The Training of Genetic Counselors: Origins of a Psychosocial Model

2020 ◽  
pp. 15-24 ◽  
Author(s):  
Joan H. Marks
Keyword(s):  
Genetic Counselors ◽  
Psychosocial Model

Genetic Counselors: An Important Resource for Families following a Young Sudden Cardiac Death

2013 ◽  
Vol 3 (2) ◽  
pp. 183-190 ◽  
Author(s):  
Heather MacLeod ◽  
Erin Demo ◽  
Christina Honeywell ◽  
Julie Rutberg
Keyword(s):  
Sudden Cardiac Death ◽  
Cardiac Death ◽  
Genetic Counselors ◽  
Important Resource

scholarly journals VITAL INVOLVEMENT: A SOURCE OF REALISTIC OPTIMISM FOR OLDER ADULTHOOD

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S407-S408
Author(s):  
Helen Q Kivnick
Keyword(s):  
Psychosocial Development ◽  
Life Stage ◽  
Later Life ◽  
Older Adulthood ◽  
Environmental Engagement ◽  
The World ◽  
Psychosocial Model

Abstract Vital Involvement (VI) was initially proposed (Erikson et al., 1986) as one of three principles around which lifelong healthy psychosocial development takes place. As more recently elaborated, VI has come to describe a person’s meaningful, reciprocal engagement with the world outside the integrating “self.” It is through VI that the person engages in healthy psychosocial development throughout life, including balancing Older Adulthood’s focal tension between Integrity and Despair. This life stage is widely associated with the physical, cognitive, and social losses, and societal constraints that give rise to later-life despair. However, VI functions as a lifelong psychosocial model for the meaningful environmental engagement that supports later life’s wisdom and integrity. Notably few films present an integrated view of older adulthood’s losses along with opportunities. But those few can be a source of optimism to elders for whom VI may not be intuitive, but who can learn its practice.

scholarly journals Contributors to and consequences of burnout among clinical genetic counselors in the United States

2021 ◽  
Author(s):  
Colleen Caleshu ◽  
Helen Kim ◽  
Julia Silver ◽  
Jehannine Austin ◽  
Aad Tibben ◽  
...  
Keyword(s):  
United States ◽  
The United States ◽  
Genetic Counselors ◽  
Clinical Genetic

Genetic counselors, patients', and carers’ views on an Australian clinical genetics service information system

2021 ◽  
Author(s):  
Catherine Speechly ◽  
Rachael Stenhouse ◽  
Yemima Berman ◽  
Kristine Barlow‐Stewart ◽  
Jane Fleming ◽  
...  
Keyword(s):  
Information System ◽  
Genetic Counselors ◽  
Clinical Genetics ◽  
Service Information

scholarly journals Pediatric Oncologists’ Experiences Returning and Incorporating Genomic Sequencing Results into Cancer Care

2021 ◽  
Vol 11 (6) ◽  
pp. 570
Author(s):  
Rebecca L. Hsu ◽  
Amanda M. Gutierrez ◽  
Sophie K. Schellhammer ◽  
Jill O. Robinson ◽  
Sarah Scollon ◽  
...  
Keyword(s):  
Cancer Care ◽  
Cancer Genomics ◽  
Emotional Responses ◽  
Genetic Counselors ◽  
Genomic Sequencing ◽  
Uncertain Information ◽  
Time Points ◽  
Genomic Results

Pediatric oncologists’ perspectives around returning and incorporating tumor and germline genomic sequencing (GS) results into cancer care are not well-described. To inform optimization of cancer genomics communication, we assessed oncologists’ experiences with return of genomic results (ROR), including their preparation/readiness for ROR, collaboration with genetic counselors (GCs) during ROR, and perceived challenges. The BASIC3 study paired pediatric oncologists with GCs to return results to patients’ families. We thematically analyzed 24 interviews with 12 oncologists at two post-ROR time points. Oncologists found pre-ROR meetings with GCs and geneticists essential to interpreting patients’ reports and communicating results to families. Most oncologists took a collaborative ROR approach where they discussed tumor findings and GCs discussed germline findings. Oncologists perceived many roles for GCs during ROR, including answering families’ questions and describing information in lay language. Challenges identified included conveying uncertain information in accessible language, limits of oncologists’ genetics expertise, and navigating families’ emotional responses. Oncologists emphasized how GCs’ and geneticists’ support was essential to ROR, especially for germline findings. GS can be successfully integrated into cancer care, but to account for the GC shortage, alternative ROR models and access to genetics resources will be needed to better support families and avoid burdening oncologists.

