Sensitivity of the Communicative Participation Item Bank for Measuring Patient-Reported Outcomes After Treatment of Unilateral Vocal Fold Immobility

2021 ◽  
Author(s):  
Carolyn Baylor ◽  
Albert L. Merati ◽  
Tanya Eadie ◽  
Mara Kapsner-Smith ◽  
Tanya K. Meyer ◽  
...  
Keyword(s):  
Vocal Fold ◽  
Patient Reported Outcomes ◽  
Item Bank ◽  
Patient Reported ◽  
Vocal Fold Immobility ◽  
Communicative Participation

Effect of Unilateral Cordotomy on Perception of Dysphagia

2019 ◽  
Vol 129 (6) ◽  
pp. 536-541
Author(s):  
Melissa Conklin ◽  
Matthew S. Clary ◽  
Elizabeth M. Cuadrado ◽  
Marie E. Jetté
Keyword(s):  
Vocal Fold ◽  
Assessment Tool ◽  
Swallowing Function ◽  
Post Surgery ◽  
Bilateral Vocal Fold Paralysis ◽  
Patient Reported ◽  
Specific Outcome ◽  
Vocal Fold Immobility ◽  
Bilateral Vocal Fold Immobility

Objectives: CO2 laser medial transverse cordotomy is a permanent static procedure performed to achieve adequate functional airway in cases of posterior glottic stenosis and bilateral vocal fold paralysis. Although it is the preferred method to manage long-term bilateral vocal fold immobility, it is widely believed that cordotomy has the potential to cause aspiration. The minimal existing data on the effect surgical enlargement of the glottic airway on swallowing function is heterogeneous. Through investigation of dysphagia after cordotomy, we hope to better understand the influence of glottic function and its role in dysphagia. The Eating Assessment Tool (EAT-10), is a validated dysphagia symptom-specific outcome measure. We hypothesized that EAT-10 scores would not change after CO2 laser cordotomy despite causing glottic insufficiency. Methods: Retrospective review was performed on sequential patients having undergone unilateral CO2 laser cordotomy with complete pre- and postoperative EAT-10 questionnaire data available for evaluation. Results: Fifteen patients were available for analysis; 10 patients underwent primary unilateral medial transverse cordotomy, 5 patients underwent revision cordotomy, and 20 unique procedures were included in the dataset. The median EAT-10 score during the visit prior to surgery was 3.5, whereas the post-surgery median score was 2. Furthermore, the median difference of 0 was statistically non-significant ( P = .91). Conclusion: CO2 laser cordotomy does not contribute to patient-reported dysphagia despite creating glottic incompetence. This suggests vocal fold apposition may play a less significant role in normal swallowing function than widely believed.

scholarly journals Cross-cultural adaptation to Portuguese of a measure of satisfaction with participation of the Patient-Reported Outcomes Measurement Information System (PROMIS(r))

2015 ◽  
Vol 37 (2) ◽  
pp. 94-99
Author(s):  
Maria Cristina Lima e Silva ◽  
Tânia Maria da Silva Mendonça ◽  
Carlos Henrique Martins da Silva ◽  
Rogério de Melo Costa Pinto
Keyword(s):  
Information System ◽  
Cultural Adaptation ◽  
Patient Reported Outcomes ◽  
Item Bank ◽  
Self Report ◽  
Measurement Information ◽  
Outcomes Measurement ◽  
Patient Reported ◽  
Measurement Information System ◽  
The Impact

Background: Mental disorders often impair functioning in several areas of life and lead to unhappiness and suffering that may affect health-related quality of life (HRQoL). Satisfaction with participation is an indicator of HRQoL, and its measurement by patients reflects the impact of disease on their social, emotional and professional life. The Patient-Reported Outcomes Measurement Information System (PROMIS(r)) offers an item bank based on item response theory. This system provides efficient, reliable and valid self-report instruments of satisfaction with participation, a measure that is both scarce and useful in the assessment of mental disorder outcomes.Objective:To cross-culturally adapt the PROMIS(r) satisfaction with participation item bank to Portuguese.Methods:Cross-cultural adaptation followed the Functional Assessment of Chronic Illness Therapy (FACIT) multilingual translation method and was achieved through steps of forward and backward translations, review by bilingual experts (one of them a native of Portugal) and pretesting in a group of 11 adult native Brazilians. Instrument adaptation followed a universal approach to translation, with harmonization across languages.Results: Equivalence of meaning was achieved. As two of the 26 translated items, which asked about leisure and social activities, were not understood by less educated participants, an explanation in parentheses was added to each item, and the problem was solved. All items were appropriate and did not cause embarrassment to the participants.Conclusions: The satisfaction with participation item bank is culturally and linguistically suitable to be used in Brazil. After the pretest is applied in Portugal and in other Portuguese-speaking countries, the same instrument will be ready to be used in multinational studies.

