scholarly journals Family attitudes towards an electronic personal health record in a long term care facility

2015 ◽  
Vol 4 (3) ◽  
pp. 9 ◽  
Author(s):  
Pria M.D. Nippak ◽  
W. W. Isaac ◽  
A. Geertsen ◽  
C. J. Ikeda-Douglas
Keyword(s):  
Long Term Care ◽  
Personal Health Record ◽  
Family Members ◽  
Personal Health ◽  
Health Record ◽  
Care Providers ◽  
Term Care ◽  
Electronic Personal Health Record ◽  
The Family

Objective: To explore the perceptions of family members regarding the importance of an electronic personal health record (EPHR) called MyChart as a healthcare information source to support the care of their loved ones within a long term care (LTC) facility in Toronto, Ontario.Methods: One hundred and fifty eight family members of the patients in six LTC units at the hospital were given a survey to determine their perceptions regarding the utility of the content items within an EPHR that was recently adopted by the LTC institution.Results: The response rate was 41% (n = 65). Many family members (n = 48) felt it was important to have access to their loved one’s EPHR. Respondents ranked test results (38%; n = 25), doctor’s clinical notes (26%; n = 17), medication lists (15%; n = 10) and upcoming appointments (11%; n = 7) as the number one most important content item that they would want to have access to. In addition to the standard content items found within an EPHR, family members requested electronic access to a variety of additional medical content items that are not currently offered within the EPHR, such as status alerts. Overall, they felt that an EPHR would enhance communication between the care team and the family, however 30% of family members identified concerns linked to security and confidentiality of the electronic health record information.Conclusions: Family members felt that an EPHR would be an important tool in the LTC facility to assist with information exchange between care providers and the family. It is important to consider that the additional information requested beyond what is traditionally found in an EPHR as well as the specific communication concerns raised, may be limited to a LTC setting.

The “We Care” Program for Long-Term Care: Providing Family Members with Support following the Death of a Loved One

2013 ◽  
Vol 67 (1-2) ◽  
pp. 221-226
Author(s):  
Tammi Vacha-Haase
Keyword(s):  
Long Term Care ◽  
Family Members ◽  
Care Program ◽  
Positive Outcomes ◽  
Term Care ◽  
Loved One ◽  
The Family ◽  
Additional Support ◽  
Hospice And Palliative Care

Although bereavement programs in hospice and palliative care settings are known to produce positive outcomes for family members after the death of a loved one, currently there is a clear lack of services offered through long-term care (LTC) facilities, where older adults often reside prior to their death. The purpose of the present article is to present an initial bereavement program called We Care that focused on providing additional support for family members who experience a death of a loved one while in a LTC facility. Goals for the program include: 1) providing ongoing contact with the family for 1 year, and 2) offering a bereavement group. The program's model is explained, with highlights of obstacles experienced and suggestions for future programs.

scholarly journals Perspectives and experiences of compassion in long-term care facilities within Canada: a qualitative study of patients, family members and health care providers

2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Lorraine Smith-MacDonald ◽  
Lorraine Venturato ◽  
Paulette Hunter ◽  
Sharon Kaasalainen ◽  
Tamara Sussman ◽  
...  
Keyword(s):  
Health Care ◽  
Qualitative Study ◽  
Health Care Providers ◽  
Long Term Care ◽  
Family Members ◽  
Care Providers ◽  
Term Care ◽  
Care Facilities

scholarly journals 再議台灣長期照護政策的性別正義問題與出路

2009 ◽  
Vol 7 (2) ◽  
pp. 87-113
Author(s):  
Shu Chen LEE
Keyword(s):  
Long Term Care ◽  
Family Members ◽  
Basic Unit ◽  
Gender Justice ◽  
Special Role ◽  
Care Policy ◽  
Term Care ◽  
The Family ◽  
The Government

