Home Depot, Walmart Foundations accepting grant applications for community projects

2021 ◽  
Vol 2021 (387) ◽  
pp. 3-3
Keyword(s):  
Grant Applications ◽  
Home Depot ◽  
Community Projects

The Collaborative Network Approach: a model for advancing patient-centric research for Castleman disease and other rare diseases

2019 ◽  
Vol 3 (1) ◽  
pp. 97-105
Author(s):  
Mary Zuccato ◽  
Dustin Shilling ◽  
David C. Fajgenbaum
Keyword(s):  
Rare Diseases ◽  
Treatment Options ◽  
Castleman Disease ◽  
High Impact ◽  
Collaborative Network ◽  
Network Approach ◽  
Grant Applications ◽  
Research Questions ◽  
Novel Strategy ◽  
Patient Centric

Abstract There are ∼7000 rare diseases affecting 30 000 000 individuals in the U.S.A. 95% of these rare diseases do not have a single Food and Drug Administration-approved therapy. Relatively, limited progress has been made to develop new or repurpose existing therapies for these disorders, in part because traditional funding models are not as effective when applied to rare diseases. Due to the suboptimal research infrastructure and treatment options for Castleman disease, the Castleman Disease Collaborative Network (CDCN), founded in 2012, spearheaded a novel strategy for advancing biomedical research, the ‘Collaborative Network Approach’. At its heart, the Collaborative Network Approach leverages and integrates the entire community of stakeholders — patients, physicians and researchers — to identify and prioritize high-impact research questions. It then recruits the most qualified researchers to conduct these studies. In parallel, patients are empowered to fight back by supporting research through fundraising and providing their biospecimens and clinical data. This approach democratizes research, allowing the entire community to identify the most clinically relevant and pressing questions; any idea can be translated into a study rather than limiting research to the ideas proposed by researchers in grant applications. Preliminary results from the CDCN and other organizations that have followed its Collaborative Network Approach suggest that this model is generalizable across rare diseases.

Interventions for Fetal Alcohol Spectrum Disorders: Transitioning Science to Community Projects

2008 ◽  
Author(s):  
Mary J. O'Connor ◽  
Evy Lowe ◽  
Susan Hall-Marley ◽  
Elizabeth A. Laugeson ◽  
Kathleen Welch-Torres
Keyword(s):  
Fetal Alcohol Spectrum Disorders ◽  
Fetal Alcohol ◽  
Spectrum Disorders ◽  
Community Projects ◽  
Fetal Alcohol Spectrum

scholarly journals Cross-Center Virtual Education Fellowship Program for Early-Career Researchers in Atrial Fibrillation

2020 ◽  
Vol 13 (11) ◽  
Author(s):  
Tinuola B. Ajayi ◽  
Christy D. Remein ◽  
Randall S. Stafford ◽  
Angela Fagerlin ◽  
Mina K. Chung ◽  
...  
Keyword(s):  
Atrial Fibrillation ◽  
Population Health ◽  
Early Stage ◽  
Early Career ◽  
Research Network ◽  
Grant Writing ◽  
Career Stage ◽  
Fellowship Program ◽  
Pedagogical Model ◽  
Grant Applications

Background: It is estimated that over 46 million individuals have atrial fibrillation (AF) worldwide, and the incidence and prevalence of AF are increasing globally. There is an urgent need to accelerate the academic development of scientists possessing the skills to conduct innovative, collaborative AF research. Methods: We designed and implemented a virtual AF Strategically Focused Research Network Cross-Center Fellowship program to enhance the competencies of early-stage AF basic, clinical, and population health researchers through experiential education and mentorship. The pedagogical model involves significant cross-center collaboration to produce a curriculum focused on enhancing AF scientific competencies, fostering career/professional development, and cultivating grant writing skills. Outcomes for success involve clear expectations for fellows to produce manuscripts, presentations, and—for those at the appropriate career stage–grant applications. We evaluated the effectiveness of the fellowship model via mixed methods formative and summative surveys. Results: In 2 years of the fellowship, fellows generally achieved the productivity metrics sought by our pedagogical model, with outcomes for the 12 fellows including 50 AF-related manuscripts, 7 publications, 28 presentations, and 3 grant awards applications. Participant evaluations reported that the fellowship effectively met its educational objectives. All fellows reported medium to high satisfaction with the overall fellowship, webinar content and facilitation, staff communication and support, and program organization. Conclusions: The fellowship model represents an innovative educational strategy by providing a virtual AF training and mentoring curriculum for early-career basic, clinical, and population health scientists working across multiple institutions, which is particularly valuable in the pandemic era.

scholarly journals Common hand and wrist conditions: creation of UK research priorities defined by a James Lind Alliance Priority Setting Partnership

BMJ Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. e044207
Author(s):  
Alexia Karantana ◽  
Tim Davis ◽  
Donna Kennedy ◽  
Debbie Larson ◽  
Dominic Furniss ◽  
...  
Keyword(s):  
Priority Setting ◽  
Research Priorities ◽  
Treatment Modalities ◽  
Grant Applications ◽  
Charitable Organisation ◽  
James Lind Alliance ◽  
Treatment Uncertainties ◽  
The Uk ◽  
Survey Responses ◽  
Priority Setting Partnership

