An Integral Analysis of Wellbeing in Adults With Characteristics of High Functioning Autism

2019 ◽  
pp. 287-313
Author(s):  
Janice Marie Beler
Keyword(s):  
Quality Of Life ◽  
High Functioning Autism ◽  
Subjective Evaluation ◽  
Integral Theory ◽  
High Functioning ◽  
Complex Process ◽  
Education Levels ◽  
Personal Wellbeing ◽  
Good Research

Quality of life is generally assessed through objective measures including conditions relating to material living, productive activity, health measures, education levels, and economic standing. In contrast, wellbeing is a complex process involving subjective evaluation of the qualities and experiences that make life good. Research is plentiful with studies exploring autism and quality of life. Less information is available relating to wellbeing and autism, especially from first person perspectives. This research explored how autism characteristics shape understanding and experiences of wellbeing in individuals with characteristics of high functioning autism. The study made use of a multi-method research framework, integral methodological pluralism (IMP), based on Ken Wilber's integral theory, for gathering and understanding knowledge from diverse perspectives, styles, and methodologies. Findings contributed towards a more coherent and inclusive understanding of personal wellbeing in high functioning autism.

Health-Related Quality of Life of Parents of Children With High-Functioning Autism Spectrum Disorders

2009 ◽  
Vol 24 (4) ◽  
pp. 227-239 ◽  
Author(s):  
Gloria K. Lee ◽  
Christopher Lopata ◽  
Martin A. Volker ◽  
Marcus L. Thomeer ◽  
Robert E. Nida ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorders ◽  
High Functioning Autism ◽  
Autism Spectrum ◽  
Health Related Quality ◽  
High Functioning ◽  
Related Quality ◽  
Health Related ◽  
Spectrum Disorders

Stress, Resiliency Factors, Quality of Life Among Caregivers of Children with High Functioning Autism Spectrum Disorders (HFASDs)

2012 ◽  
Vol 18 (1) ◽  
pp. 25-36 ◽  
Author(s):  
Gloria K. Lee ◽  
Christopher Lopata ◽  
Martin A. Volker ◽  
Marcus L. Thomeer ◽  
Jennifer A. Toomey ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Physical Health ◽  
High Functioning Autism ◽  
Self Esteem ◽  
Autism Spectrum ◽  
High Functioning ◽  
Spectrum Disorders ◽  
Age Range

This study investigated the relationships among stress, intrapersonal resiliency factors (self-esteem, locus of control, and optimism) and quality of life [QOL] (physical health and mental health) among caregivers of children with high functioning autism spectrum disorders (HFASDs). Participants consisted of 113 caregivers of children with HFASDs (males = 38.1%, females = 61.9%; age range = 27–62; 93.6% Caucasians) and 47 caregivers of typically developing children (males = 29.8%; females = 70.2%; age range = 30–56; 93.3% Caucasians). They completed a set of self-rating surveys on perceived locus of control, self-esteem, optimism, and QOL. Within-group inferential statistical analyses were applied. For the HFASD group analyses, two simultaneous regression analyses were used to study the independent effects of the three intrapersonal variables on the physical health and mental health QOL of the caregivers. Intrapersonal factors predicted self-reported mental health QOL but not physical health QOL in caregivers of children with HFASDs.

Health-related quality of life in children with high-functioning autism

Autism ◽  
2013 ◽  
Vol 19 (1) ◽  
pp. 14-19 ◽  
Author(s):  
Marie-Christine Potvin ◽  
Laurie Snider ◽  
Patricia A Prelock ◽  
Sharon Wood-Dauphinee ◽  
Eva Kehayia
Keyword(s):  
Quality Of Life ◽  
High Functioning Autism ◽  
Health Related Quality ◽  
High Functioning ◽  
Related Quality ◽  
Health Related

scholarly journals Measuring What Matters for Children: A Systematic Review of Frequently Used Pediatric Generic PRO Instruments

2021 ◽  
Author(s):  
Tasneem Arsiwala ◽  
Nuzhat Afroz ◽  
Kattayoun Kordy ◽  
Christel Naujoks ◽  
Francesco Patalano
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Clinical Studies ◽  
Task Force ◽  
Emotional Health ◽  
Research Practices ◽  
European Collaboration ◽  
Patient Reported ◽  
Good Research

Abstract Objective To provide an assessment of the quality of the most frequently used self-reported, generic patient-reported outcome measures (PROMs) that measure health-related quality of life (HRQoL) in children against the good research practices recommended by ISPOR task force for the pediatric population. Method Literature search was conducted on OvidSP database to identify the generic pediatric PROMs used in published clinical studies. The quality of PROMs used in more than ten clinical studies were descriptively evaluated against the ISPOR task force’s good research practices. Results Six PROMs were evaluated, namely Pediatric Quality-of-Life inventory 4.0 (PedsQL), Child Health Questionnaire (CHQ), KIDSCREEN, KINDL, DISABKIDS and Child Health and Illness Profile (CHIP). All PROMs, except KIDSCREEN, had versions for different age ranges. Domains of physical, social, emotional health and school activities were common across all the instruments, while domains of family activities, parent relations, independence, and self-esteem were not present in all. Children’s input was sought during the development process of PROMs. Likert scales were used in all the instruments, supplemented with faces (smileys) in instruments for children under 8 years. KIDSCREEN and DISABKIDS were developed in a European collaboration project considering the cross-cultural impact during development. Conclusion The comparison of the instruments highlights differences in the versions for different pediatric age groups. None of the PROMs fulfill all the good research practices recommended by the ISPOR task force. Further research is needed to define which age-appropriate domains are important for older children and adolescents.

Social and Psychological Effects of Major Craniofacial Deformity

1992 ◽  
Vol 29 (6) ◽  
pp. 578-584 ◽  
Author(s):  
Thomas Pruzinsky
Keyword(s):  
Quality Of Life ◽  
Subjective Evaluation ◽  
Psychological Effects ◽  
Family Factors ◽  
Facial Deformity ◽  
Social Stressors ◽  
The Social ◽  
The Impact ◽  
Made In

This paper discusses the social and psychological experiences of patients with the most severe forms of craniofacial deformity. The paper concludes that individuals with the most severe forms of craniofacial deformities are at risk for experiencing social and psychological stress and for having their quality of life negatively impacted by the experience of having a facial deformity. Much of the stress experienced by these individuals is the result of the negative social response to their facial deformity. It is emphasized that many patients will not develop psychopathology, because of intervening personality and family factors that may ameliorate these negative social stressors. The excellent progress made in assessing, preventing, and treating the negative psychosocial impact of facial deformity is noted. Finally, in attempting to understand the impact of facial deformity on quality of life, emphasis is placed on the subjective evaluation of these factors by each individual patient and family.

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