Conducting Research Related to Treatment of Alzheimer's Disease: Ethical Issues

2003 ◽  
Vol 29 (2) ◽  
pp. 6-9 ◽  
Author(s):  
Mary Sevick ◽  
Terrance McConnell ◽  
Melissa Muender
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Ethical Issues ◽  
Conducting Research

Medical Research and Alzheimer's Disease: A Study of the Hazards of Conducting Research on the Incompetent Patient

1997 ◽  
Vol 2 (4) ◽  
pp. 291-313
Author(s):  
Peter Moodie ◽  
Moira Wright
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Ethical Issues ◽  
Ethics Committees ◽  
Legal Issues ◽  
Pharmaceutical Companies ◽  
Incompetent Patient ◽  
Conducting Research ◽  
Legal And Ethical Issues ◽  
Local Research

Following a review of legal issues concerning the significance of capacity and consent in the context of clinical research involving groups of patients where some may be incompetent, the question is addressed how those involved in this area resolve the problems. Responses from 101 Local Research Ethics Committees, 13 pharmaceutical companies and 10 researchers engaged in work involving patients with Alzheimer's Disease indicate a considerable variation in approaches to the legal and ethical issues, as well as a degree of conflict concerning the assessment of patients' capacity to consent. The conclusion is that recent proposals from the Law Commission in this area need further consideration and elaboration in several respects.

Ethical issues in Alzheimer’s disease: an overview

2012 ◽  
Vol 12 (5) ◽  
pp. 557-567 ◽  
Author(s):  
Antoine Leuzy ◽  
Serge Gauthier
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Ethical Issues

Genetic research into Alzheimer's Disease: a European focus group study on ethical issues

2007 ◽  
Vol 23 (1) ◽  
pp. 11-15 ◽  
Author(s):  
Anco van der Vorm ◽  
Marcel Olde Rikkert ◽  
Myrra Vernooij-Dassen ◽  
Wim Dekkers ◽  
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Focus Group ◽  
Ethical Issues ◽  
Genetic Research ◽  
Focus Group Study

scholarly journals Ethical Guidelines of the Alzheimer Society of Canada

1998 ◽  
Vol 25 (3) ◽  
pp. 242-248 ◽  
Author(s):  
John D. Fisk ◽  
A. Dessa Sadovnick ◽  
Carole A. Cohen ◽  
Serge Gauthier ◽  
John Dossetor ◽  
...  
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
End Of Life Care ◽  
Ethical Issues ◽  
Task Force ◽  
Individual Choice ◽  
Ethical Guidelines ◽  
National Scale ◽  
Participation In Research

ABSTRACT:Alzheimer's disease raises numerous ethical issues which vary and evolve over the course of the illness. In recognition of the need for ongoing discussion of these issues, the Alzheimer Society of Canada established a Task Force on Ethics in 1995. Through a process of “discourse ethics” and consultation on a national scale, the Task Force produced a series of guidelines dealing with the issues of: communicating the diagnosis, driving, respecting individual choice, quality of life, participation in research, genetic testing, the use of restraints, and end-of-life care. This manuscript presents a summary of these guidelines as well as a summary of the ideas on which they were based. It was the hope of the Society that the publication of these guidelines will serve to facilitate discussion of the ethics of care of those with Alzheimer's disease.

scholarly journals Review of the Ethical Issues of a Biomarker-Based Diagnoses in the Early Stage of Alzheimer’s Disease

2018 ◽  
Vol 15 (2) ◽  
pp. 219-230 ◽  
Author(s):  
Gwendolien Vanderschaeghe ◽  
Kris Dierickx ◽  
Rik Vandenberghe
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Ethical Issues ◽  
Early Stage
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