scholarly journals Obciążenie opiekunów nieformalnych a sprawność funkcjonalna i umysłowa pacjentów objętych opieką domową

2018 ◽  
Vol 64 (4) ◽  
Author(s):  
Alina Deluga ◽  
Agnieszka Bartoszek ◽  
Barbara Ślusarska ◽  
Katarzyna Kocka ◽  
Grzegorz Nowicki ◽  
...  

ABSTRACTIntroduction: Family members as informal caregivers are the most common and important providers of caring services in the home environment of patients suffering from chronic diseases.The aim of the study was to assess the relationship between the functional and mental performance of patients being provided long-term nursing home care and the burden of their caregivers.Materials and methods: The study was carried out in the Lublin region from September 2016 to February 2017. The study group included 149 patients with chronic diseases under long-term nursing home care and their 150 informal caregivers. The burden of the caregivers was assessed by means of the Carers of Older People in Europe (COPE) Index questionnaire which is used to check different aspects of the caregivers’ roles, life situations and relationships with the care recipients. The patients’ functional performance was measured by means of the Barthel Index for Activities of Daily Living, while their mental performance was checked using the Abbreviated Mental Test Score.Results: According to the COPE Index, the caregivers’ burden for particular subscales was as follows: Negative Influence of Care (NIC) 11.80 (SD = 3.75), Positive Value of Care (PVC) 13.71 (SD = 2.07), Quality of Support (QS) 12.46 (SD = 2.69). It has been indicated that the worse the functional and mental performance of the patient under care, the greater the burden of the carers – NIC (p < 0.01), the lower the satisfaction with care – PVC (p < 0.01) and the lower the quality of support given – QS (p < 0.01). The deterioration of a patient’s mental performance correlates with the female gender of the caregiver and the longer duration of care.Conclusions: The lower functional and mental performance of patients who are being provided long-term nursing home care has a relationship to the experience of the negative effects of care by informal carers, lower satisfaction with care and lower quality of support.


Dementia ◽  
2021 ◽  
pp. 147130122110126
Author(s):  
Alexandra E Harper ◽  
Lauren Terhorst ◽  
Marybeth Moscirella ◽  
Rose L Turner ◽  
Catherine V Piersol ◽  
...  

Background Person-centered care has been shown to increase desired outcomes for people with dementia, yet informal caregivers’ dissatisfaction with care is often reported. For those living in a nursing home, informal caregivers are uniquely situated to provide key insights into the individual’s care. However, little is known of the informal caregivers’ perspective, which hinders efforts to improve their satisfaction with person-centered nursing home care. Thus, we examined the comprehensive experiences, priorities, and perceptions of informal caregivers of nursing home residents with dementia. Methods In collaboration with stakeholders, a scoping review of Medline (Ovid), EMBASE.com , CINAHL (EBSCO), the Cochrane Library (Wiley), and PsycINFO (Ovid) databases from January 2000 to July 2020 was conducted. Data were extracted reflecting the experiences, priorities, and preferences of caregivers of people with dementia residing in nursing homes. Results We identified 114 articles that revealed nine themes: (1) communication, (2) transition to nursing home, (3) quality of care, (4) quality of life, (5) informal caregiver role, (6) knowledge of dementia, (7) end-of-life preferences, (8) medication use to manage neuropsychiatric behaviors, and (9) finances. Conclusion Informal caregivers described aspects of care that led to both positive and negative experiences with and perceptions of nursing home care. The shortcomings in communication were discussed most frequently, indicating a high priority area. While researchers define the identified themes individually, informal caregivers perceive them to be interwoven as they relate to person-centered care delivery. Although we did not assess the quality of included articles, by identifying themes relevant to caregivers’ perspectives of nursing home care, our findings may help to inform efforts to optimize caregivers’ satisfaction with nursing home care for residents with dementia.



2016 ◽  
Vol 8 (3) ◽  
pp. 329-343
Author(s):  
Jingping Xing ◽  
Dana B. Mukamel ◽  
Laurent G. Glance ◽  
Ning Zhang ◽  
Helena Temkin-Greener


1981 ◽  
Vol 13 (1) ◽  
pp. 61-69 ◽  
Author(s):  
William M. Epstein

In a study mandated by Congress, the National Academy of Sciences reviewed the quality of medical care in the Veteran's Administrations health care system. The study reported here summarizes the findings of the long-term care portion of the NAS' work as it relates to nursing home care. The quality of the long-term care in the VA's nursing home care units was compared to three quality standards of long-term nursing care outside of the VA. Staffing pattern, quality of services, quality of the environment, and patient needs were measured and compared; overall assessments of nursing home quality were made by site visitors. Generally, the results show VA care to be superior to the care provided in the benchmark institutions, suggesting perhaps that the public sector's direct provision of long-term nursing care may be an acceptable alternative to the support of private sector care.



2017 ◽  
pp. 9-24
Author(s):  
Caroline Mozley ◽  
Caroline Sutcliffe ◽  
Heather Bagley ◽  
Lis Cordingley ◽  
David Challis ◽  
...  


2002 ◽  
Vol 28 (8) ◽  
pp. 13-21 ◽  
Author(s):  
Shu-hui Yeh ◽  
Yvonne A Sehy ◽  
Li-Wei Lin


2020 ◽  
Vol 23 (2-3) ◽  
pp. 57-60 ◽  
Author(s):  
Edward H Wagner

Residents in nursing homes and other long-term care facilities comprise a large percentage of the deaths from Covid 19. Is this inevitable or are there problems with NHs and their care that increase the susceptibility of their residents. The first U.S. cluster of cases involved the residents, staff, and visitors of a Seattle-area nursing home. Study of this cluster suggested that infected staff members were transmitting the disease to residents. The quality of nursing home care has long been a concern and attributed to chronic underfunding and resulting understaffing. Most NH care is delivered by minimally trained nursing assistants whose low pay and limited benefits compel them to work in multiple long-term care settings, increasing their risk of infection, and work while ill. More comparative studies of highly infected long-term care facilities with those organizations that were able to better protect their residents are urgently needed. Early evidence suggests that understaffing of registered nurses may increase the risk of larger outbreaks.



2020 ◽  
Vol 26 (4) ◽  
pp. 327-342
Author(s):  
Theis Theisen

AbstractAn almost ideal demand system for long-term care is estimated using data from Norway, where the split of long-term care between home care and care in nursing homes is determined by municipalities. Previous literature has barely addressed what determines municipalities’ or other organizations’ allocations of resources to the sub-sectors of long-term care. The results show that home care is a luxury, while nursing home care is a necessity with respect to total expenditures on long-term care. Municipalities respond to high unit costs for home care by reducing that type of care. Municipalities are highly responsive to variations in the need for the two types of care and seem to provide a well-functioning insurance mechanism for long-term care. In the previous empirical literature, municipalities’ role as providers of insurance against the consequences of disabilities and frailty has received scant attention.



2020 ◽  
Vol 55 (6) ◽  
pp. 973-982
Author(s):  
R. Tamara Konetzka ◽  
Daniel H. Jung ◽  
Rebecca J. Gorges ◽  
Prachi Sanghavi


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