ObjectivePrioritisation of important treatment uncertainties for ‘Common Conditions Affecting the Hand and Wrist’ via a UK-based James Lind Alliance Priority Setting Partnership.SettingThis process was funded by a national charitable organisation and based in the UK.ParticipantsAnyone with experience of common conditions affecting the adult hand and wrist, including patients, carers and healthcare professionals. All treatment modalities delivered by a hand specialist, including therapists, surgeons or other allied professionals, were considered.InterventionsEstablished James Lind Alliance Priority Setting Partnership methods were employed.Electronic and paper questionnaires identified potential uncertainties. These were subsequently confirmed using relevant, up-to-date systematic reviews. A final list of top 10 research uncertainties was developed via a face-to-face workshop with representation from patients and clinicians. Impact of research was sought by surveying hand clinicians electronically.Outcome measuresThe survey responses and prioritisation—both survey and workshop based.ResultsThere were 889 individually submitted questions from the initial survey, refined to 59 uncertainties across 32 themes. Eight additional uncertainties were added from published literature before prioritisation by 261 participants and the workshop allowed the final top 10 list to be finalised. The top 10 has so far contributed to the award of over £3.8 million of competitively awarded funding.ConclusionsThe Common Conditions in the Hand and Wrist Priority Setting Partnership identified important research questions and has allowed research funders to identify grant applications which are important to both patients and clinicians

scholarly journals A National Evaluation of State and Territory Roles in Hazard Mitigation: Building Local Capacity to Implement FEMA Hazard Mitigation Assistance Grants

2020 ◽  
Vol 12 (23) ◽  
pp. 13
Author(s):  
Gavin Smith ◽  
Olivia Vila
Keyword(s):  
Emergency Management ◽  
National Survey ◽  
Local Governments ◽  
Technical Assistance ◽  
Hazard Mitigation ◽  
Grant Applications ◽  
Research Questions ◽  
Low Levels ◽  
Resilient Infrastructure ◽  
Survey Responses

This article describes the findings of a national survey of State Hazard Mitigation Officers (SHMOs) in U.S. states and territories in order to gain a greater understanding of the roles that they play in assisting local governments to build the capacity required to successfully develop and implement Federal Emergency Management Agency (FEMA)-funded Hazard Mitigation Assistance (HMA) grants, an important but understudied aspect of hazard mitigation governance. The research questions focus on: (1) How states and territories enable local governments to develop and implement HMA grants and (2) SHMOs’ opinions regarding their perceived capacity and effectiveness in assisting local governments to develop and implement HMA grants. Results show that while states and territories are relatively well-equipped to perform general administrative duties required by FEMA, SHMOs expressed wide variation in their capacity to assist local governments to develop and implement HMA grants. This was particularly evident with regard to the delivery of specific technical assistance measures required to develop HMA grants. Survey responses also highlight modest levels of participation in FEMA-designed efforts to delegate responsibility to states and territories and low levels of participation in programs that offer pre-application funding to local governments to help them develop HMA grant applications. These findings should concern FEMA as the agency embarks on the implementation of the Building Resilient Infrastructure and Communities program, an ambitious pre-disaster hazard mitigation grant initiative.

scholarly journals The Role of Biophilic Agents in Building a Green Resilient City; the Case of Birmingham, UK

2021 ◽  
Vol 13 (9) ◽  
pp. 5033
Author(s):  
Linda Novosadová ◽  
Wim van der Knaap
Keyword(s):  
Urban Planning ◽  
Urban Governance ◽  
Small Scale ◽  
Climate Resilience ◽  
Natural Land ◽  
Negative Impacts ◽  
Community Projects ◽  
Business As Usual ◽  
The City

The present research offers an exploration into the biophilic approach and the role of its agents in urban planning in questions of building a green, resilient urban environment. Biophilia, the innate need of humans to connect with nature, coined by Edgar O. Wilson in 1984, is a concept that has been used in urban governance through institutions, agents’ behaviours, activities and systems to make the environment nature-inclusive. Therefore, it leads to green, resilient environments and to making cities more sustainable. Due to an increasing population, space within and around cities keeps on being urbanised, replacing natural land cover with concrete surfaces. These changes to land use influence and stress the environment, its components, and consequently impact the overall resilience of the space. To understand the interactions and address the adverse impacts these changes might have, it is necessary to identify and define the environment’s components: the institutions, systems, and agents. This paper exemplifies the biophilic approach through a case study in the city of Birmingham, United Kingdom and its biophilic agents. Using the categorisation of agents, the data obtained through in-situ interviews with local professionals provided details on the agent fabric and their dynamics with the other two environments’ components within the climate resilience framework. The qualitative analysis demonstrates the ways biophilic agents act upon and interact within the environment in the realm of urban planning and influence building a climate-resilient city. Their activities range from small-scale community projects for improving their neighbourhood to public administration programs focusing on regenerating and regreening the city. From individuals advocating for and educating on biophilic approach, to private organisations challenging the business-as-usual regulations, it appeared that in Birmingham the biophilic approach has found its representatives in every agent category. Overall, the activities they perform in the environment define their role in building resilience. Nonetheless, the role of biophilic agents appears to be one of the major challengers to the urban design’s status quo and the business-as-usual of urban governance. Researching the environment, focused on agents and their behaviour and activities based on nature as inspiration in addressing climate change on a city level, is an opposite approach to searching and addressing the negative impacts of human activity on the environment. This focus can provide visibility of the local human activities that enhance resilience, while these are becoming a valuable input to city governance and planning, with the potential of scaling it up to other cities and on to regional, national, and global levels.

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