The 9th Meeting of the European Society for Psychosocial Oncology in Amsterdam: Psychosocial interventions in cancer patients —how reasonable is a demand for effectiveness?

1996 ◽  
Vol 4 (6) ◽  
pp. 465-467
Author(s):  
F. Stiefel

2011 ◽  
Vol 35 (2) ◽  
pp. 156 ◽  
Author(s):  
Nicole M. Rankin ◽  
Jennifer A. Barron ◽  
Lisbeth G. Lane ◽  
Catherine A. Mason ◽  
Sue Sinclair ◽  
...  

There is limited published evidence about how psychosocial services should be organised or routinely integrated into cancer services to ensure that cancer patients receive appropriate psychological, social and emotional support during periods of diagnosis, treatment and follow-up. This paper reports on a survey of 26 oncology services in New South Wales, Australia, to examine the current provision of psychosocial oncology services. The aim of the study was to gather baseline data and information about the provision of services and to identify significant challenges associated with the development and implementation of psychosocial oncology services. A total of 42% of staff at psycho-oncology services reported they could provide adequate psycho-oncology services, but 58% of sites said they could provide either only limited (27%) or very limited (31%) services. We found that services frequently identified challenges such as insufficient funding to employ skilled staff to provide psychosocial interventions, inadequate data to demonstrate the effectiveness of psychosocial interventions and, at times, lack of space to allow privacy for patient consultations. Future needs identified were strategic planning of psychosocial oncology services as part of broader cancer service plans, leadership of psychosocial oncology services, cohesive teams using agreed patient pathways or tools and integration into multi-disciplinary cancer teams. What is known about the topic? Psychosocial oncology services provide vital psychological interventions and social programs that can significantly improve patients’ adjustment to the experience of cancer. Limited evidence from other countries suggests there are significant challenges in developing and delivering quality, evidence-based psychosocial oncology services in a coordinated, cohesive and timely manner. Little is known about these services in the Australian context or the challenges they face. What does this paper add? This paper presents baseline information about the structure of psychosocial oncology services in NSW and identifies the significant challenges faced by these services. It describes these challenges with regard to service structures, availability and provision of services, screening for patient distress, strategic planning and funding, leadership and delivery-focussed issues. What are the implications for practitioners? There is a need for strategic planning of psychosocial oncology services as part of broader cancer service plans. Identified leadership of psychosocial oncology services and cohesive psychosocial teams that use agreed patient pathways or tools would be greatly beneficial, as would integration of psychosocial staff into multi-disciplinary teams. The findings may enhance quality improvement efforts in the development and delivery of psychosocial support for cancer patients, their families and carers.



Author(s):  
Gary Rodin ◽  
Sarah Hales

This chapter provides an overview of the foundational contributions of early leaders in psychosocial oncology and palliative care that informed the development of the Managing Cancer and Living Meaningfully (CALM) intervention. This includes the collective works of such pioneers as Kübler-Ross, Glaser and Strauss, and Pattison, which were instrumental in the development of psychosocial interventions such as CALM. The research conducted by our team with advanced cancer patients and their families over two decades is also described, highlighting the longitudinal Will to Live Study. In that study over 700 patients with advanced cancer were assessed at baseline and over 400 were followed longitudinally until the end of life, deepening our understanding of their experience over the trajectory of this disease. The findings of this research confirmed the need for an intervention such as CALM and helped to shape its nature and form.



2019 ◽  
Author(s):  
Urska Kosir ◽  
Milan Wiedemann ◽  
Jennifer Wild ◽  
Lucy Bowes

This cross-sectional pilot study assesses the feasibility of conducting online research into cognitive coping mechanisms in AYA cancer populations. Twenty-one participants, aged 18 - 39 years, answered questionnaires about mental defeat, rumination, cancer worry, anxiety, and experience participating in such research. Seven participants scored in the clinical range for anxiety. Cancer-related worry was common. Rumination and mental defeat were positively associated with anxiety. The participants reported the length and type of questions to be appropriate and not distressing. Findings may inform future research into cognitive coping mechanisms, which could aid the development of psychosocial interventions for young cancer patients.









2019 ◽  
Vol 31 (3) ◽  
pp. 227-241
Author(s):  
Melike Ayca Ay ◽  
Imatullah Akyar

Introduction: In some countries, family members are not involved in routine pediatric cancer psychosocial care although it is essential. This integrative review aims to determine the extent of research on family members of pediatric cancer patients in Turkey. Method: Four main keywords were used: parent/sibling/family, child/pediatric, cancer and psychosocial outcomes to search articles on PubMed, EKUAL, ULAKBİM, WOS databases (limited to 1997-2017). Among first 317 hits, 284 records were excluded. Of 33 eligible articles, 14 were excluded due to sample characteristics. Results: Research on psychosocial effects of pediatric cancer on family members is mostly descriptive and offers moderate-quality evidence. The reported psychosocial effects are (1) depression, anxiety, hopelessness, acceptance; (2) burden of care, quality of life, posttraumatic stress disorder; and (3) need for social support, information. Discussion: This study will contribute to the literature and help for the planning of protective psychosocial interventions for family members of children with cancer in Turkey.



2010 ◽  
Vol 28 (1) ◽  
pp. 23-42 ◽  
Author(s):  
Jeremy P. Shapiro ◽  
Kathleen McCue ◽  
Ellen N. Heyman ◽  
Tanujit Dey ◽  
Harold S. Haller


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