
Conclusive Evidence ◽  
Healthcare Provision ◽  
Ethical Implications ◽  
Safe Technique ◽  
Bioethical Debate

This article examines in depth whether electroconvulsive therapy (ECT) satisfies bioethics’ four healthcare provision principles: nonmaleficence, beneficence, justice, and autonomy. Treating patients ethically implies protecting them from damages, working to ensure their well-being, and respecting their decisions once they have been correctly informed. Although most of the medical literature states that ECT is an effective and safe technique, there is no conclusive evidence of long-term effectiveness. The frequent and sometimes persistent side effects such as amnesia that imply a profound disturb of lived experience, or the difficulties regarding the informed consent process, allow us to conclude that the bioethical debate about ECT is not currently closed, and the information provided to patients needs to be revised.

Lithuania

2021 ◽  
pp. 456-472
Author(s):  
Liubovė Murauskienė
Keyword(s):  
Soviet Union ◽  
Healthcare System ◽  
Quality Care ◽  
Healthcare Provision ◽  
Universal System ◽  
Health Politics ◽  
Healthcare Needs ◽  
The Soviet Union ◽  
Out Of Pocket Payments ◽  
Compulsory Health Insurance

This chapter examines health politics and the compulsory health insurance system in Lithuania and traces the development of its healthcare system. Since the country declared independence from the Soviet Union in 1990, Lithuanian health politics have revolved around restructuring and rationalizing the overcapacities of the inherited healthcare system, increasing levels of public finance to those sufficient to meet healthcare needs, and making good on the patient rights implied by a universal system. Despite those efforts, high out-of-pocket payments remain an obstacle to health solidarity, healthcare provision—which is predominantly public—is overly dependent on inpatient care, and public financing measured as a share of GDP remains low. As the chapter outlines, other issues include low levels of satisfaction with and trust in the health system and the persistence of informal payments to ensure quality care.

scholarly journals Making the invisible visible: a place for utilizing activity theory within in situ simulation to drive healthcare organizational development?

2020 ◽  
Vol 5 (1) ◽  
Author(s):  
Gerard J. Gormley ◽  
Anu Kajamaa ◽  
Richard L. Conn ◽  
Sarah O’Hare
Keyword(s):  
Organizational Development ◽  
Activity Theory ◽  
Health Care Systems ◽  
System Level ◽  
Main Body ◽  
Healthcare Provision ◽  
In Situ Simulation ◽  
Healthcare Needs ◽  
Care Systems

Abstract Background The healthcare needs of our societies are continual changing and evolving. In order to meet these needs, healthcare provision has to be dynamic and reactive to provide the highest standards of safe care. Therefore, there is a continual need to generate new evidence and implement it within healthcare contexts. In recent times, in situ simulation has proven to have been an important educational modality to accelerate individuals’ and teams’ skills and adaptability to deliver care in local contexts. However, due to the increasing complexity of healthcare, including in community settings, an expanded theoretical informed view of in situ simulation is needed as a form of education that can drive organizational as well as individual learning. Main body Cultural-historical activity theory (CHAT) provides us with analytical tools to recognize and analyse complex health care systems. Making visible the key elements of an in situ simulation process and their interconnections, CHAT facilitates development of a system-level view of needs of change. Conclusion In this paper, we theorize how CHAT could help guide in situ simulation processes—to generate greater insights beyond the specific simulation context and bring about meaningful transformation of an organizational activity.

Sign in / Sign up

Export Citation Format

Share Document