Children's information needs of a patient engagement system in a hospital room: Insights from usability testing in a simulation laboratory

2013 ◽  
Vol 50 (1) ◽  
pp. 1-5 ◽  
Author(s):  
Kenneth Haggerty ◽  
Borchuluun Yadamsuren ◽  
Francis Kibaru ◽  
Josipa Basic
Keyword(s):  
Patient Engagement ◽  
Information Needs ◽  
Usability Testing ◽  
Hospital Room ◽  
Simulation Laboratory ◽  
Engagement System

Build a Quality Website

2021 ◽  
pp. 89-104
Author(s):  
Dennis Meredith
Keyword(s):  
Information Needs ◽  
Usability Testing ◽  
Design Principles ◽  
Reading Practices ◽  
Plan Design ◽  
A Site ◽  
User Friendly

The first step to a quality website is to plan design, layout, and content with an understanding of audiences’ information needs. User-friendly design principles are also important to a website’s effectiveness. Web writing needs to be more concise than other types of writing, taking into account the reading practices of visitors to websites. Including a broad range of content makes the site a go-to resource and increases visibility. Usability testing once a site is developed also offers important insights that can guide improvements. Keeping a site fresh with new content and marketing the site also enhance its value.

scholarly journals An Evaluation of Parents’ Experiences of Patient Engagement in Research to Develop a Digital Knowledge Translation Tool: Protocol for a Multi-Method Study (Preprint)

2020 ◽  
Author(s):  
Alison P Thompson ◽  
Shannon E MacDonald ◽  
Eytan Wine ◽  
Shannon D Scott
Keyword(s):  
Knowledge Translation ◽  
Patient Engagement ◽  
Information Needs ◽  
Research Collaboration ◽  
Research Evaluation ◽  
Functional Constipation ◽  
Patient Questionnaire ◽  
Digital Knowledge ◽  
Patient Engagement In Research ◽  
Parents Experiences

BACKGROUND The last decade has seen increasing calls for patient and public involvement in health-related research due to an ideological shift toward more equitable methods of knowledge development and an effort to increase the usability and relevance of knowledge by improving outcomes in clinical practice. Patient engagement includes simply informing patients to offering complete decision-making autonomy to individuals, groups, communities, caregivers, friends, and families who have personal experience and knowledge of a health issue. Despite the use of patient engagement methods in research, evaluation has lagged, resulting in a knowledge gap that makes it difficult to foster capacity and sustainability for patients and researchers alike since little is known about how effective patient collaborations in research are built, maintained, or improved. This study centers on pediatric functional constipation, a common condition that affects children and families. Since parents play a pivotal role in treatment, they are an optimal group to engage in improving the resources and support available to them. OBJECTIVE This study aims to use patient-engagement methods to establish a research collaboration with parents to cocreate a digital knowledge translation tool for parents caring for a child with functional constipation and formally evaluate the patient engagement processes within this project to build the science of patient engagement in research. METHODS Members of the parent collaborator group will be recruited from previous participants who expressed interest in the development of a digital knowledge translation tool. The group will collaborate with the research team to create a tool to address patients’ support and information needs when caring for a child with functional constipation. The parent collaborator group will then be evaluated in a multimethod study design. Data will be digitally and anonymously collected from all members of the parent collaborator group, using the validated Public and Patient Engagement Evaluation Tool (PPEET) patient questionnaire. Descriptive statistics will be used to report group characteristics and question responses. Qualitative analysis will be used to understand open-ended question responses. Specifically, directed content analysis will be used to assess themes of the Patient Engagement in Research (PEIR) Framework with a combination of deductive and inductive analyses. Findings will be integrated into the discussion if there are sufficient commonalities and inter-relationships. The final manuscript will include reporting of each element as described by the Good Reporting of a Mixed Methods Study criteria. RESULTS Recruitment is planned for June 2020. Data collection for the evaluation of patient engagement processes will occur upon completion of the digital knowledge translation tool. The results of this study are expected to be published by the end of 2020. CONCLUSIONS This study will provide valuable information about parents’ experiences participating in child-health research and is a fundamental step in building the science of patient engagement in research. INTERNATIONAL REGISTERED REPORT PRR1-10.2196/19108

scholarly journals An Evaluation of Parents’ Experiences of Patient Engagement in Research to Develop a Digital Knowledge Translation Tool: Protocol for a Multi-Method Study

