Health, functioning, and participation of adolescents and adults with cerebral palsy: A review of outcomes research

2013 ◽  
Vol 18 (1) ◽  
pp. 84-94 ◽  
Author(s):  
Dana Frisch ◽  
Michael E. Msall
BMC Neurology ◽  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Petra Karlsson ◽  
Tom Griffiths ◽  
Michael T. Clarke ◽  
Elegast Monbaliu ◽  
Kate Himmelmann ◽  
...  

Abstract Background Limited research exists to guide clinical decisions about trialling, selecting, implementing and evaluating eye-gaze control technology. This paper reports on the outcomes of a Delphi study that was conducted to build international stakeholder consensus to inform decision making about trialling and implementing eye-gaze control technology with people with cerebral palsy. Methods A three-round online Delphi survey was conducted. In Round 1, 126 stakeholders responded to questions identified through an international stakeholder Advisory Panel and systematic reviews. In Round 2, 63 respondents rated the importance of 200 statements generated by in Round 1. In Round 3, 41 respondents rated the importance of the 105 highest ranked statements retained from Round 2. Results Stakeholders achieved consensus on 94 of the original 200 statements. These statements related to person factors, support networks, the environment, and technical aspects to consider during assessment, trial, implementation and follow-up. Findings reinforced the importance of an individualised approach and that information gathered from the user, their support network and professionals are central when measuring outcomes. Information required to support an application for funding was obtained. Conclusion This Delphi study has identified issues which are unique to eye-gaze control technology and will enhance its implementation with people with cerebral palsy.


2010 ◽  
Vol 90 (11) ◽  
pp. 1660-1672 ◽  
Author(s):  
Doreen J. Bartlett ◽  
Lisa A. Chiarello ◽  
Sarah Westcott McCoy ◽  
Robert J. Palisano ◽  
Peter L. Rosenbaum ◽  
...  

This perspective article provides an example of a study planned using guidelines for comprehensive rehabilitation outcomes research, an approach that is believed to give service providers meaningful evidence to support practice. This line of investigation has been guided by the World Health Organization's International Classification of Functioning, Disability and Health. The short title of a study under way is Move & PLAY (Movement and Participation in Life Activities of Young Children). The article briefly describes the conceptual model, provides guidelines on how indicators and measures are selected, alludes to the details of selected measures, and describes processes of preparing for data collection, including obtaining ethics approval, preparing data collection booklets, training assessors and interviewers, and sampling. The aim of this investigation is to gain a better understanding of the multiple child, family, and service factors associated with changes in mobility, self-care, and play of preschool children with cerebral palsy as a result of using this research method. Comprehensive rehabilitation outcomes research holds promise in providing evidence that supports the complexities of planning rehabilitation services with clients with chronic conditions, such as children with cerebral palsy.


2019 ◽  
Vol 68 ◽  
pp. 101-104 ◽  
Author(s):  
Tomoyuki Ueno ◽  
Hiroki Watanabe ◽  
Hiroaki Kawamoto ◽  
Yukiyo Shimizu ◽  
Ayumu Endo ◽  
...  

2001 ◽  
Vol 82 (2) ◽  
pp. 155-161 ◽  
Author(s):  
Jay M. Meythaler ◽  
Sharon Guin-Renfroe ◽  
Charles Law ◽  
Paul Grabb ◽  
Mark N. Hadley

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