scholarly journals Assessment of proxy quality of life in children with cerebral palsy: a cross-sectional study

2020 ◽  
Vol 95 (4) ◽  
pp. 212-215
Author(s):  
Kanniappan Vadivelan ◽  
Pasupathy Sekar
2021 ◽  
Author(s):  
Alanoud Akram Aman ◽  
Bashaer Baharoon ◽  
Haifa Jamal Idrees ◽  
Ahad Mohammedyusuf Taj ◽  
Bassmah Ali Alzahrani ◽  
...  

Pharmacophore ◽  
2021 ◽  
Vol 12 (5) ◽  
pp. 69-75
Author(s):  
Alanoud Akram Aman ◽  
Bashaer Baharoon ◽  
Haifa Jamal Idrees ◽  
Ahad Mohammedyusuf Taj ◽  
Bassmah Ali Alzahrani ◽  
...  

2018 ◽  
Vol 37 (2) ◽  
pp. 122-128
Author(s):  
Niti Shrestha ◽  
Sabitra Paudel ◽  
Ritesh Thapa

Introduction: Cerebral Palsy (CP) may affect individual’s everyday life and it may have significant impact on quality of life (QOL). The objective of this study was to assess the quality of life of children with Cerebral Palsy in Nepal.Material and Methods: This is a descriptive cross sectional study that involved 42 children between 4 and 12 years of age. The Socio-demographic variables were obtained from interviews and CP related factors were obtained from medical reports. Validated CP-QOL child self-report and parent proxy version of questionnaire was used for data collection. Severity was assessed using Gross Motor Function Classification System (GMFCS), Manual Ability Classification System (MACS), Communication function Classification System (CFCS) and ICD-10 Classification System. Data were summarized using descriptive statistics. Kruskal Wallis and Man Whitney was used to find out association between Cerebral Palsy related factors and Quality of Life.Results: 57.1% (n=24) were between 8 and12 years of age and 42.9% (n=18) were between 4 and 8 years of age. Overall QOL was reported to be fairly good. Both the child and Caregiver gave highest score on “Social wellbeing and acceptance” and “Emotional wellbeing and self-esteem domain” and Lowest Point in “Pain and Impact of disability”. This implies that Psychosocial Quality of Life is good in children with CP. Quality of Life as reported by child was better than Quality of Life reported by Caregiver.Conclusion: Overall QOL is fairly good in children with CP. However, Pain and impact of disability impairs QOL.


2017 ◽  
Vol 38 (7) ◽  
pp. 1193-1203 ◽  
Author(s):  
Necmettin Yıldız ◽  
Yeşim Akkoç ◽  
Murat Ersöz ◽  
Berrin Gündüz ◽  
Belgin Erhan ◽  
...  

2014 ◽  
Vol 13 (4) ◽  
Author(s):  
Viviane Mamede Vasconcelos ◽  
Zuila Maria de Figueirêdo Carvalho ◽  
Lorena Barbosa Ximenes ◽  
Priscila Alencar Mendes Reis ◽  
Mariana Cavalcante Martins

1970 ◽  
Vol 5 (02) ◽  
pp. 16-21
Author(s):  
Sylvia Evelyn Aritonang ◽  
Marietta Shanti Prananta ◽  
Marina A. Moeliono

Introduction : Cerebral Palsy (CP) is the most frequent cause of disability in children, CP has high risk to havelower quality of life (QoL) . There were several factors may have a relationship with quality of life (QoL) ofchildren with CP. The aim is to determine the correlation of QOL of patients with Cerebral Palsy.Methods : this study was a cross-sectional study, 60 subjects, children with CP aged 2–12 y.o divided into threegroups depend on age;2–4, 5–7, and 6–12 years old. The subjects’ QoL was measured using Pediatric ScaleQuality of Life (PedsQoL)Results: Study of 60 children with CP consisted 38 (63,3%) of male, were divided in three groups of age,respectively; 2-4 y.o; 12(20%), 5-7 y.o; 13 (21,7%), 8-12 y.o; 13(21,7%). Father’s and mother’s education levelwere primary school, junior, and senior high school respectively; 18(30%) and 18(30%), 9(15%) and 22(37%),33(55%) and 20 (33%). Frequency of therapy were less than 4 times/week was 31(51,7%), and 4 times/weekwas 29 (28,3%). There were a strong positive correlation between father’s and mother’s education level withPedsQoL; (r=0,67;p=0,00) and (r=0,70;p=0,00) , as well as between the frequency of therapy with PedsQoL;(r=0,69;p=0,00).Conclusion: Higher mother’s and father’s education level have correlation with higher PedsQoL,Keyword: cerebral palsy, pediatric quality of life, parent’s education level, frequency of therapy


2015 ◽  
Vol 96 (12) ◽  
pp. 2176-2183 ◽  
Author(s):  
Christina M. Marciniak ◽  
Jungwha Lee ◽  
Michael Jesselson ◽  
Deborah Gaebler-Spira

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