Dangers from Within? Looking Inwards at the Role of Maladministration as the Leading Cause of Health Data Breaches in the UK

2017 ◽  
pp. 205-239 ◽  
Author(s):  
Leslie Stevens ◽  
Christine Dobbs ◽  
Kerina Jones ◽  
Graeme Laurie
Keyword(s):  
Health Data ◽  
Data Breaches ◽  
The Uk

scholarly journals Sharing confidential health data for research purposes in the UK: where are ‘publics’ in the public interest?

2020 ◽  
Vol 16 (2) ◽  
pp. 249-265 ◽  
Author(s):  
Annie Sorbie
Keyword(s):  
Public Interest ◽  
Health Research ◽  
Health Data ◽  
The Public ◽  
Social Legitimacy ◽  
The Law ◽  
The Uk ◽  
Multiple Actors ◽  
Research Endeavour

In this article I respond to the tendency of the law to approach ‘the public interest’ as a legal test, thereby drawing the criticism that this narrow notion of what purports to be in the public interest is wholly disconnected from the views of actual publics, and lacks social legitimacy. On the other hand, to simply extrapolate outputs from public engagement work into policy (or indeed law) is equally problematic, and risks being at best ineffective and at worst reinforcing existing inequalities. Given this apparent disconnect between these conceptions of the public interest, and the shortfalls inherent in each, this article scrutinises this disjuncture. I argue that the application of a processual lens to the construction of the legal and regulatory role of the public interest sheds light on how legal notions of the public interest, and attitudes of actual publics towards data sharing, might be reconciled. I characterise this processual approach as being iterative and flexible, specifically drawing attention to the way that multiple actors, processes and interests interact, change and evolve over time in the health research endeavour. This approach is elaborated through two case studies that illustrate how the public interest appears in law (broadly conceived). Its application provides novel insights into the ways in which the public interest can be crafted within and beyond the law to better inform the development of health research regulation.

scholarly journals How can we know what the public think about administrative data research

2018 ◽  
Vol 3 (2) ◽  
Author(s):  
Carol Porteous
Keyword(s):  
Administrative Data ◽  
Public Engagement ◽  
Public Attitudes ◽  
The Public ◽  
Data Breaches ◽  
The Uk ◽  
Public Views ◽  
News Headlines ◽  
Key Questions

BackgroundThere has, in recent years been much discussion in administrative data research about communicating with the public about the research undertaken, listening to the public and trying to understand public views and questioning whether the public have trust in the work undertaken using publicly collected administrative data. ObjectivesTo explore the role of public engagement in dialogue with attendees to try and address whether we are missing the point and value of public engagement. The views of publics are not homogenous, static and also respond to news headlines and data breaches and we can never know the views of 65 million people across the UK, so why do we worry so much about the views of the public and how can we ever know what publics think? FindingsSummarising work undertaken in examining public attitudes and reflections on five years of working in public engagement in administrative data research will explore key questions with the audience including. Is there value in considering the views of the public, and if so what is the value? How is the public constituted in its relationships with academia and do the public play a key position in the role of universities within our society?

Management of deradicalisation in the UK: reflections of a clinical psychologist

2019 ◽  
Vol 4 (1) ◽  
Author(s):  
Feryad A. Hussain
Keyword(s):  
Clinical Psychologist ◽  
Healthcare Team ◽  
Psychosocial Issues ◽  
Muslim Community ◽  
Home Office ◽  
Terrorist Groups ◽  
Violent Action ◽  
Clinical Counselling ◽  
The Uk

Radicalisation to violent action is not just a problem in foreign lands. Research has identified numerous politico–psychosocial factors to explain why young people from the UK are now joining terrorist groups such as ISIS. Our understanding has been expanded by the accounts of “returnees” who have subsequently either self-deradicalised or joined a government deradicalisation programme in the role of an Intervention Provider (IP). These individuals are now key to the deradicalisation programme. This article presents the reflections of a clinical psychologist who worked within a social healthcare team managing psychosocial issues related to radicalisation, in conjunction with an allocated IP. The project involved individuals from the Muslim community and, as such, issues discussed are specific to this group. It is acknowledged that the process in general is universally applicable to all groups though specifics may vary (under Trust agreement, details may not be discussed). This article also aims to share basic information on the current Home Office deradicalisation programme and raises questions about the current intervention. It also offers reflections on how the work of IPs may be facilitated and supported by clinical/counselling psychologists and psychotherapists.

Monitoring the marine environment for small round structured viruses (SRSVS): a new approach to combating the transmission of these viruses by molluscan shellfish

1998 ◽  
Vol 38 (12) ◽  
pp. 51-56 ◽  
Author(s):  
K. Henshilwood ◽  
J. Green ◽  
D. N. Lees
Keyword(s):  
Enteric Virus ◽  
Winter Period ◽  
Rt Pcr ◽  
Cloning And Sequencing ◽  
New Approach ◽  
Human Enteric Virus ◽  
Different Strains ◽  
The Uk ◽  
Public Health Protection

This study investigates human enteric virus contamination of a shellfish harvesting area. Samples were analysed over a 14-month period for Small Round Structured Viruses (SRSVs) using a previously developed nested RT-PCR. A clear seasonal difference was observed with the largest numbers of positive samples obtained during the winter period (October to March). This data concurs with the known winter association of gastroenteric illness due to oyster consumption in the UK and also with the majority of the outbreaks associated with shellfish harvested from this area during the study period. RT-PCR positive amplicons were further characterised by cloning and sequencing. Sequence analysis of the positive samples identified eleven SRSV strains, of both Genogroup I and Genogroup II, occurring throughout the study period. Many shellfish samples contained a mixture of strains with a few samples containing up to three different strains with both Genogroups represented. The observed common occurrence of strain mixtures may have implications for the role of shellfish as a vector for dissemination of SRSV strains. These results show that nested RT-PCR can identify SRSV contamination in shellfish harvesting areas. Virus monitoring of shellfish harvesting areas by specialist laboratories using RT-PCR is a possible approach to combating the transmission of SRSVs by molluscan shellfish and could potentially offer significantly enhanced levels of public health protection.

scholarly journals Accommodation environments and student mental health in the UK: the role of relational spaces

2021 ◽  
pp. 1-8
Author(s):  
Joanne D. Worsley ◽  
Paula Harrison ◽  
Rhiannon Corcoran
Keyword(s):  
Mental Health ◽  
Student Mental Health ◽  
The Uk

scholarly journals Solidarity with disabled people in times of crisis: A comparative analysis of Italy and the UK

2021 ◽  
pp. 026858092199450
Author(s):  
Nicola Maggini ◽  
Tom Montgomery ◽  
Simone Baglioni
Keyword(s):  
Social Trust ◽  
Important Determinant ◽  
Social Embeddedness ◽  
Disabled People ◽  
The Social ◽  
Religious Piety ◽  
Active Nature ◽  
The One ◽  
The Uk

Against the background of crisis and cuts, citizens can express solidarity with groups in various ways. Using novel survey data this article explores the attitudes and behaviours of citizens in their expressions of solidarity with disabled people and in doing so illuminates the differences and similarities across two European contexts: Italy and the UK. The findings reveal pools of solidarity with disabled people across both countries that have on the one hand similar foundations such as the social embeddedness and social trust of citizens, while on the other hand contain some differences, such as the more direct and active nature of solidarity in Italy compared to the UK and the role of religiosity as an important determinant, particularly in Italy. Across both countries the role of ‘deservingness’ was key to understanding solidarity, and the study’s conclusions raise questions about a solidarity embedded by a degree of paternalism and even religious piety.

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