Secondary Conditions of the Musculoskeletal System in Adolescents and Adults with Cerebral Palsy

2002 ◽  
Vol 21 (4) ◽  
pp. 49-68 ◽  
Author(s):  
Carrie Giller Gajdosik ◽  
Nancy Cicirello
BMC Neurology ◽  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Petra Karlsson ◽  
Tom Griffiths ◽  
Michael T. Clarke ◽  
Elegast Monbaliu ◽  
Kate Himmelmann ◽  
...  

Abstract Background Limited research exists to guide clinical decisions about trialling, selecting, implementing and evaluating eye-gaze control technology. This paper reports on the outcomes of a Delphi study that was conducted to build international stakeholder consensus to inform decision making about trialling and implementing eye-gaze control technology with people with cerebral palsy. Methods A three-round online Delphi survey was conducted. In Round 1, 126 stakeholders responded to questions identified through an international stakeholder Advisory Panel and systematic reviews. In Round 2, 63 respondents rated the importance of 200 statements generated by in Round 1. In Round 3, 41 respondents rated the importance of the 105 highest ranked statements retained from Round 2. Results Stakeholders achieved consensus on 94 of the original 200 statements. These statements related to person factors, support networks, the environment, and technical aspects to consider during assessment, trial, implementation and follow-up. Findings reinforced the importance of an individualised approach and that information gathered from the user, their support network and professionals are central when measuring outcomes. Information required to support an application for funding was obtained. Conclusion This Delphi study has identified issues which are unique to eye-gaze control technology and will enhance its implementation with people with cerebral palsy.


2019 ◽  
Vol 68 ◽  
pp. 101-104 ◽  
Author(s):  
Tomoyuki Ueno ◽  
Hiroki Watanabe ◽  
Hiroaki Kawamoto ◽  
Yukiyo Shimizu ◽  
Ayumu Endo ◽  
...  

2001 ◽  
Vol 82 (2) ◽  
pp. 155-161 ◽  
Author(s):  
Jay M. Meythaler ◽  
Sharon Guin-Renfroe ◽  
Charles Law ◽  
Paul Grabb ◽  
Mark N. Hadley

2009 ◽  
Vol 114 (6) ◽  
pp. 437-448 ◽  
Author(s):  
Stella Koritsas ◽  
Teresa Iacono

Abstract The effects of secondary conditions across adults with autism, Down syndrome, and cerebral palsy were explored in terms of overall limitation in life participation and independence, changes over time, and the degree and nature of limitation in specific secondary conditions. Information was obtained for 35 adults with autism, 49 with Down syndrome, and 29 with cerebral palsy (N  =  113). Caregivers completed a questionnaire exploring secondary conditions on two occasions. Participants with cerebral palsy experienced the greatest overall limitations of the three groups. This finding is due to several secondary conditions. There were no changes in limitation scores over time. Implications related to health care for these groups are discussed.


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