scholarly journals Randomized study of remote telehealth genetic services versus usual care in oncology practices without genetic counselors

2021 ◽  
Author(s):  
Cara N. Cacioppo ◽  
Brian L. Egleston ◽  
Dominique Fetzer ◽  
Colleen Burke Sands ◽  
Syeda A. Raza ◽  
...  
Keyword(s):  
Usual Care ◽  
Randomized Study ◽  
Genetic Services ◽  
Genetic Counselors

scholarly journals Evaluation of a Streamlined Oncologist-Led BRCA Mutation Testing and Counseling Model for Patients With Ovarian Cancer

2018 ◽  
Vol 36 (13) ◽  
pp. 1300-1307 ◽  
Author(s):  
Nicoletta Colombo ◽  
Gloria Huang ◽  
Giovanni Scambia ◽  
Eva Chalas ◽  
Sandro Pignata ◽  
...  
Keyword(s):  
United States ◽  
Ovarian Cancer ◽  
Brca Mutation ◽  
The United States ◽  
Turnaround Time ◽  
Genetic Counselors ◽  
Stakeholder Satisfaction ◽  
Use Of Resources ◽  
Counseling Model ◽  
Testing And Counseling

Purpose There is a growing demand for BRCA1/ 2 mutation ( BRCAm) testing in patients with ovarian cancer; however, the limited number of genetic counselors presents a potential barrier. To facilitate more widespread BRCAm testing in ovarian cancer, pretest counseling by the oncology team could shorten testing turnaround times and ease the pressure on genetic counselors. Patients and Methods The prospective, observational Evaluating a Streamlined Onco-genetic BRCA Testing and Counseling Model Among Patients With Ovarian Cancer (ENGAGE) study evaluated a streamlined, oncologist-led BRCAm testing pathway. The analysis population comprised 700 patients with ovarian cancer at 26 sites in the United States, Italy, and Spain. The primary objectives were to assess turnaround time and, using questionnaires, to evaluate stakeholder satisfaction (patients, oncologists, and geneticists or genetic counselors) with the oncologist-led BRCAm testing pathway. Results The median overall turnaround time was 9.1 weeks (range, 0.9 to 37.1 weeks), with median turnaround times in the United States, Italy, and Spain of 4.1 weeks (range, 0.9 to 37.1 weeks), 20.4 weeks (range, 2.9 to 35.4 weeks), and 12.0 weeks (range, 2.0 to 36.7 weeks), respectively. Patient satisfaction with the oncologist-led BRCAm testing pathway was high, with > 99% of patients expressing satisfaction with pre- and post- BRCAm test counseling. Oncologist satisfaction with the BRCAm testing pathway was also high, with > 80% agreeing that the process for performing BRCAm testing worked well and that counseling patients on BRCAm testing was an efficient use of their time. Oncologists expressed higher levels of satisfaction with the BRCAm testing pathway than did geneticists or genetic counselors. Conclusion The results of the ENGAGE study demonstrate that an oncologist-led BRCAm testing process is feasible in ovarian cancer. Development of local BRCAm testing guidelines similar to the one used in this study could allow faster treatment decisions and better use of resources in the management of patients with ovarian cancer.

Educating Genetic Counselors in Australia: Developing an International Perspective

2005 ◽  
Vol 14 (4) ◽  
pp. 283-294 ◽  
Author(s):  
Margaret A. Sahhar ◽  
Mary-Anne Young ◽  
Leslie J. Sheffield ◽  
MaryAnne Aitken
Keyword(s):  
International Perspective ◽  
Genetic Counselors
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