scholarly journals What is desirable care in the opinion of formal and informal caregivers in nursing-home care for patients with dementia?

Nursing Open ◽  
2018 ◽  
Vol 5 (2) ◽  
pp. 139-148
Author(s):  
Margreeth van Dijk ◽  
Bianca I. Buijck
Keyword(s):  
Nursing Home ◽  
Home Care ◽  
Informal Caregivers ◽  
Nursing Home Care

The experiences, priorities, and perceptions of informal caregivers of people with dementia in nursing homes: A scoping review

Dementia ◽  
2021 ◽  
pp. 147130122110126
Author(s):  
Alexandra E Harper ◽  
Lauren Terhorst ◽  
Marybeth Moscirella ◽  
Rose L Turner ◽  
Catherine V Piersol ◽  
...  
Keyword(s):  
Nursing Home ◽  
Nursing Homes ◽  
Home Care ◽  
Scoping Review ◽  
Informal Caregivers ◽  
Nursing Home Care ◽  
Person Centered Care ◽  
People With Dementia ◽  
Centered Care

Background Person-centered care has been shown to increase desired outcomes for people with dementia, yet informal caregivers’ dissatisfaction with care is often reported. For those living in a nursing home, informal caregivers are uniquely situated to provide key insights into the individual’s care. However, little is known of the informal caregivers’ perspective, which hinders efforts to improve their satisfaction with person-centered nursing home care. Thus, we examined the comprehensive experiences, priorities, and perceptions of informal caregivers of nursing home residents with dementia. Methods In collaboration with stakeholders, a scoping review of Medline (Ovid), EMBASE.com , CINAHL (EBSCO), the Cochrane Library (Wiley), and PsycINFO (Ovid) databases from January 2000 to July 2020 was conducted. Data were extracted reflecting the experiences, priorities, and preferences of caregivers of people with dementia residing in nursing homes. Results We identified 114 articles that revealed nine themes: (1) communication, (2) transition to nursing home, (3) quality of care, (4) quality of life, (5) informal caregiver role, (6) knowledge of dementia, (7) end-of-life preferences, (8) medication use to manage neuropsychiatric behaviors, and (9) finances. Conclusion Informal caregivers described aspects of care that led to both positive and negative experiences with and perceptions of nursing home care. The shortcomings in communication were discussed most frequently, indicating a high priority area. While researchers define the identified themes individually, informal caregivers perceive them to be interwoven as they relate to person-centered care delivery. Although we did not assess the quality of included articles, by identifying themes relevant to caregivers’ perspectives of nursing home care, our findings may help to inform efforts to optimize caregivers’ satisfaction with nursing home care for residents with dementia.

scholarly journals Interventions to support people with dementia and their informal caregivers during the transition from home care to nursing home care – a protocol for a systematic review / Interventionen zur Unterstützung von Menschen mit Demenz und ihren Angehörigen während des Übergangs von der häuslichen Pflege ins Pflegeheim – ein Studienprotokoll für eine systematische Übersichtsarbeit

2016 ◽  
Vol 3 (2) ◽  
pp. 122-135
Author(s):  
Christian Müller ◽  
Janine Puls ◽  
Sindy Lautenschläger ◽  
Astrid Stephan ◽  
Gabriele Meyer
Keyword(s):  
Systematic Review ◽  
Nursing Home ◽  
Home Care ◽  
Data Extraction ◽  
Informal Caregivers ◽  
The Body ◽  
Nursing Home Care ◽  
Bibliographic Databases ◽  
People With Dementia ◽  
Mrc Framework

Abstract Background The transition from home care to nursing home care is a significant event in the life of a person with dementia and also for informal caregiver, who deal with many crises and changes. Aim To describe a protocol for a systematic review based on the `‘PRISMA-P 2015 statement`. We will carry out this review firstly to identify interventions that support people with dementia and their informal caregivers in the transition from home care to nursing home care, secondly to synthesise the available evidence for the efficacy of identified interventions, and thirdly to examine whether the identified interventions have been systematically developed, evaluated and implemented according to the MRC framework. Design This systematic review will be conducted according to the recommendations specified in the Cochrane Handbook for Intervention Reviews; reporting will follow the PRISMA statement. Methods The search strategy covers six electronic bibliographic databases, Google Scholar and ALOIS. In addition, backward citation tracking will be applied. The protocol includes decisions made on the research questions, inclusion/exclusion criteria, search methods, study selection, data extraction, assessment of risk of bias, data synthesis and plans for dissemination and funding. Discussion This systematic review will summarise the body of evidence of interventions supporting people with dementia and their informal caregivers during the transition from home care to nursing home care. Protocol Registration This review protocol has been registered on the Prospective Register of Systematic Reviews (PROSPERO 2015: CRD42015019839).

