scholarly journals Fertility Preservation and Adolescent Cancer Patients: Lessons from Adult Survivors of Childhood Cancer and Their Parents

2007 ◽  
pp. 201-217 ◽  
Author(s):  
Carrie L. Nieman ◽  
Karen E. Kinahan ◽  
Susan E. Yount ◽  
Sarah K. Rosenbloom ◽  
Kathleen J. Yost ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Cancer Patients ◽  
Fertility Preservation ◽  
Adult Survivors ◽  
Adolescent Cancer ◽  
Survivors Of Childhood Cancer

Disability in Adult Survivors of Childhood Cancer: A Swedish National Cohort Study

2007 ◽  
Vol 25 (33) ◽  
pp. 5262-5266 ◽  
Author(s):  
Anders Hjern ◽  
Frank Lindblad ◽  
Krister K. Boman
Keyword(s):  
Childhood Cancer ◽  
Solid Tumors ◽  
Adult Life ◽  
Adult Survivors ◽  
Permanent Disability ◽  
Treatment Protocols ◽  
Cns Tumor ◽  
Adolescent Cancer ◽  
National Cohort ◽  
Survivors Of Childhood Cancer

Purpose We studied the effects of childhood or adolescent cancer and cancer treatment on disability as indicated by persistent aid needs in adult life. Patients and Methods A group of 2,503 survivors of childhood cancer diagnosed before their 16th birthday were studied with data from registers in a national cohort of 1.91 million Swedish residents. Disability indicators were created from information in national registers about income (sickness pension, handicap allowance), personal assistance, and family situation in 2002. Multivariate logistic regression on the log scale was used to estimate relative risk (RR) ratios. Results A total of 7.6% of survivors received handicap allowance indicating permanent disability, including brain tumors (14.0%), other solid tumors (6.3), and leukemias/lymphomas (2.9%), compared with 0.6% in the general population. Twenty-six percent of survivors of CNS tumor and 10% of survivors of solid tumors had at least one indication of a disability. Younger age at diagnosis suggested a higher risk for disability. CNS tumor survivors had an RR of 10.7 (95% CI, 9.3 to 12.8) for having at least one disability indication compared with the noncancer population, whereas leukemia and lymphoma survivors had an RR of 3.0, and survivors of other cancers had an RR of 3.8. Survivors of CNS tumor only had an increased RR for living in the parental household (RR = 1.6; 95% CI, 1.4 to 1.9). Conclusion Childhood cancer survivors more often have persistent needs of supportive measures provided by community and/or the parental household. The survivors of CNS tumors were at particular risk, indicating a need of safer treatment protocols, and tailored follow-up, prevention, and rehabilitation to address this persistent social disability.

Quality of Life Among Long-Term Adolescent and Adult Survivors of Childhood Cancer

2006 ◽  
Vol 24 (16) ◽  
pp. 2527-2535 ◽  
Author(s):  
Elizabeth Maunsell ◽  
Lisa Pogany ◽  
Maru Barrera ◽  
Amanda K. Shaw ◽  
Kathy N. Speechley
Keyword(s):  
Quality Of Life ◽  
Childhood Cancer ◽  
Short Form ◽  
Adult Survivors ◽  
Adolescent Cancer ◽  
Sf 36 ◽  
Adult Cancer Survivors ◽  
Survivors Of Childhood Cancer

Purpose We assessed effects of childhood or adolescent cancer on quality of life among adolescent and adult cancer survivors, a group who are thought to be at particular risk for adverse late effects. Patients and Methods We studied 1,334 survivors and 1,477 age- and sex-matched, general population controls from across Canada using a mailed questionnaire which included the Short Form-36 (SF-36) and measures of self-esteem, optimism, and life satisfaction. General linear models and logistic regression were used. Survivor-control differences corresponding to an effect size (ES) ≥ 0.5 were considered clinically important. Results Participants were age 15 years to 37 years. Most survivors (83.8%) were diagnosed ≥ 10 years earlier. Fewer survivors (62.1%) than controls (71.1%) reported very good or excellent general health (adjusted odds ratio, 0.6; 95% CI, 0.5 to 0.7). However, quality of life differences between survivors and controls were small, and for the most part probably not clinically important. Three clinical characteristics—having had CNS or bone cancer, more than one treatment series, and ≥ two organs with a dysfunction at treatment end—were independently associated with poorer quality of life in the physical dimensions. Only survivors with ≥ two organs with dysfunction (8.7%) reported poorer quality of life in both physical and psychosocial domains, with several clinically important ES. The largest ES for the SF-36 physical summary scores were found in the 8% of survivors with two or three of these characteristics simultaneously, compared with those survivors who had none (−0.79 and −1.13, respectively). Conclusion Overall, a sizeable majority of adolescent and adult long-term survivors of childhood cancer in Canada appear to have adapted well.

