scholarly journals An innovative web based system for reporting rare diseases in paediatrics

2015 ◽  
Vol 7 (2) ◽  
Author(s):  
Shamir N Mukhi ◽  
Melanie Laffin Thibodeau ◽  
Barbara Szijarto

Surveillance of rare diseases in children is an important aspect of public health. Rare diseases affect thousands of children worldwide. The Canadian Paediatric Surveillance Program (CPSP) has been in existence since 1996, and provides an innovative means to undertake paediatric surveillance and increase awareness of childhood disorders that are high in disability, morbidity, mortality, and economic costs to society, despite their low frequency. Traditionally, CPSP used manual paper-based reporting on a monthly basis, which although had an impressive response rate, it had inherent longer processing times and costs associated with it. The article below describes an innovative web-based system that enables seamless reporting from participants across the country providing a quick, reliable and simple mechanism for the users to submit data while yielding better data quality, timeliness and increased efficiencies. The development of such a system represents a significant advancement in the public health informatics area, building capacity for seamless and rapid data management for national surveillance.

2012 ◽  
Vol 18 (1) ◽  
pp. 66-76 ◽  
Author(s):  
Chiehwen Ed Hsu ◽  
Kim Dunn ◽  
Hsin-Hsuan Juo ◽  
Rick Danko ◽  
Drew Johnson ◽  
...  

2015 ◽  
Vol 24 (01) ◽  
pp. 199-206 ◽  
Author(s):  
B. E. Dixon ◽  
H. Kharrazi ◽  
H. P. Lehmann

Summary Objectives: To survey advances in public health and epidemiology informatics over the past three years. Methods: We conducted a review of English-language research works conducted in the domain of public health informatics (PHI), and published in MEDLINE between January 2012 and December 2014, where information and communication technology (ICT) was a primary subject, or a main component of the study methodology. Selected articles were synthesized using a thematic analysis using the Essential Services of Public Health as a typology. Results: Based on themes that emerged, we organized the advances into a model where applications that support the Essential Services are, in turn, supported by a socio-technical infrastructure that relies on government policies and ethical principles. That infrastructure, in turn, depends upon education and training of the public health workforce, development that creates novel or adapts existing infrastructure, and research that evaluates the success of the infrastructure. Finally, the persistence and growth of infrastructure depends on financial sustainability. Conclusions: Public health informatics is a field that is growing in breadth, depth, and complexity. Several Essential Services have benefited from informatics, notably, “Monitor Health,” “Diagnose & Investigate,” and “Evaluate.” Yet many Essential Services still have not yet benefited from advances such as maturing electronic health record systems, interoperability amongst health information systems, analytics for population health management, use of social media among consumers, and educational certification in clinical informatics. There is much work to be done to further advance the science of PHI as well as its impact on public health practice.


Author(s):  
Geraldine S. Johnson ◽  
Guthrie S. Birkhead ◽  
Rachel Block ◽  
Shannon Kelley ◽  
James Coates ◽  
...  

Author(s):  
Risma Nur Hanifah ◽  
Nendy Akbar Rozaq Rais

PT. PAN BROTHER is a multinational company that produces textiles headquartered in Jakarta, Indonesia. This company was founded in 1969. This company produces various kinds of clothing. Currently, PT. PAN BOTEHR, especially the branch in Boyolali, namely PT. Prima Sejati Sejahtera has conducted attendance by using a finger print machine and a computerized scanner. Employees who wish to take annual leave, maternity leave, official permits, and sick leave are already using a web-based system, by means of employees inputting attendance on a computer provided by the company. However, there are still employees who lack knowledge of science and technology and are still an obstacle to implementing the web-based system. This system can actually be accessed using a smart phone, so that employees do not need to ask attendance staff for help when inputting leave. And to recap the attendance report of HRD employees must also look for employee leave documents that are still in paper files, so that this can slow down the withdrawal of reports on a monthly basis. With this problem, the Company made an innovation by creating an online-based web application for inputting employee leave and the author also conducted research on the application of this web-based system using literature study and field studies in field objects. It is hoped that with this research, the system can be used by all employees to be more effective in inputting absences due to leave and can help alleviate the performance of HRD staff to be more flexible and efficient and reduce absenteeism reporting errors due to employee leave.


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