scholarly journals Item bank development, calibration and validation for patient-reported outcomes in female urinary incontinence

2016 ◽  
Vol 25 (7) ◽  
pp. 1645-1654 ◽  
Author(s):  
Vivian W. Sung ◽  
James W. Griffith ◽  
Rebecca G. Rogers ◽  
Christina A. Raker ◽  
Melissa A. Clark
Keyword(s):  
Urinary Incontinence ◽  
Patient Reported Outcomes ◽  
Item Bank ◽  
Female Urinary Incontinence ◽  
Calibration And Validation ◽  
Patient Reported

scholarly journals Evaluation of the Preliminary Validity of Misuse of Prescription Pain Medication Items from the Patient-Reported Outcomes Measurement Information System (PROMIS)®

Pain Medicine ◽  
2019 ◽  
Vol 20 (10) ◽  
pp. 1925-1933 ◽  
Author(s):  
Dokyoung Sophia You ◽  
Jennifer M Hah ◽  
Sophie Collins ◽  
Maisa S Ziadni ◽  
Ben W Domingue ◽  
...  
Keyword(s):  
Information System ◽  
Patient Reported Outcomes ◽  
Pain Medication ◽  
Item Bank ◽  
Community Dwelling ◽  
Pain Clinic ◽  
Measurement Information ◽  
Outcomes Measurement ◽  
Patient Reported ◽  
Measurement Information System

Abstract Objective The National Institutes of Health’s Patient-Reported Outcomes Measurement Information System (PROMIS)® includes an item bank for measuring misuse of prescription pain medication (PROMIS-Rx Misuse). The bank was developed and its validity evaluated in samples of community-dwelling adults and patients in addiction treatment programs. The goal of the current study was to investigate the validity of the item bank among patients with mixed-etiology chronic pain conditions. Method A consecutive sample of 288 patients who presented for initial medical evaluations at a tertiary pain clinic completed questionnaires using the open-source Collaborative Health Outcomes Information Registry. Participants were predominantly middle-aged (M [SD] = 51.6 [15.5] years), female (62.2%), and white/non-Hispanic (51.7%). Validity was evaluated by estimating the association between PROMIS-Rx Misuse scores and scores on other measures and testing the ability of scores to distinguish among risk factor subgroups expected to have different levels of prescription pain medicine misuse (known groups analyses). Results Overall, score associations with other measures were as expected and scores effectively distinguished among patients with and without relevant risk factors. Conclusion The study results supported the preliminary validity of PROMIS-Rx Misuse item bank scores for the assessment of prescription opioid misuse in patients visiting an outpatient pain clinic.

scholarly journals An Editorial on Tailoring Patient-Reported Outcomes to the Individual Patient: Precision PROs

2020 ◽  
Author(s):  
Salene Jones ◽  
Scott D. Ramsey ◽  
Joseph M. Unger
Keyword(s):  
Patient Reported Outcomes ◽  
Clinical Care ◽  
Item Bank ◽  
Future Research ◽  
Minimally Important Difference ◽  
Psychometric Methods ◽  
Patient Reported ◽  
The Individual

Patient-reported outcomes (PROs) have the potential to improve clinical care. One barrier to implementing PROs and maximizing their effectiveness is difficulty individualizing PROs. To address this barrier, we propose a precision PRO methodology. By this approach, patients would first define a minimally important difference for themselves. Patients would then choose which items within a PRO item bank are most important to them; these items would be used to monitor patients’ progress. Patients could be compared to each other – even if they chose different questions – using modern psychometric methods. We propose future research to guide how to determine the simplest and most effective precision PRO methodology.

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