Predictors of Health Self-Management in Young Adult Survivors of Childhood Cancer

2018 ◽  
Author(s):  
Jennifer L. Lee ◽  
Gunan R. Ganju ◽  
Jordan G. Marchak ◽  
Ronica Nanda ◽  
Mehul M. Shah ◽  
...  
Keyword(s):  
Young Adult ◽  
Childhood Cancer ◽  
Adult Survivors ◽  
Self Management ◽  
Young Adult Survivors ◽  
Survivors Of Childhood Cancer

Determinants of bone mineral density in long-term adult survivors of childhood cancer

2013 ◽  
Author(s):  
C Klap B ◽  
L te Winkel M ◽  
den Hoed M ◽  
van Waas M ◽  
J C M M Neggers S ◽  
...  
Keyword(s):  
Bone Mineral Density ◽  
Childhood Cancer ◽  
Bone Mineral ◽  
Adult Survivors ◽  
Mineral Density ◽  
Survivors Of Childhood Cancer

scholarly journals Perceived Health among Adolescent and Young Adult Survivors of Childhood Cancer

2021 ◽  
Vol 28 (1) ◽  
pp. 825-836
Author(s):  
Morgan Young-Speirs ◽  
Caitlin Forbes ◽  
Michaela Patton ◽  
K. Brooke Russell ◽  
Mehak Stokoe ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Health Resources ◽  
Adult Survivors ◽  
Perceived Health ◽  
Good Health ◽  
Adolescent And Young Adult ◽  
Control Group ◽  
Increased Risk ◽  
Patient Reported ◽  
Survivors Of Childhood Cancer

Survivors of childhood cancer (SCCs) are at increased risk of late effects, which are cancer- and treatment-related side-effects that are experienced months to years post-treatment and encapsulate a range of physical, cognitive and emotional problems including secondary malignancies. Perceived health can serve as an indicator of overall health. This study aims to (1) understand how a patient reported outcome (PRO) of perceived health of SCCs compares to controls who have not had a cancer diagnosis and (2) examine the relationships between perceived health and demographic and clinical variables, and health behavior. A total of 209 SCCs (n = 113 (54.10%) males; median age at diagnosis = 6.50 years; median time off treatment = 11.10 years; mean age at study = 19.00 years) were included. SCCs completed annual assessments as part of Long-Term Survivor Clinic appointments, including a question on perceived health answered on a five-point Likert scale. Data were collected retrospectively from medical charts. Perceived health of SCCs was compared to a control group (n = 836) using data from the 2014 Canadian Community Health Survey. Most SCCs (67%) reported excellent or very good health. The mean perceived health of SCCs (2.15 ± 0.91) was not statistically different from population controls (2.10 ± 0.87). Pain (B = 0.35; p < 0.001), physical activity (B = −0.39; p = 0.013) and concerns related to health resources (B = 0.59; p = 0.002) were significant predictors of perceived health. Factors shown to influence SCCs’ perceived health may inform interventions. Exploration into how SCCs develop their conception of health may be warranted.

scholarly journals Growing up after childhood cancer: maturity and life satisfaction in young adulthood

2021 ◽  
Author(s):  
Taylor M. Dattilo ◽  
Randal S. Olshefski ◽  
Leena Nahata ◽  
Jennifer A. Hansen-Moore ◽  
Cynthia A. Gerhardt ◽  
...  
Keyword(s):  
Life Satisfaction ◽  
Childhood Cancer ◽  
Satisfaction With Life ◽  
Adult Survivors ◽  
Well Being ◽  
Future Research ◽  
Growing Up ◽  
Young Adult Survivors ◽  
Survivors Of Childhood Cancer ◽  
Linear Regressions

Abstract Purpose Young individuals face a variety of developmental tasks as they mature into adulthood. For survivors of childhood cancer, growing up may be more difficult due to their illness and late effects from treatment. This study is the first to quantitatively examine perceptions of maturity and how these perceptions contribute to satisfaction with life among young adult survivors of childhood cancer. Methods Ninety survivors of childhood cancer (Mage = 29.8; 7–37 years post-diagnosis) were recruited to complete online surveys on how mature they felt relative to peers, their perceived maturity on three domains (financial, personal, social), and life satisfaction. Results Most survivors (62%; n = 56) felt they grew up faster than their peers, and over half (56%; n = 50) felt more mature. Perceived maturity was high on all three domains, but brain tumor survivors reported significantly lower maturity than other survivors (d = 0.76–1.11). All maturity domains were positively associated with life satisfaction (r = .49–.56). Hierarchical linear regressions indicated that 44% of the variance in life satisfaction was explained by perceptions of growing up slower (β =  − 1.08, p = .004) and marginally by greater perceived personal maturity (β = 0.45, p = .061). Conclusions Childhood cancer can influence development, with most survivors feeling that they grew up faster and were more mature than peers. Personal maturity was related to life satisfaction, with survivors of brain tumors or those who felt they grew up slower at greatest risk for lower life satisfaction. Future research and clinical practice should consider survivors’ development and maturation across the life span to promote overall well-being.

scholarly journals Cardiac remodeling after anthracycline and radiotherapy exposure in adult survivors of childhood cancer: A report from the St Jude Lifetime Cohort Study

Cancer ◽  
2021 ◽  
Author(s):  
John L. Jefferies ◽  
Wojciech M. Mazur ◽  
Carrie R. Howell ◽  
Juan C. Plana ◽  
Kirsten K. Ness ◽  
...  
Keyword(s):  
Cohort Study ◽  
Childhood Cancer ◽  
Cardiac Remodeling ◽  
Adult Survivors ◽  
Survivors Of Childhood Cancer
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