10.2196/19108 ◽  
2020 ◽  
Vol 9 (8) ◽  
pp. e19108
Author(s):  
Alison P Thompson ◽  
Shannon E MacDonald ◽  
Eytan Wine ◽  
Shannon D Scott
Keyword(s):  
Knowledge Translation ◽  
Patient Engagement ◽  
Information Needs ◽  
Research Collaboration ◽  
Research Evaluation ◽  
Functional Constipation ◽  
Patient Questionnaire ◽  
Digital Knowledge ◽  
Patient Engagement In Research ◽  
Parents Experiences

Background The last decade has seen increasing calls for patient and public involvement in health-related research due to an ideological shift toward more equitable methods of knowledge development and an effort to increase the usability and relevance of knowledge by improving outcomes in clinical practice. Patient engagement includes simply informing patients to offering complete decision-making autonomy to individuals, groups, communities, caregivers, friends, and families who have personal experience and knowledge of a health issue. Despite the use of patient engagement methods in research, evaluation has lagged, resulting in a knowledge gap that makes it difficult to foster capacity and sustainability for patients and researchers alike since little is known about how effective patient collaborations in research are built, maintained, or improved. This study centers on pediatric functional constipation, a common condition that affects children and families. Since parents play a pivotal role in treatment, they are an optimal group to engage in improving the resources and support available to them. Objective This study aims to use patient-engagement methods to establish a research collaboration with parents to cocreate a digital knowledge translation tool for parents caring for a child with functional constipation and formally evaluate the patient engagement processes within this project to build the science of patient engagement in research. Methods Members of the parent collaborator group will be recruited from previous participants who expressed interest in the development of a digital knowledge translation tool. The group will collaborate with the research team to create a tool to address patients’ support and information needs when caring for a child with functional constipation. The parent collaborator group will then be evaluated in a multimethod study design. Data will be digitally and anonymously collected from all members of the parent collaborator group, using the validated Public and Patient Engagement Evaluation Tool (PPEET) patient questionnaire. Descriptive statistics will be used to report group characteristics and question responses. Qualitative analysis will be used to understand open-ended question responses. Specifically, directed content analysis will be used to assess themes of the Patient Engagement in Research (PEIR) Framework with a combination of deductive and inductive analyses. Findings will be integrated into the discussion if there are sufficient commonalities and inter-relationships. The final manuscript will include reporting of each element as described by the Good Reporting of a Mixed Methods Study criteria. Results Recruitment is planned for June 2020. Data collection for the evaluation of patient engagement processes will occur upon completion of the digital knowledge translation tool. The results of this study are expected to be published by the end of 2020. Conclusions This study will provide valuable information about parents’ experiences participating in child-health research and is a fundamental step in building the science of patient engagement in research. International Registered Report Identifier (IRRID) PRR1-10.2196/19108

scholarly journals The development and usability testing of two digital knowledge translation tools for parents of children with urinary tract infections

2021 ◽  
Author(s):  
Anne Le ◽  
Lisa Hartling ◽  
Shannon D Scott
Keyword(s):  
Urinary Tract ◽  
Knowledge Translation ◽  
Urinary Tract Infections ◽  
Information Needs ◽  
Usability Testing ◽  
Signs And Symptoms ◽  
Common Source ◽  
Common Information ◽  
Translation Tools ◽  
Tract Infections

Urinary tract infections (UTI) are a common source of acute illness for infants and children. Approximately 7-8% of girls and 2% of boys will experience a UTI before they are 8 years old. UTIs may be difficult to identify and treat as symptoms in children are different from expected adult symptoms. A previously conducted systematic review identified four common information needs expressed by parents. More specifically, the research identified that parents had difficulty recognizing signs and symptoms of UTIs, felt disappointed by health care provider's responses, needed timely and relevant information, and feared the unknown due to lack of UTI knowledge. This demonstrates that more effective knowledge translation tools are needed to satisfy parent information needs. The purpose of this research was to work with parents to develop and test the usability of an interactive infographic and video about UTIs in children. Prototypes were evaluated by parents through usability testing in two Alberta emergency department waiting rooms. Results were positive and overall, the tools were highly rated across all usability items, suggesting that arts-based digital tools are useful mediums for sharing health information with parents.

scholarly journals A randomized controlled trial to evaluate the effectiveness of an integrated engagement support system to facilitate patient use of digital diabetes prevention programs: a study protocol (Preprint)

2020 ◽  
Author(s):  
Katharine Lawrence ◽  
Danissa V Rodriguez ◽  
Dawn M Feldthouse ◽  
Donna Shelley ◽  
Jonathan L Yu ◽  
...  
Keyword(s):  
Primary Care ◽  
Patient Engagement ◽  
Diabetes Prevention ◽  
Digital Health ◽  
Controlled Trial ◽  
Primary Care Providers ◽  
User Centered Design ◽  
Care Providers ◽  
Randomized Controlled ◽  
Engagement System