scholarly journals Obciążenie opiekunów nieformalnych a sprawność funkcjonalna i umysłowa pacjentów objętych opieką domową

2018 ◽  
Vol 64 (4) ◽  
Author(s):  
Alina Deluga ◽  
Agnieszka Bartoszek ◽  
Barbara Ślusarska ◽  
Katarzyna Kocka ◽  
Grzegorz Nowicki ◽  
...  
Keyword(s):  
Nursing Home ◽  
Home Care ◽  
Informal Caregivers ◽  
Female Gender ◽  
Negative Influence ◽  
Nursing Home Care ◽  
Satisfaction With Care ◽  
Mental Performance

ABSTRACTIntroduction: Family members as informal caregivers are the most common and important providers of caring services in the home environment of patients suffering from chronic diseases.The aim of the study was to assess the relationship between the functional and mental performance of patients being provided long-term nursing home care and the burden of their caregivers.Materials and methods: The study was carried out in the Lublin region from September 2016 to February 2017. The study group included 149 patients with chronic diseases under long-term nursing home care and their 150 informal caregivers. The burden of the caregivers was assessed by means of the Carers of Older People in Europe (COPE) Index questionnaire which is used to check different aspects of the caregivers’ roles, life situations and relationships with the care recipients. The patients’ functional performance was measured by means of the Barthel Index for Activities of Daily Living, while their mental performance was checked using the Abbreviated Mental Test Score.Results: According to the COPE Index, the caregivers’ burden for particular subscales was as follows: Negative Influence of Care (NIC) 11.80 (SD = 3.75), Positive Value of Care (PVC) 13.71 (SD = 2.07), Quality of Support (QS) 12.46 (SD = 2.69). It has been indicated that the worse the functional and mental performance of the patient under care, the greater the burden of the carers – NIC (p < 0.01), the lower the satisfaction with care – PVC (p < 0.01) and the lower the quality of support given – QS (p < 0.01). The deterioration of a patient’s mental performance correlates with the female gender of the caregiver and the longer duration of care.Conclusions: The lower functional and mental performance of patients who are being provided long-term nursing home care has a relationship to the experience of the negative effects of care by informal carers, lower satisfaction with care and lower quality of support.

Nursing Home Care

1986 ◽  
Vol 2 (3) ◽  
pp. 601-615 ◽  
Author(s):  
James S. Wood
Keyword(s):  
Nursing Home ◽  
Home Care ◽  
Nursing Home Care

scholarly journals Breaking Up and a New Beginning When One’s Partner Goes into a Nursing Home: An Interview Study

Healthcare ◽  
2021 ◽  
Vol 9 (6) ◽  
pp. 672
Author(s):  
Gerd Ahlström ◽  
Nina Stååhl Markeling ◽  
Ulrika Liljenberg ◽  
Helena Rosén
Keyword(s):  
Nursing Home ◽  
Home Care ◽  
Rural Areas ◽  
Qualitative Content Analysis ◽  
Transition Process ◽  
Poor Quality ◽  
Nursing Home Care ◽  
New Beginning ◽  
Urban And Rural Areas ◽  
Home Placement

In aging societies worldwide, spouses take on great responsibility for care when their partner continues to live at home. Nursing home placement occurs when the partner becomes too frail due to multimorbidity, and this will cause a change in the spouse’s life. This study aimed to explore the spouse’s experience of their partner’s move to a nursing home. Two interviews were conducted at 9-month intervals within the project entitled “Implementation of Knowledge-Based Palliative Care in Nursing Homes”. Thirteen spouses from both urban and rural areas were included, with an age-range of 60–86 years (median 72). Qualitative content analysis was performed. The main findings were captured in two themes: Breaking up of close coexistence and Towards a new form of daily life. The first encompassed processing loneliness, separation and grief, exhaustion, increased burden, and a sense of guilt. The second encompassed a sense of freedom, relief, acceptance, support and comfort. Professionals in both home care and nursing home care need to develop and provide a support programme conveying knowledge of the transition process to prevent poor quality of life and depression among the spouses. Such a programme should be adaptable to individual needs and should ideally be drawn up in consultation with both partners.

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