scholarly journals Struggles and Coping of Primary Caregivers in Raising Children with Autism Spectrum Disorder

2018 ◽  
Vol 31 (1) ◽  
Author(s):  
William Jo Se M. Billote
Keyword(s):  
Social Support ◽  
Autism Spectrum Disorder ◽  
Problem Solving ◽  
Coping Strategies ◽  
Primary Caregivers ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Raising Children ◽  
Before And After ◽  
And Coping

Primary caregivers experience intense confusion before and after they receive an official diagnosis of their child with Autism Spectrum Disorder (ASD). Although the quest to help their child may alleviate some negative feelings, the stress increases when they realize that there is no cure for ASD. This study employed a descriptive comparative design which aimed to compare and contrast the struggles of 93 primary caregivers and their coping strategies in terms of gender and their relation to the child with ASD in Baguio City, Benguet and Dagupan City, Pangasinan. Inventory questionnaires were utilized to gather data. Using Mean Analysis and ANOVA, the more prevalent struggles experienced by the primary caregivers are Financial and Emotional. Males experienced Financial struggle the more while females experienced Emotional. Blood-related primary caregivers struggle more with Financial and Emotional while non-blood related primary caregivers struggle with Health. With the struggles they encounter, the more prevalent coping strategies utilized by primary caregivers are Problem Solving and Social Support. Males utilized Problem Solving the more while females utilized Social Support and Emotional Expression. Blood-related primary caregivers utilized Problem Solving more while nonblood-related primary caregivers utilized Social Support. Despite the various struggles primary caregivers encounter, they find ways to cope with them.

Impact of personal and social resources on parenting stress in mothers of children with autism spectrum disorder

Autism ◽  
2016 ◽  
Vol 21 (2) ◽  
pp. 155-166 ◽  
Author(s):  
Anat Zaidman-Zait ◽  
Pat Mirenda ◽  
Eric Duku ◽  
Tracy Vaillancourt ◽  
Isabel M Smith ◽  
...  
Keyword(s):  
Social Support ◽  
Autism Spectrum Disorder ◽  
Behavior Problems ◽  
Coping Strategies ◽  
Parenting Stress ◽  
Children With Autism ◽  
Family Dysfunction ◽  
Autism Spectrum ◽  
Social Resources ◽  
Spectrum Disorder

This study examined the longitudinal associations between child behavior problems, coping strategies, social resources, and parenting stress in mothers of young children with autism spectrum disorder. Participants were 283 mothers who completed self- and child-report measures at the time of diagnosis and 2 years later. Hierarchical multiple regression was conducted to predict overall parenting stress. At diagnosis, the final model indicated that high levels of social support and mothers’ use of active engaged coping strategies were associated with lower levels of parenting stress. Conversely, high levels of child externalizing behavior problems, family dysfunction, and mothers’ use of disengaged coping strategies were associated with higher parenting stress. Two years later, high levels of parenting stress at diagnosis predicted increased parenting stress. In addition, high or increasing levels of social support predicted a decrease in parenting stress, while high or increasing levels of family dysfunction predicted increased stress. Finally, increased use of disengaged coping strategies and decreased use of active coping strategies over time predicted higher levels of parenting stress. Results are discussed in terms of their implications for the provision of targeted supports that are designed to enhance the personal and social resources available to mothers of children with autism spectrum disorder.

scholarly journals ESTRÉS Y AFRONTAMIENTO EN FAMILIAS DE HIJOS CON TRASTORNO DE ESPECTRO AUTISTA

2016 ◽  
Vol 4 (1) ◽  
pp. 425 ◽  
Author(s):  
Mª Inmaculada Fernández Andrés ◽  
Gemma Pastor Cerezuela ◽  
Paula Botella Pérez
Keyword(s):  
Autism Spectrum Disorder ◽  
Coping Strategies ◽  
Family Stress ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Stress And Coping ◽  
Spectrum Disorder ◽  
Stress Index ◽  
And Coping ◽  
The Relationship

Abstract.Research shows the relationship between having children with neurodevelopmental disorders and family stress. The Autism Spectrum Disorder or ASD has its own symptoms and a number of additional problems that give it a distinctive profile. These differences are reflected in the levels of stress shown by caregivers of children with the disorder. Coping is a reaction to behavioral and / or psychological stress, aimed at reducing the destructive stress attributes. Theories of stress and coping, as well as more specific models of family accommodation show how coping strategies have an important role in the outcome of adaptation. Consequently, depending on the type of coping strategies used by parents, the stress index will change. This study examines the relationship between family stress and coping strategies in parents of children with Autism Spectrum Disorder.Keywords: Autism Spectrum Disorder, caregivers, stress and coping.Resumen.STRESS AND COPING IN FAMILIES OF CHILDREN DIAGNOSED WITH AUTISM SPECTRUM DISORDERDiversas investigaciones muestran la relación existente entre tener hijos con Trastornos del neurodesarrollo y el estrés familiar. El Trastorno del Espectro Autista o TEA tiene una sintomatología y una serie de problemas añadidos que le confieren un perfil característico que lo diferencia y aleja de otros trastornos similares. Estas diferencias se ponen de manifiesto en los niveles de estrés presentes en los cuidadores de niños con dicho trastorno. El afrontamiento es una reacción al estrés de tipo conductual y/o psicológico dirigido a reducir las cualidades destructivas del estrés. Las teorías de estrés y afrontamiento, así como los modelos más específicos de adaptación familiar muestran cómo las estrategias de afrontamiento tienen un importante papel en el resultado de adaptación. Así pues dependiendo del tipo de estrategias de afrontamiento utilizadas por los padres, el índice de estrés variará. Este estudio analiza la relación del estrés familiar y las estrategias de afrontamiento en los padres de niños con TEA.Palabras clave: Trastorno del Espectro Autista, cuidadores, estrés y estrategias de afrontamiento.

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