Good practice in working with the memories of people with learning disabilities

2018 ◽  
pp. 71-88
Author(s):  
Sarah Housden
BMJ Open ◽  
2021 ◽  
Vol 11 (5) ◽  
pp. e047102
Author(s):  
Gemma Louch ◽  
Abigail Albutt ◽  
Joanna Harlow-Trigg ◽  
Sally Moore ◽  
Kate Smyth ◽  
...  

ObjectivesTo produce a narrative synthesis of published academic and grey literature focusing on patient safety outcomes for people with learning disabilities in an acute hospital setting.DesignScoping review with narrative synthesis.MethodsThe review followed the six stages of the Arksey and O’Malley framework. We searched four research databases from January 2000 to March 2021, in addition to handsearching and backwards searching using terms relating to our eligibility criteria—patient safety and adverse events, learning disability and hospital setting. Following stakeholder input, we searched grey literature databases and specific websites of known organisations until March 2020. Potentially relevant articles and grey literature materials were screened against the eligibility criteria. Findings were extracted and collated in data charting forms.Results45 academic articles and 33 grey literature materials were included, and we organised the findings around six concepts: (1) adverse events, patient safety and quality of care; (2) maternal and infant outcomes; (3) postoperative outcomes; (4) role of family and carers; (5) understanding needs in hospital and (6) supporting initiatives, recommendations and good practice examples. The findings suggest inequalities and inequities for a range of specific patient safety outcomes including adverse events, quality of care, maternal and infant outcomes and postoperative outcomes, in addition to potential protective factors, such as the roles of family and carers and the extent to which health professionals are able to understand the needs of people with learning disabilities.ConclusionPeople with learning disabilities appear to experience poorer patient safety outcomes in hospital. The involvement of family and carers, and understanding and effectively meeting the needs of people with learning disabilities may play a protective role. Promising interventions and examples of good practice exist, however many of these have not been implemented consistently and warrant further robust evaluation.


2017 ◽  
Vol 22 (4) ◽  
pp. 198-205 ◽  
Author(s):  
Sarah Broadhurst ◽  
Keri Landau

Purpose The purpose of this paper is to review whether current learning disability market position statements (MPS) are actually helping to shape the market and explore their implications for people with learning disabilities and their families. Design/methodology/approach Published learning disability MPS were identified via the Institute of Public Care’s MPS database. The quality of the MPS was analysed using a good practice checklist developed by a range of stakeholders. Findings Learning disability MPS are not currently fit for purpose. They demonstrate that local authorities are not fully engaging in their market-shaping duties, as required under The Care Act 2014. It is suggested that this is in part due to the lack of recognition that market shaping is a council-wide responsibility and can only be successful if senior officers across the council (and their partners) acknowledge this and are held accountable. Unless this happens, people with learning disabilities will continue to lack the enablers that support them to lead the lives they choose in their communities. Originality/value This is the first review of the quality and potential impact of learning disability MPS.


2016 ◽  
Vol 19 (8) ◽  
pp. 33-39 ◽  
Author(s):  
Susan Read ◽  
Emee Estacio ◽  
Patsy Corcoran ◽  
Deanna Latham ◽  
Lee Findler

2021 ◽  
Vol 26 (1) ◽  
pp. 28-33
Author(s):  
Gillian MacIntyre ◽  
Ailsa Stewart

Purpose The purpose of this paper is to provide a commentary on Pytlowana and Stenfert Kroese’s article on the experiences of professionals working with parents with learning disabilities by exploring challenges and good practice in this area. Design/methodology/approach Key areas of practice were identified for further exploration by drawing on research studies with parents with learning disabilities. Findings While there is growing evidence of good practice around working with parents with learning disabilities, a number of challenges around communication and relationship-based practice remain. The paper recommends further training and education for those working in this complex area of practice. Originality/value The paper adds value by bringing together evidence from across a number of studies to highlight good practice.


2017 ◽  
Vol 13 (4) ◽  
pp. 441-454 ◽  
Author(s):  
Emma Williams ◽  
Jenny Norman ◽  
Arun Sondhi

Abstract The range and growing number of healthcare requirements being presented within custody environments has been widely debated (Rekrut-Lapa, T. and Lapa, A. (2014). ‘Health Needs of Detainees in Police Custody in England and Wales: Literature Review’. Journal of Forensic and Legal Medicine 69–75). Despite a number of reforms following the recommendations of the Bradley Review (Bradley (2009). Lord Bradley’s Review of People with Mental Health Problems or Learning Disabilities in the Criminal Justice System. Department of Health and Ministry of Justice) and the amendments made to the ACPO guidance on safe detention in 2012, research continues to highlight a lack of consistency to services available to effectively identify the needs of individuals in these arenas. This article is based on part of a wider research project conducted in the Metropolitan Police Service and portrays the voice of the police practitioners working in custody suites. The research found that various notions of risk are central within this setting and that current practices are not sufficient for ensuring the safety of both detainees and officers. The research concludes by offering a proposal for capturing good practice and learning in order to create a more reflective and learning environment in custody suites.


2008 ◽  
Vol 2 (3) ◽  
pp. 18-22 ◽  
Author(s):  
Diana Barron ◽  
Angela Hassiotis

There is now a vast amount of available information, research and policy on the transition of young people with learning disabilities to adulthood. These sources are informed by different professional philosophies and practices, resulting in a heterogeneous mass of data that can be confusing, contradictory and repetitive. In this review we provide an overview of recent publications about services for young people with learning disabilities at the time of transition, with particular focus on those with mental disorders including neurodevelopment disorders and/or challenging behaviour. We discuss their relevance to good practice and the implications for the future development of services for people with learning disabilities in the UK. We argue that, despite the qualitative differences between the experience of transition to adulthood for young people with learning disabilities and that of other young people, the principles of service provision remain the same. Developments in research and clinical practice in this field ought to reflect good practice, as well as embracing new methodologies, and benefit from advances in adolescents without learning disabilities.


2015 ◽  
Vol 6 (3/4) ◽  
pp. 187-194 ◽  
Author(s):  
Helen Walker ◽  
Lesley Murphy ◽  
Vivienne Gration

Purpose – The Forensic Mental Health Services Managed Care Network is described, including the School of Forensic Mental Health. The purpose of this paper is to outline background, it details successes and challenges, focuses on links to clinical practice for Learning Disabilities (LD) service development, describes education and training, multi-disciplinary and multi-agency working and quality improvement. Findings from a small scale brief educational study undertaken in the high-secure service are included as an example of good practice. Design/methodology/approach – Specific features relating to LD are highlighted. Comparisons are made with other managed clinical and managed care networks. Findings – The Forensic Network has evolved over time. It has played a crucial role in shaping Scotland’s approach to Forensic Mental Health and LD. Central to its success is active involvement of key stakeholders, a multi-agency approach and collaborative working practice. Future plans include formal evaluation of impact. Originality/value – This paper offers an interesting perspective from a forensic mental health managed care network; the existing literature is limited.


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