Quality Of Life At End Of Life: Spirituality And Coping Mechanisms In Terminally Ill Patients

10.5580/c17 ◽  
2005 ◽  
Vol 4 (1) ◽  
Keyword(s):  
Quality Of Life ◽  
End Of Life ◽  
Terminally Ill ◽  
Coping Mechanisms ◽  
Terminally Ill Patients ◽  
And Coping

The Effect of Social Support and Meaning of Life on the Quality-of-Life Care for Terminally Ill Patients

2014 ◽  
Vol 32 (7) ◽  
pp. 767-771 ◽  
Author(s):  
Patricia Dobríková ◽  
Dušana Pčolková ◽  
Layla Khalil AlTurabi ◽  
Daniel J. West
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Terminally Ill ◽  
Meaning Of Life ◽  
Life Care ◽  
Terminally Ill Patients

Medical informatics: Documenting quality of end-of-life oncologic care.

2012 ◽  
Vol 30 (34_suppl) ◽  
pp. 311-311
Author(s):  
Jennifer Carrie Obel ◽  
Diletta Orlando-Brooks ◽  
Chad Konchak ◽  
Abigail Harper ◽  
Michael Marschke ◽  
...  
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Terminally Ill ◽  
Data Retrieval ◽  
Time Frame ◽  
Life Care ◽  
Inappropriate Use ◽  
Terminally Ill Patients ◽  
Use Of Resources

311 Background: NorthShore University HealthSystem has created, via the Electronic Health Record (EHR), quarterly reports to measure quality of care for patients who die of cancer during the reporting time frame. Specific reports for 22 oncology providers and measurements across the population will be derived. Reports are automated with seamless data retrieval based on algorithms designed through the use of discrete, searchable entry fields. Goals include establishing a pre-report baseline, educating oncologists about their terminally ill patients’ outcomes and documenting improvements in end-of-life care through educational initiatives for patients and providers. Methods: To standardize reporting, a cohort of terminally ill patients was created based on QOPI definitions (Denominator). A set of quality end points to describe cancer utilization near the end of life was added as Numerator Values, to establish rates of potential inappropriate use of resources. Results: The OP, oncology EHR was changed to allow ADN/CSO placement that carry over to the IP EHR (hyperlink in patient header). The average time between a patient’s first OP, oncology visit and when the oncologist placed ADN/CSO will be calculated. ADN/CSO reports will be stratified by a patient’s age, race and oncologist. Each separate report will be validated prior to the “go live” phase. Conclusions: These metrics allow routine hypothesis generating queries of end-of-life care to assess compliance with quality measures. [Table: see text]

Comparison of Patient Self-Reported Quality of Life and Health Care Professional-Assessed Symptoms in Terminally ill Patients With Cancer

2020 ◽  
pp. 104990912094415
Author(s):  
Chikako Matsumura ◽  
Nanako Koyama ◽  
Morito Sako ◽  
Hideo Kurosawa ◽  
Takehisa Nomura ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Palliative Care ◽  
Health Care Professionals ◽  
Terminally Ill ◽  
Patients With Cancer ◽  
Terminally Ill Patients ◽  
Patient Reported ◽  
Exact Agreement

Background: Few studies evaluated whether health care professionals accurately assess several symptoms for patients with cancer in palliative care units. We determined the agreement level for several symptoms related to quality of life (QOL) between patient-reported QOL assessment and health care professional-assessed symptoms based on the Support Team Assessment Schedule (STAS). Method: An observational study was performed with terminally ill patients with cancer hospitalized in the palliative care unit between June 2018 and December 2019. Patients and health care professionals independently assessed 7 symptoms at the time of hospitalization and after 1 week. Patients completed the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C15-PAL). In examining the proportions of exact agreement, “exact agreement” referred to the pairs of the scores (QLQ-C15-PAL vs STAS) being (1 vs 0), (2 vs 1), (3 vs 2 or 3), or (4 vs 4). The relationships of physical functioning between QLQ-C15-PAL and Palliative Performance Scale (PPS) were examined. Results: Of 130 patients, approximately 60% had PPS scores from 40 to 60. The highest mean score on QLQ-C15-PAL was for fatigue (63.8). The exact agreement on symptoms between patients and health care professionals ranged from 15.4% (fatigue) to 57.7% (nausea and vomiting). The mean of the transformed QLQ-C15-PAL and proportions of exact agreement were negatively correlated ( R 2 = 0.949, P < .05). The physical function scores in QLQ-C15-PAL for each PPS group showed no differences. Conclusion: We expect patient-reported outcomes including QLQ-C15-PAL to be added to health care professionals’ assessment of serious symptoms such as fatigue in terminally ill patients with cancer.

P.08.12 QUALITY OF LIFE AND COPING MECHANISMS IN PATIENTS WITH CROHN'S DISEASE TREATED WITH BIOLOGICAL THERAPY

2013 ◽  
Vol 45 ◽  
pp. S147
Author(s):  
E. Geccherle ◽  
M. Fortuna ◽  
R. Montanari ◽  
A. Geccherle ◽  
M. Chiaramonte
Keyword(s):  
Quality Of Life ◽  
Crohn’S Disease ◽  
Crohn's Disease ◽  
Biological Therapy ◽  
Coping Mechanisms ◽  
And Coping

scholarly journals Psoriasis and neurodermatitis: comparing psychopathology, quality of life and coping mechanisms

2017 ◽  
Vol 4 (1) ◽  
pp. 238 ◽  
Author(s):  
Vivekkumar Ashok Nagarale ◽  
Suyog Vijay Jaiswal ◽  
Archana Prabhu ◽  
Deoraj Sinha ◽  
Chitra S. Nayak
Keyword(s):  
Quality Of Life ◽  
Coping Styles ◽  
Tertiary Care ◽  
Life Quality ◽  
Coping Mechanisms ◽  
Care Hospital ◽  
Area Of Interest ◽  
Brief Cope ◽  
And Coping

Background: Both psoriasis and neurodermatitis patients report psychological distress and impaired quality of life, but how they cope with it is area of interest. The objective of this study was to study and compare psychopathology, quality of life and coping mechanism in psoriasis and neurodermatitis patients.Methods: 30 cases each of psoriasis and neurodermatitis were assessed at dermatology out-patient department of a tertiary care hospital by using Symptom check list -90-Revised (SCL-90-R), dermatological life quality index (DLQI) and Brief cope scale (BCS).Results: All Patients with neurodermatitis perceived it as a problem and in psoriasis it was 90%.The quality of life (QOL) was affected in both more in neurodermatitis as compared with psoriasis. Neurodermatitis showed significant psychopathology on SCL-90-Rin parameters of interpersonal sensitivity and Psychoticism. Depression, Anxiety, Somatisation, Obsessive-compulsiveness were seen in both groups. Self-blame, religion, positive-reframing were used commonly as coping mechanisms in neurodermatitis while in psoriasis there was acceptance, active coping, planning, and self-distraction, use of emotional and instrumental support, positive-reframing.Conclusions: Quality of life is significantly lower in neurodermatitis. Psychopathologies were significantly high in neurodermatitis. Maladaptive coping styles were used in both groups.

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