scholarly journals Lessons in Stories: Why Narrative Medicine Has a Role in Pediatric Palliative Care Training

Children ◽  
2021 ◽  
Vol 8 (5) ◽  
pp. 321
Author(s):  
Natalie Lanocha

Narrative medicine is introduced and explored as a potential tool for developing competency in medical training, including reduction of burnout, sustaining empathy, and allowing for reflective practice. Developing cultural humility, communication skills, ethics, community building, and advocacy are also reviewed as domains that may be bolstered by training in narrative. Applications specific to pediatric palliative care are suggested, along with avenues for further research.

2014 ◽  
Vol 173 (9) ◽  
pp. 1201-1207 ◽  
Author(s):  
Francesca Rusalen ◽  
Anna Ferrante ◽  
Chiara Pò ◽  
Michele Salata ◽  
Caterina Agosto ◽  
...  

2016 ◽  
Vol 39 (12) ◽  
pp. 1624-1638 ◽  
Author(s):  
Niang-Huei Peng ◽  
Cheng-Han Lee ◽  
Min-Chun Lee ◽  
Li-Chi Huang ◽  
Yue-Cune Chang ◽  
...  

A lack of knowledge and skills in pediatric palliative care may create hesitation in caring for children with serious life-threatening conditions and their families. Our research examined the effectiveness of pediatric palliative care training for pediatric clinicians. A pretest–posttest study provided educational training in pediatric palliative care to pediatric clinicians and used a pretest and a posttest to assess outcomes. Fifty pediatric clinicians attended this research with 83.3% response rate. After training, participants reported significantly increased confidence in a variety of areas, including providing emotional support to clinicians, personal knowledge, skills, and communication; ethical and legal concerns; and providing emotional support to dying children and their families. Results showed a significant main effect of training on confidence levels ( p < .000). This suggests that education can effectively boost pediatric clinicians’ confidence regarding providing pediatric palliative care and therefore should regularly be provided to clinicians.


2020 ◽  
pp. bmjspcare-2020-002690
Author(s):  
Gillian Li Gek Phua ◽  
Hui Jin Toh ◽  
Laurence Tan ◽  
James Alvin Yiew Hock Low

ObjectiveIn Singapore, more elderly are living in nursing homes (NHs), with a resultant increase in deaths occurring in NHs. However, palliative care training is limited in Singapore’s core nursing curriculum, and many NHs rely on foreign-trained staff who may not have previous palliative care training. Our study aimed to evaluate whether a needs-based course can improve the palliative care knowledge and attitudes of NH nurses in Singapore.MethodsTwenty-five nurses participated in the study. The intervention was an 8-week palliative care course developed based on needs assessment and led by a multidisciplinary faculty. A 50-item knowledge test was administered at baseline and 0 day and 3 and 6 months postcourse. Semistructured interviews were conducted at 3 months to assess for changes in attitudes and nursing practices.ResultsThe mean knowledge score increased significantly from 31.4 (±4.4) precourse to 35.1 (±5.1) at 3 months. Knowledge scores in end-of-life care increased up to 6 months, and scores for pain and symptom management increased significantly at 3 months. Participants reported a positive change with improved communication skills and increased compassion. There was a lack of opportunities to apply some new knowledge and skills due to regulations and perceived residents’ preferences to engage more local senior staff.ConclusionThe multidisciplinary needs-based palliative care course using various teaching modalities with follow-up knowledge tests helped to increase knowledge and improve communication skills and attitudes of NH nurses towards palliative care. The increase in knowledge and positive change in attitudes was noted to be sustained for at least 3 months postcourse.


2011 ◽  
Vol 29 (5) ◽  
pp. 375-378 ◽  
Author(s):  
Brian S. Carter ◽  
Rebecca Swan

A 1-day training event for pediatric residents with interdisciplinary staff was held, which was modeled after the Initiative for Pediatric Palliative Care (IPPC). Training included relational communication, cultural humility, pain–symptom management, family-centered care, team problem solving, and strategic planning using didactic, small group, and plenary platforms. Two bereaved parents were co-learners and trainers. Twenty-six interdisciplinary staff participated. A positive impact was measured in new knowledge gained, value in collaborative learning with health care professionals and families, and ability to work with professionals outside participants' own unit. Confidence to advocate for improved pediatric palliative care was also noted. The IPPC curriculum is easily adapted for resident education. Incorporating family members as co-learners and teachers is valuable. Advocacy for pediatric palliative care may follow this type of experience.


2018 ◽  
Vol 5 (1) ◽  
Author(s):  
Cristopher MacKinnon ◽  
Stefanie Gingras ◽  
Sonia Skamene ◽  
Deborah Ummel

This presentation describes a novel educational program associated with a Palliative Care Post-Graduate Medical Fellowship embedded within a university teaching hospital. The educational objectives of this program will be presented, as will the pedagogical methods and initial trainee responses to this program. Grounded in both an action-reflection model, as well as the discrimination model of clinical supervision (Bernard & Goodyear, 2009), the objective of this new program is to help physicians develop their clinical skills in understanding and negotiating the complex psychosocial issues associated with advanced cancer care. Secondary objectives include developing increased self-awareness in the domains of death, dying, bereavement and supportive counselling. This program was constructed in parallel with the learning objectives of two Canadian accreditation bodies in Palliative Medicine and was drawn on an established Spiritual Care pedagogical method for tertiary health care settings (Lambert, 2013). Training includes two 90 minute bi-monthly meetings, comprising either a verbatim case report or a reflective practice group. In the former, medical fellows presented a case to a peer-group that centered largely on psychological and not medical issues. Fellows receive feedback on their communication skills, as well as on case conceptualization and treatment planning. Trainees also participate in a reflective practice group to provide an additional opportunity to deepen self-awareness, as well as reflect on how their attitudes, values and assumptions affect the role of a palliative care physician. The presentation will also report initial trainee responses to the program based on exit interviews. This training model can also easily be transferred to the training of various health care disciplines associated with palliative care. Considerations for adjustment of the program to other practice settings will be encouraged from attendees. The syllabus for the program will be provided upon request.                                                                                                                       Pedagogical methodsA didactic approach will be used to outline the basic structure of the program. To illustrate the intersections of theory and practice, the workshop will include presentations of several group case vignettes. Participants will be invited to provide feedback on the potential strengths and limitations of this program. Expected outcomesPeople attending this workshop will obtain practical information concerning a new communication skills training program, as well as techniques and strategies they may wish to bring to their particular practice setting. This training model can also easily be transferred to the training of various health care disciplines associated with palliative care.


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