LANGUAGE NOTE | Document text in Chinese; abstract also in English.面對快速高齡化的社會實況，台灣政府於2007年提出“長期照顧十年計劃”作為長期照護政策的依據。但是，該計劃卻未能具體而微地列明關乎性別正義的政策內容，例如：對於照護勞務的提供與分配尚未建立一套合於“性別主流化”要求的體制與實踐。就台灣長期照護政策與其實踐未能彰顯性別正義的現況，本文首先提出台灣社會從政府到家庭以至個體的性別觀點，尚未具備性別正義之充分實踐的因素。本文再進而探討道德與政治之間，為何必須以及應該如何考量性別正義，是合理且可證成的。女性主義者常批判長期照護是對女性的一種不公義的制度。女性主義者中的關懷倫理學家則嘗試以關懷的角度去說明女性之互相倚待性，並以關懷去疏解此中的性別歧視。但關懷倫理學是不能證立家庭在長期照護中的特殊角色和義務。對照於“性別主流化”的時代要求，本文認為孔孟的仁義思想實能就道德規範根源回應政治原則的合理性問題。儒家以家庭為倫理實踐的起點，家庭成員對長期照護有一自然的承擔義務而不必是性別歧視的。為確立本文觀點，進一步論述儒家“各盡其性分”的原則在道德與政治的面向之間，如何能於政策規範之內涵與實踐上回應政府、家庭以及個體合於性別正義的要求，並且有所殊勝於主張關懷倫理的女性主義之論說。Facing the ever increasing pace of ageing in society, the Taiwanese government proposed a “Ten-year Plan for Long-term Care” in 2007 as the basis of its long-term care policy. However, the plan clearly does not pay attention to the issue of gender justice in Taiwanese society. For example, the supply and distribution of care-giving labor as determined in the plan does not establish a system and practice that would conform to mainstream Taiwanese thought on gender issues. Feminists are keen to criticize that the long-term care of the elderly has been a burden and an indication of gender injustice in treating women. Care ethicists try to indicate the interdependence of family members and propose a fair share of the care burden between the sexes. However, they fail to offer an adequate justification for the share of the burden among family members or a proper account of the special role of the family in long-term care.In this essay I first explore the main factors that explain why the long-term care policy and practice are unable to achieve gender justice from the perspectives of the government, the family and the individual. I then argue that it is morally and politically reasonable to develop policy concerning gender justice. From the Confucian viewpoint, the family is the core of human life and the starting point of individual moral practice and family flourishing. The family is the basic unit that could offer a suitable ground for a proper public policy to enhance the quality of long-term care without gender discrimination. I argue that Confucius and Mencius’ ideas of Jen (benevolence) and Yi (righteousness) provide the moral foundation for a proper response to the demand for gender justice in government policy. To illustrate this point, I elaborate how the Confucian principle of the “utmost fulfillment of each being’s mandate” could be applied to the policy and action of the government, the family and individuals to accomplish gender justice. I conclude that this Confucian principle is better than the feminist care ethic in directing the formulation of a proper long-term care policy.DOWNLOAD HISTORY | This article has been downloaded 250 times in Digital Commons before migrating into this platform.

The Structure of Family Practices in Multifunctional Long-Term Care in a Small Group Home in Japan

2017 ◽  
Vol 30 (1) ◽  
pp. 30-34 ◽  
Author(s):  
Akemi Yamazaki ◽  
Tae Kawahara
Keyword(s):  
Small Group ◽  
Long Term Care ◽  
Group Home ◽  
Family Members ◽  
Care Providers ◽  
Term Care ◽  
Home Support ◽  
Semistructured Interviews ◽  
Family Practices

The aim of the present research was to extract the structure of family practices in multifunctional long-term care in a small group home by focusing on practices offered to families that are not present in conventional in-home support services. Semistructured interviews were conducted with 18 care providers and four users’ family members. Four categories and 16 subcategories were extracted. In multifunctional long-term care in a small group home, staff engaged in the practices of becoming a part of family life, drawing out the nursing care capabilities of family members, and constantly speaking about the future with office staff and family members so that elderly users with dementia could live while being respected as people.

