scholarly journals Exploring thoughts about pain and pain management: Interviews with South Asian community members in the UK

2019 ◽  
Vol 17 (2) ◽  
pp. 242-252
Author(s):  
Amy E. Burton ◽  
Laura Hissey ◽  
Sarah Milgate
10.2196/25863 ◽  
2022 ◽  
Vol 24 (1) ◽  
pp. e25863
Author(s):  
Antonia Hyman ◽  
Elizabeth Stacy ◽  
Humaira Mohsin ◽  
Kaitlin Atkinson ◽  
Kurtis Stewart ◽  
...  

Background South Asian community members in Canada experience a higher burden of chronic disease than the general population. Digital health innovations provide a significant opportunity to address various health care challenges such as supporting patients in their disease self-management. However, South Asian community members are less likely to use digital tools for their health and face significant barriers in accessing them because of language or cultural factors. Objective The aim of this study is to understand the barriers to and facilitators of digital health tool uptake experienced by South Asian community members residing in Canada. Methods This study used a qualitative community-based participatory action research approach. Residents from Surrey, British Columbia, Canada, who spoke 1 of 4 South Asian languages (Hindi, Punjabi, Urdu, or Tamil) were invited to participate in focus group discussions. A subsample of the participants were invited to use photovoice methods in greater depth to explore the research topics. Results A total of 197 participants consented to the focus group discussions, with 12 (6.1%) participating in the photovoice phase. The findings revealed several key obstacles (older age, lack of education, and poor digital health literacy) and facilitators (social support from family or community members and positive attitudes toward technology) to using digital health tools. Conclusions The results support the value of using a community-based participatory action research approach and photovoice methods to engage the South Asian community in Canada to better understand digital health competencies and needs. There were several important implications for policy makers and future research, such as continued engagement of community leaders by health care providers and administrators to learn about attitudes and preferences.


2020 ◽  
Author(s):  
Antonia Hyman ◽  
Elizabeth Stacy ◽  
Humaira Mohsin ◽  
Kaitlin Atkinson ◽  
Kurtis Stewart ◽  
...  

BACKGROUND South Asian community members in Canada experience a higher burden of chronic disease than the general population. Digital health innovations provide a significant opportunity to address various health care challenges such as supporting patients in their disease self-management. However, South Asian community members are less likely to use digital tools for their health and face significant barriers in accessing them because of language or cultural factors. OBJECTIVE The aim of this study is to understand the barriers to and facilitators of digital health tool uptake experienced by South Asian community members residing in Canada. METHODS This study used a qualitative community-based participatory action research approach. Residents from Surrey, British Columbia, Canada, who spoke 1 of 4 South Asian languages (Hindi, Punjabi, Urdu, or Tamil) were invited to participate in focus group discussions. A subsample of the participants were invited to use photovoice methods in greater depth to explore the research topics. RESULTS A total of 197 participants consented to the focus group discussions, with 12 (6.1%) participating in the photovoice phase. The findings revealed several key obstacles (older age, lack of education, and poor digital health literacy) and facilitators (social support from family or community members and positive attitudes toward technology) to using digital health tools. CONCLUSIONS The results support the value of using a community-based participatory action research approach and photovoice methods to engage the South Asian community in Canada to better understand digital health competencies and needs. There were several important implications for policy makers and future research, such as continued engagement of community leaders by health care providers and administrators to learn about attitudes and preferences.


Diabetologia ◽  
2006 ◽  
Vol 50 (1) ◽  
pp. 244-244
Author(s):  
A. H. Barnett ◽  
A. N. Dixon ◽  
S. Bellary ◽  
M. W. Hanif ◽  
J. P. O’Hare ◽  
...  

2022 ◽  
Vol 4 (1) ◽  
pp. 8-14
Author(s):  
Affifa Farrukh ◽  
John F. Mayberry

Over the last decade, there have been a number of studies which have documented disparate levels of care in the management of inflammatory bowel disease amongst various minority communities in the UK. Similar findings had previously been described in the USA, where access to biologics has been an issue. In this study, data on admissions to hospital of South Asian and White British patients with inflammatory bowel disease between 2015 and 2019 were collected from 12 National Health Service (NHS) trusts in England, three Health Boards in Wales and two Scottish health organizations using Freedom of Information requests. The analyses of data were based on the assumption that inflammatory bowel disease (IBD) has the same prevalence in the South Asian community and the White British community in the UK. Comparisons were made between the proportion of hospitalised patients who were South Asian and the proportion who were White British in the local community using a z statistic. In Leicester, Bradford, Croydon and Lothian, the proportion of patients from the South Asian community admitted to hospital was significantly greater than the proportion from the local White British community, which is consistent with the greater frequency and severity of the disease in the South Asian community in the UK. However, in Coventry, Wolverhampton, Walsall, Acute Pennine Trust in the north-west of England, Barking, Havering and Redbridge and Glasgow, South Asian patients were significantly under-represented, indicating significant issues with access to hospital-based healthcare for inflammatory bowel disease. This study provides evidence of on-going evidence of disparate levels of care for patients from a South Asian background, with inflammatory bowel disease being underserved by a number of NHS Trusts, Health Boards and comparable organisations. When there is on-going failure to achieve the objectives of the NHS of achieving equality in the delivery of care, it is critical to introduce effective policies which will alter the in-built inertia to change within such organisations.


Diabetologia ◽  
2006 ◽  
Vol 49 (10) ◽  
pp. 2234-2246 ◽  
Author(s):  
A. H. Barnett ◽  
A. N. Dixon ◽  
S. Bellary ◽  
M. W. Hanif ◽  
J. P. O’Hare ◽  
...  

2012 ◽  
Author(s):  
Rahul Sharma ◽  
Razia Kosi ◽  
Ulash Thakore-Dunlap ◽  
Sushama Kirtikar

2014 ◽  
Vol 64 (625) ◽  
pp. 417-419 ◽  
Author(s):  
Rukhsana Bibi ◽  
Sabi Redwood ◽  
Shahrad Taheri

2000 ◽  
Vol 9 (3) ◽  
pp. 167-171 ◽  
Author(s):  
Helen E. Sheehan ◽  
Rafael Art Javier ◽  
Theresa Thanjan

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