BACKGROUND Digital diabetes prevention programs (dDPP) are effective behavior change tools to prevent disease progression in patients at risk for diabetes. Currently these programs are poorly integrated into existing health information technology (HIT) infrastructure and clinical workflows, resulting in barriers to provider-level knowledge, interaction, and support of patients who use dDPP. Tools that can facilitate patient-provider interaction around dDPP may contribute to improved patient engagement and adherence to these programs, as well as improved health outcomes. OBJECTIVE This study aims to utilize a rigorous, user-centered design methodology to develop a theory-driven system that supports patient engagement with dDPP and their primary care providers with their care. METHODS This study will be conducted in three phases. In phase 1, we will utilize systematic user-centered design, Agile software development, and qualitative research methods to identify “key user” (patients, providers, clinical staff, digital health technologists, content experts) requirements, constraints, and prioritization of high-impact features to design, develop, and refine a viable intervention prototype for the engagement system. In phase 2, we will conduct a single-arm feasibility pilot of the engagement system among patients with prediabetes and their primary care providers. In phase 3, we will conduct a two-arm randomized controlled trial utilizing the engagement system. Primary outcomes will be weight, BMI, and A1c at 6 and 12 months. Secondary outcomes will be patient engagement (utilization, activity) in dDPP. Mediator variables (self-efficacy, digital health literacy, patient-provider relationship) will be measured. RESULTS The project was initiated in 2018, and enrollment and data analysis are underway. First results are expected to be submitted for publication in early 2021. CONCLUSIONS Our findings will provide guidance for the design and development of technology to integrate dDPP platforms into existing clinical workflows. This will facilitate patient engagement in digital behavior change interventions and provider engagement in patients’ use of dDPP. Integrated clinical tools that can facilitate patient-provider interaction around dDPP may contribute to improved patient adherence to these programs, as well as improved health outcomes, by addressing barriers faced by both patients and providers. Further evaluation with pilot testing and a clinical trial will assess the effectiveness and implementation of these tools.

scholarly journals Supporting quality public and patient engagement in health system organizations: development and usability testing of the Public and Patient Engagement Evaluation Tool

2015 ◽  
Vol 19 (4) ◽  
pp. 817-827 ◽  
Author(s):  
Julia Abelson ◽  
Kathy Li ◽  
Geoff Wilson ◽  
Kristin Shields ◽  
Colleen Schneider ◽  
...  
Keyword(s):  
Health System ◽  
Patient Engagement ◽  
Usability Testing ◽  
Evaluation Tool ◽  
The Public

scholarly journals Development and evaluation of a customizable electron-ic medical record for clinical outcomes research and patient engagement

2016 ◽  
Vol 5 (1) ◽  
pp. 10
Author(s):  
Wayne Miller ◽  
Jennifer Patton ◽  
Patricia Lally ◽  
Joshua Cusick-Lewis ◽  
Karen Fitzpatrick ◽  
...  
Keyword(s):  
Family Practice ◽  
Patient Engagement ◽  
Information Needs ◽  
Health Workers ◽  
Data Extraction ◽  
Data Entry ◽  
Clinical Information ◽  
Clinical Effectiveness ◽  
Circle Of Care ◽  
Urban Family

Background: Electronic Medical Records (EMRs) provide a database to support clinical information needs. However, it is often difficult to access EMR-generated data to answer specific clinical-based questions. Furthermore, EMR is not designed to complete the circle of care by interacting and communicating directly with patients. The problem is even greater in rural practices, with limited resources, and with providers inexperienced in research, who are doing well to meet the daily requirements of keeping their practice doors open.Objective: Design and evaluate a customizable EMR-Reporting Tool (EMR-RT) that can be used as an adjunct to an existing EMR or as a sole-standing EMR-RT for clinical outcome's research and patient engagement.Methods: Two rural and two urban family practice clinics participated in the design and beta testing of a customizable EMR-RT for clinical effectiveness research and for patient engagement. The EMR-RT was implemented in each clinic for a 6-month clinical trial.Results: The EMR-RT used in each clinic was simplistic enough that community health workers could handle patient data entry, data management, and data extraction independently. Each clinic could incorporate clinic-specific measurement variables into the EMR-RT database with minimal effort. Changes to the EMR-RT database capabilities could be performed off-site through the Internet.Conclusions: A customizable EMR-RT was successfully designed and implemented in two rural and two urban family practice clinics. The EMR-RT was robust enough to congregate clinical research data, but flexible enough and simplistic enough that workers who were previously untrained in EMR use could quickly utilize the system.

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