Informal Caregivers As Long-Term Care Providers: Differential Experiences By Gender

2002 ◽  
Author(s):  
Maryam Navaie-Waliser ◽  
Aubrey L. Spriggs ◽  
Penny H. Feldman
Keyword(s):  
Long Term Care ◽  
Informal Caregivers ◽  
Care Providers ◽  
Term Care

scholarly journals The Development and Testing of KNACC: Knowledgeable Nursing Assistants as Creative Caregivers

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 675-675
Author(s):  
Jacqueline Eaton ◽  
Kristin Cloyes ◽  
Brooke Paulsen ◽  
Connie Madden ◽  
Lee Ellington
Keyword(s):  
Focus Groups ◽  
Long Term Care ◽  
Family Members ◽  
Nursing Assistants ◽  
Direct Care ◽  
Term Care ◽  
Memory Care

Abstract Nursing assistants (NAs) provide 80% of direct care in long-term care settings, yet are seldom viewed as skilled professionals. Empowering NAs is linked to improved resident outcomes. In this study, we collaborate with NAs to adapt and test the feasibility and acceptability of arts-based creative caregiving techniques (CCG) for use in long-term care. We held a series of focus groups (n=14) to adapt, refine, and enhance usability. We then evaluated implementation in two waves of testing (n=8). Those working in memory care units were more likely to use all techniques, while those working in rehabilitation were more hesitant to implement. Participants reported using CCG to distract upset residents. Family members were excited about implementation, and NAs not participating wanted to learn CCG. Nursing assistants have the potential to become experts in creative caregiving but may require in-depth training to improve use.

scholarly journals Attitudes Toward Sexual Behaviors in Long-Term Care: Development of an Assessment Tool

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 602-603
Author(s):  
Rachael Spalding ◽  
Emma Katz ◽  
Barry Edelstein
Keyword(s):  
Sexual Behaviors ◽  
Long Term Care ◽  
Assessment Tool ◽  
Qualitative Interviews ◽  
Family Members ◽  
Community Dwelling ◽  
Term Care ◽  
Care Development

Abstract Most older adults living in long-term care settings (LTCs) indicate that expressing their sexuality is important to them (Doll, 2013). Little is known about the general public’s attitudes towards sexual behaviors in LTCs. Attitudes of LTC residents’ family members are particularly important, as family members are most likely to visit residents and to care about their quality of life. Family members’ attitudes could in turn inform facility policies and management. We will present preliminary data from a series of qualitative interviews with community-dwelling adults regarding their attitudes. We will discuss how these data are being used to inform current work on a measure of attitudes toward sexual behavior in LTCs.

“They don't just disappear”: Acknowledging death in the long-term care setting

2012 ◽  
Vol 10 (4) ◽  
pp. 241-247 ◽  
Author(s):  
Janine Maitland ◽  
Kevin Brazil ◽  
Bill James-Abra
Keyword(s):  
Long Term Care ◽  
Emotional Health ◽  
Family Members ◽  
Care Facility ◽  
Term Care ◽  
Long Term Care Facility ◽  
Qualitative Research Study ◽  
Staff Members

AbstractObjective:The purpose of this study was to describe the value of a formal room blessing ritual held within a long-term care facility, from the perspectives of staff, residents, and family members.Method:A qualitative research study involving interviews with staff, residents, and family members was conducted to examine the perceived value of a room blessing ritual.Results:Twenty-four room blessing attendees participated in the study (nine staff, eight residents, and seven family members). Attendees felt that the room blessing provided an opportunity to formally acknowledge the death of the resident and their grief; the majority felt that this was a positive experience and that it provided an element of closure. Staff members and residents expressed their appreciation for the opportunity to connect with family members of the deceased to express their condolences during the ritual. Participants also identified the inclusivity of the ritual (i.e., an open invitation to all staff, residents, and family members) as a positive aspect that served as a reminder that others shared in their grief. Staff members felt that blessing the room for the new resident was an important component of the ritual, helping to bridge the gap between mourning and welcoming a new person. Staff, residents, and family members felt that the room blessing positively reflected the mission and values of the facility. The most highly valued aspect of the ritual for all attendees was the sharing of stories about the deceased to celebrate that person's life.Significance of results:Long-term care facilities need to recognize that formal supports to manage the bereavement needs of staff and residents, such as a room blessing ritual, should be incorporated into their model for managing end-of-life care, given the relationship between the emotional health of staff and the quality of care provided for residents.

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