Family Adaptation in Families with Children with Autism Spectrum Disorder (ASD)

Author(s):  
Maria Ángeles Noblejas ◽  
Pilar Maseda ◽  
Isabel Pérez ◽  
Pilar Pozo
2020 ◽  
Vol 74 (4_Supplement_1) ◽  
pp. 7411515399p1
Author(s):  
Karla Ausderau ◽  
Shannon Kant ◽  
Jessica Muesbeck ◽  
Libby Hladik ◽  
Holly Romaniak ◽  
...  

2020 ◽  
Author(s):  
China Parenteau ◽  
Stephen Bent ◽  
Bushra Hossain ◽  
Yingtong Chen ◽  
Felicia Widjaja ◽  
...  

Abstract Families with children with autism spectrum disorder (ASD) face a unique set of challenges with the rise of the COVID-19 pandemic and shelter-in-place related to a diverse set of issues, including explaining COVID-19 and safety precautions in a comprehensible way, building structure in home for e-learning to take place, and guiding children back into social situations and the community. We sought to obtain direct feedback through semi-structured interviews from fifteen parents of children and adolescents from a non-public school for children with level 2 and 3 ASD to both develop an initial guide for families, teachers and clinicians caring for children with ASD and to create awareness in the community about the challenges presented by COVID-19 and shelter-in-place.


2015 ◽  
Vol 69 (5) ◽  
pp. 6905185010p1 ◽  
Author(s):  
Erna Imperatore Blanche ◽  
Jesus Diaz ◽  
Tanya Barretto ◽  
Sharon A. Cermak

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512505149p1-7512505149p1
Author(s):  
Karla Ausderau ◽  
Brittany St John ◽  
Libby Hladik ◽  
Shannon Kant ◽  
Jessica Muesbeck ◽  
...  

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. The purpose of the study was to examine the effectiveness of a parent-mediated, in-home feeding intervention (parent training, direct intervention, and parent coaching) over 6 months for families with children with autism spectrum disorder (ASD). The findings support preliminary evidence that the intervention improves eating skills and mealtime behaviors in children with ASD and the need for more targeted feeding interventions for children with ASD that involve the parents in the natural context of the home. Primary Author and Speaker: Karla Ausderau Additional Authors and Speakers: Brittany St John, Libby Hladik, Shannon Kant, Jessica Muesbeck, and Holly Romaniak


Author(s):  
Ana Isabel González-Herrera ◽  
David Pérez-Jorge ◽  
Yesenia Díaz-Fuentes ◽  
María del Carmen Rodríguez-Jiménez ◽  
Eva Ariño-Mateo

AbstractMany academics working in the field of education have written about children with autism spectrum disorder (ASD) and its variant, specifically Asperger’s Syndrome. This research aims to analyze and assess the studies and psycho-pedagogical actions developed to understand the actual experience of the families around the stress derived from the presence of a child with ASD. To this end, the strategies used by the families to deal with this situation should be assessed. This paper presents a systematic review based on an exhaustive search in key databases involving a total of 16 updated studies, published between 2010 and 2020, and a selection process that looked at results from five perspectives: causes of stress, strategies used by fathers, mothers, and siblings to manage the stress, more frequent intervention models, and the importance of the family–school relationship in coping with the reality and needs of these children.


2020 ◽  
Vol 2 ◽  
pp. 73-82
Author(s):  
China I. Parenteau ◽  
Stephen Bent ◽  
Bushra Hossain ◽  
Yingtong Chen ◽  
Felicia Widjaja ◽  
...  

With the rise of the COVID-19 pandemic and shelter-in-place, families with children with autism spectrum disorder (ASD) face a unique set of challenges related to a diverse set of issues. A qualitative study was conducted in the form of semi-structured interviews from fifteen parents of children and adolescents from a non-public school for children with ASD. Questions covered the following topic areas: general COVID-19 experiences and concerns, changes in the child’s mood and behavior, changes in parent mood and behavior, and coping/advice. Quotes and descriptions from the participants were reviewed and grouped into thematic areas. Findings showed that parents of children with ASD are facing a wide range of challenges, including explaining COVID-19 and safety precautions to their child in a comprehensible way, assisting with e-learning, and guiding their child back into social situations and the community. As children with ASD have difficulties with transitions, parents stated the importance of creating structure in the home by creating schedules and boundaries, while allowing for flexibility as to not over enforce the rigidity children with autism often face. Advice on coping with the additional stressors were also shared. Parents recommended finding time for themselves to reset, utilizing support systems, and reflecting on daily pleasures as positive coping mechanisms. This study aimed to both develop an initial guide for families, teachers and clinicians caring for children with ASD and to create awareness in the community about the challenges presented by COVID-19 and shelter-in-place.


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