Go to Fight! parents' experiences in caring for their disabled child / Ir à Luta! vivências dos pais nos cuidados do filho com deficiência

The objective was to understand the experience of parents in caring for children with disabilities. The Grounded Theory was adopted as a methodological framework, 9 parents of children and adults with intellectual or multiple disabilities were interviewed, between August/2015 and June/2016. The categories were obtained: Pre, peri, post-natal aspects, Posture assumed by the professional, Go to Fight! and Another world. It is, therefore, a parenting that is configured as these parents enter the Another world, which leads them to adjust their practices and beliefs about their child, about themselves and the universe of disability, sometimes under a perception of disability as a social disadvantage and incapacity, having as an intervening factor the Posture assumed by the professional, thus knowing these experiences from the GT allows: the improvement of care practices for these parents and their children, the planning of actions psychoeducational from a social perspective of disability in order to empower them and guide them about aspects of their children's development, enabling a look beyond the diagnosis and a more positive family adaptation.

Evaluation of Psychosocial Pathways to Family Adaptation of Chinese Patients With Liver Cancer Using the McCubbin's Family Resilience Model

Background and Aim: With the prolonged survival time of patients with liver cancer, these families may face tremendous pressure and development dilemmas that can easily lead to family adaptation crises. Correspondingly, family adaptation crises adversely affect the quality of life of patients and family members. Basing on McCubbin's resilience model of family stress, adjustment, and adaptation, and considering the key factors affecting family resilience based on a review of literature, this study involved a construction of a family adaptation influencing factors model in Chinese liver cancer patients, which was then verified and revised.Methods: This cross-sectional study was conducted between August and December 2020. Using convenience sampling, we selected 265 liver cancer families from the liver tumor center of a teaching hospital affiliated with a university in Shanghai, China. Data from 252 patients with liver cancer and their caregivers were used to identify the factors and pathways associated with family adaptation. The relationships were modeled using structural equations.Results: A total of 265 liver cancer families participated in the survey, and 252 valid questionnaires were returned, with a response rate of 95.09%. The pathway regression coefficients of six factors (family burden, individual resilience, family problem-solving and coping, inner family support, outer family social support, and family function) in the model were found to be statistically significant (P < 0.05), indicating that all of them were significantly associated with family adaptation. Among them, inner family support, outer family social support, and family function were direct influencing factors, while the others were indirect. The path coefficients of the total effect of the determinants on family adaptation were as follows (from largest to smallest): individual resilience (0.562), family function (0.483), outer family social support (0.345), family burden (−0.300), inner family support (0.293), family problem-solving and coping (0.127).Conclusions: Our findings suggest that clinical nurses should not only pay particular attention to direct influencing factors, develop strategies to strengthen the overall family function, encourage patients and caregivers to utilize inner family and outer family social support, but should also consider indirect influence factors, focus on the vital role of the individual, and promote patients' and caregivers' personal and family coping ability.

Adaptação parental ao filho com deficiência: revisão sistemática da literatura

Quando nasce uma criança com deficiência, é necessária a reidealização do filho para que os pais possam lidar com as suas limitações e atender as suas demandas, resultando em uma adaptação parental adequada ao filho real. O presente artigo objetivou realizar uma revisão sistemática sobre a adaptação parental. Para tanto, investigaram-se as bases de dados Pubmed, BVS, Scopus e Cochrane, utilizando os termos Family adaptation, family impact, disabled children, no período de agosto a setembro de 2017. Foram analisados 21 artigos completos. Os resultados apontam que as famílias com um(a) filho(a) com alguma deficiência enfrentam inúmeros desafios, afetando diretamente a adaptação familiar e as estratégias de enfrentamento. Foram elaboradas três categorias para apresentar os resultados: impacto familiar ante o diagnóstico da deficiência; estados emocionais parentais e consequências sociais; fatores que interferem na adaptação familiar e nas estratégias de enfrentamento. Foi possível concluir que são aspectos centrais na adaptação parental: a) a identificação precoce de fatores positivos e negativos que impactam no processo de reidealização do filho; b) a abordagem interventiva precoce centrada na família, que considere esses fatores objetivando a busca de um enfrentamento focado na resolução de problemas; c) a criação de condições sociais de apoio às famílias.

