Association of High Burden of End-stage Kidney Disease With Decreased Kidney Transplant Rates With the Updated US Kidney Allocation Policy

JAMA Surgery ◽  
2021 ◽  
Author(s):  
Derek A. DuBay ◽  
Thomas Anthony Morinelli ◽  
Zemin Su ◽  
Patrick Mauldin ◽  
Erin Weeda ◽  
...  
Keyword(s):  
Kidney Disease ◽  
Kidney Transplant ◽  
End Stage Kidney Disease ◽  
Allocation Policy ◽  
High Burden ◽  
Kidney Allocation ◽  
End Stage

Losing Weight; The Experience of Patients With End Stage Kidney Disease: A Qualitative Study

2021 ◽  
Author(s):  
Johanne Freeman ◽  
Hanne Konradsen ◽  
Kristine Lindhard ◽  
Ditte Hansen
Keyword(s):  
Weight Loss ◽  
Kidney Disease ◽  
Kidney Transplant ◽  
Graft Loss ◽  
Phenomenological Approach ◽  
Structured Interviews ◽  
End Stage Kidney Disease ◽  
Factors Affecting ◽  
Sustainable Diet ◽  
End Stage

Abstract Background: Patients with end-stage kidney disease need renal replacement therapy to ensure survival. Kidney transplant is superior to dialysis due to better survival. Patients with obesity cannot be approved for kidney transplant until they lose sufficient weight. Obesity may complicate the surgical procedure, and the risk of graft loss increases with increasing body mass index. Attaining appropriate weight loss is often a hindrance for transplantation for the patient with obesity, and further knowledge of minds, thoughts and attitudes are necessary to better help these patients to lose weight.Methods: Semi-structured interviews with patients who needed to lose weight to be approved to the kidney transplant list at a Danish hospital, were recorded and transcribed. From patients’ responses, we identified descriptive categories using a phenomenological approach. Factors affecting outcomes were derived reflexively from these categories.Results: Ten interviews were analyzed. Experiences of obesity and weight-loss attempts were described across 4 categories; (i) Restrictions and exhaustion, (ii) Hope and hopelessness, (iii) Support and self-discipline, and (iv) Motivation based on severity.Conclusions: Patients with obesity that hinders kidney transplantation need additional help with the dietary restrictions that follow a kidney disease. They need bridging between a kidney-friendly diet and a sustainable diet that will ensure weight-loss. These patients also express how they do not want to be alone in their weight-loss battle. They are looking for help, camaraderie and support to obtain weight-loss.

scholarly journals Outcome and Challenges of Kidney Transplant in Patients with Sickle Cell Disease

2013 ◽  
Vol 2013 ◽  
pp. 1-8 ◽  
Author(s):  
U. H. Okafor ◽  
E. Aneke
Keyword(s):  
Sickle Cell Disease ◽  
Kidney Disease ◽  
Kidney Transplant ◽  
Sickle Cell ◽  
Cell Disease ◽  
End Stage Kidney Disease ◽  
Transplant Kidney ◽  
Short And Long Term ◽  
Sickle Cell Nephropathy ◽  
End Stage

Sickle cell nephropathy is a common presentation in patients with sickle cell disease. End-stage kidney disease is the most severe presentation of sickle cell nephropathy in terms of morbidity and mortality. Sickle cell disease patients with end-stage kidney disease are amenable to renal replacement therapy including kidney transplant. Kidney transplant in these patients has been associated with variable outcome with recent studies reporting short- and long-term outcomes comparable to that of patients with HbAA. Sickle cell disease patients are predisposed to various haematological, cardiorespiratory, and immunological challenges. These challenges have the potential to limit, delay, or prevent kidney transplant in patients with sickle cell disease. There are few reports on the outcome and challenges of kidney transplant in this group of patients. The aim of this review is to highlight the outcome and challenges of kidney transplant in patients with sickle cell disease.

scholarly journals Renal palliative and supportive care in South Africa – a consensus statement

2020 ◽  
Vol 23 (1) ◽  
Author(s):  
Nicola Wearne ◽  
Rene Krause ◽  
Bianca Davidson ◽  
Frank Brennan
Keyword(s):  
South Africa ◽  
Palliative Care ◽  
Kidney Disease ◽  
Supportive Care ◽  
Healthcare Professionals ◽  
Consensus Statement ◽  
Communicable Diseases ◽  
End Stage Kidney Disease ◽  
High Burden ◽  
End Stage

In South Africa, there is a high burden of end-stage kidney disease (ESKD). This is due to the burgeoning epidemics of communicable diseases like HIV/AIDS and non-communicable diseases, particularly hypertension and diabetes mellitus. One of the most difficult situations encountered by healthcare professionals dealing with patients with ESKD in South Africa is the management of a conservative or palliative care pathway for the many patients who have no other option. Patients with advanced chronic kidney disease (CKD) have a high burden of physical and psychosocial symptoms, poor outcomes, and high costs of care. Many patients are managed in primary healthcare settings and either do not have access to palliative care or are not referred appropriately. Renal supportive and palliative care involves a multidisciplinary approach to managing patients with ESKD, to ensure that symptoms are managed optimally and to provide support during advanced disease. It aims to improve quality of life for patients and their families and must be provided alongside curative medical care. This support should include those unable to gain access to life-saving dialysis and it should also provide care for patients where dialysis is not the best option. The aim of this consensus statement is to assist healthcare providers to improve the management of symptoms and biosocial factors of patients with end-stage kidney disease in a South African context. The document was compiled through consensus building among healthcare professionals across South Africa. The professionals that are represented included nephrologists, palliative care physicians, social workers, nurses, paediatricians and hospital managers. We wish to acknowledge the contribution of Dr Frank Brennan, a leading expert in renal palliative and supportive care, who assisted greatly in the compilation of this document.

scholarly journals Psychological Concerns of Children Undergoing Kidney Transplantation During the Pandemic: Single-centre Experience

2021 ◽  
Vol 5 (1) ◽  
pp. e001174
Author(s):  
Alicia Paessler ◽  
Sheila Boyle ◽  
Stephen Marks ◽  
Nicos Kessaris ◽  
Jelena Stojanovic
Keyword(s):  
Kidney Transplantation ◽  
Kidney Disease ◽  
Kidney Transplant ◽  
Children And Families ◽  
Single Centre ◽  
End Stage Kidney Disease ◽  
Single Centre Experience ◽  
End Stage ◽  
Additional Safety

Many paediatric kidney transplant programmes were closed during the COVID-19 pandemic, and due to the vulnerable nature of patients with end-stage kidney disease (ESKD), there were new concerns once these programmes reopened. We surveyed children and families who received a kidney transplant during the pandemic. We found that half of the participants felt scared and/or anxious about receiving a kidney transplant during the pandemic, and 2/8 participants were worried about catching COVID-19 during their recovery. While detailed counselling and additional safety precautions contributed to a good experience, patients and parents still demonstrated fear towards transplantation.

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