SUBJECTIVE MARITAL WELLBEING OF PERSONS WITH DIFFERENT LEVELS OF EMOTIONAL INTELLIGENCE

Purpose. The aim of the article is theoretical and empirical study of the indicators of marital satisfaction in young families in connection with the parameters of emotional intelligence.Methods. The following questionnaires were used for the research: the scale of family adaptation and cohesion (D. Olson, J. Porter, I. Lavi), the questionnaire “Satisfaction with marriage” (V. Stolin, T. Romanova, G. Butenko), the scale of marital satisfaction (D. Olson), the questionnaire “Emotional Intelligence” by D. Lucin and the questionnaire “Emotional Intelligence”, J. Mayer – P. Selovey – D. Caruso. Methods of processing empirical data were: descriptive analysis, Pearson’s correlation analysis, comparative analysis by Kraskel-Wallis.Results. The study involved 110 married people who are in the young family stage. It was found that the marital satisfaction of the subjects varies from medium to high. Relationships are characterized by mergers, loyalty, the desire for intimacy in the future, as well as the flexibility of the system of rules.It has been found that there is a significant correlation between subjective well-being in a marriage and the level of emotional intelligence. People who are better able to perceive, identify and evaluate emotions, as well as those who are able to recognize emotions, will have a higher level of marital satisfaction. Marital satisfaction rates are significantly higher in subjects with a medium level of emotional intelligence, but do not differ in subjects with low and high levels of EI.Conclusions. The study proved that the level of emotional intelligence is a significant correlate of marital satisfaction. Higher satisfaction rates are inherent in individuals who evaluate their own ideas about the ability to understand and manage emotions, both their own and others’, as average. It has been shown that influencing the emotional intelligence of young families can influence more realistic expectations of marital relationships and thus increase marital satisfaction, which is an important prognostic factor in maintaining a family.Key words: marital satisfaction, emotional competence, family adaptation, family cohesion, statistical analysis. Метою статті є теоретичне обґрунтування й емпіричне вивчення показників задоволеності шлюбом у молодих сім’ях у зв’язку з параметрами емоційного інтелекту.Методи. Для дослідження було використано такі методики, як шкала сімейної адаптації та згурто-ваності (Д. Олсон, Дж. Портер, І. Лаві), методика «Задоволеність шлюбом» (В. Столін, Т. Романова, Г. Бутенко), шкала подружньої задоволеності (Д. Олсон), опитувальник «Емоційний інтелект» Д. Люсіна та методика «Емоційний інтелект», Дж. Майєр – П. Селовей – Д. Карузо. Для оброблення емпіричних даних використано дискриптивний, кореляційний аналіз за критерієм Спірмена, порівняльний аналіз за критерієм Краскела-Уолісса.Результати. У дослідженні взяли участь 110 одружених осіб, котрі перебувають на етапі молодої сім’ї.Виявлено, що подружня задоволеність досліджуваних варіює від середньої до високої. Стосунки характеризуються злиттям, лояльністю, прагненням до близькості в майбутньому, а також до гнучкості системи правил.З’ясовано, що існує прямий значущий кореляційний зв’язок між суб’єктивним благополуччям у подружжі та рівнем емоційного інтелекту. Вищий рівень подружнього задоволення буде в осіб, які краще здатні сприймати, ідентифікувати й оцінювати емоції, а також тих, хто здатен розпізнавати емоції, що сприяють більш ефективному виконанню різних діяльностей.Показники подружньої задоволеності суттєво вищі у досліджуваних із середнім рівнем емоційного інтелекту, проте не відрізняються у досліджуваних із низьким і високим рівнем ЕІ.Висновки. Упроведеному дослідженні доведено, що показники емоційного інтелекту є корелятами подружньої задоволеності. Вищі показники задоволеності притаманні особам, які оцінюють власні уявлення про здатність до розуміння та керування емоціями, як власними, так і чужими, як середні.Доведено, що, впливаючи на розвиток параметрів емоційного інтелекту членів молодих сімей, можна вплинути на більш реалістичні очікування щодо подружніх стосунків, збільшити рівень задоволеності шлюбом, що є важливим прогностичним чинником збереження сім’ї.Ключові слова: подружня задоволеність, емоційна компетентність, сімейна адаптація, сімейна згуртованість, статистичний аналіз.

Adaptation, family cohesion and happiness among tenth-grade students in Irbid governorate

This study aimed to identify the relationship between adaptation, family cohesion and happiness among tenth grade students in Irbid Governorate, and to gauge the differences between them according to gender, the level of mother’s education, and the level of father’s education, based on a sample of (381) students. The results of the study showed that there was a positive statistically significant relationship between adaptation, family cohesion, and degrees of happiness. The result also showed that there were statistically significant differences in feeling happy attributable to the gender variable and the level of the father's education, in favor of male variable whose educational level is less than the secondary education. The results showed that there were statistically significant differences attributable to the gender variable in family adaptation, and the differences were in favor of males. And there were statistically significant differences attributable to the variable level of mother’s education in family adaptation; as well as there were statistically significant differences attributed to the variable level of father’s education in all fields. The results showed that there was a statistically significant effect of happiness on cohesion and family adaptation, which means that increase degree in happiness, will lead to an increase in family cohesion and adaptation by (0.0806).