Early palliative care: current status of integration within German comprehensive cancer centers

2017 ◽  
Vol 25 (8) ◽  
pp. 2577-2580 ◽  
Author(s):  
Julia Berendt ◽  
Stephanie Stiel ◽  
Friedemann Nauck ◽  
Christoph Ostgathe
Keyword(s):  
Palliative Care ◽  
Current Status ◽  
Cancer Centers ◽  
Early Palliative Care ◽  
Comprehensive Cancer Centers

Screening for Palliative Care Needs: Pilot Data From German Comprehensive Cancer Centers

2021 ◽  
pp. OP.20.00698
Author(s):  
Carmen Roch ◽  
Maria Heckel ◽  
Birgitt van Oorschot ◽  
Bernd Alt-Epping ◽  
Mitra Tewes
Keyword(s):  
Palliative Care ◽  
Human Resources ◽  
Structural Characteristics ◽  
Physical Symptoms ◽  
Screening Tools ◽  
Current Status ◽  
Care Needs ◽  
Cancer Centers ◽  
Comprehensive Cancer Centers ◽  
Palliative Care Needs

PURPOSE: Guidelines recommend several screening tools to identify patients with complex palliative needs. This diversity and lack of structural recommendations offer a wide scope for implementing screening. Against this background, the current status of implementation at German Comprehensive Cancer Centers (CCCs) funded by the German Cancer Aid has not yet been investigated. METHODS: e-mail survey of the 17 hospital sites of the 13 CCCs. The questionnaire asked for structural characteristics of the centers as well as preconditions of the screening process. Structurally established screening procedures (one item) and standardized workflows, modes of performance, screening tools (four items), modes of training how to screen, and responsibilities (two items) were assessed. RESULTS: In a 2-month period, 15 hospital sites responded; seven hospital sites conducted a palliative care needs (PCN) screening. Only one hospital site carried out PCN screening in almost all oncology departments, but only with the distress thermometer. Other hospital sites determined palliative needs by assessing physical symptoms using the Integrated Palliative Care Outcome Scale or the Minimal Documentation System, and two hospital sites combined tools to determine both physical and psychological stress. The type of screening varied from paper-pencil–based to tablet computer–based documentation. The main barriers to implementation were identified as a lack of human resources and a lack of structural conditions. CONCLUSION: There is a lack of consensus among palliative care specialists and oncologists in the CCCs supported by the German Cancer Aid in PCN screening as well as of structured guidelines and the professional association. Structural requirements should be adapted to these needs, which include both technical and human resources. A combined psycho-oncologic and palliative care screening might help to formulate best practice recommendations.

Seventeen years of progress for supportive care services: A resurvey of National Cancer Institute–designated comprehensive cancer centers

2014 ◽  
Vol 13 (4) ◽  
pp. 917-925 ◽  
Author(s):  
Sheila L. Hammer ◽  
Karen Clark ◽  
Marcia Grant ◽  
Matthew J. Loscalzo
Keyword(s):  
Palliative Care ◽  
Supportive Care ◽  
National Cancer Institute ◽  
Advisory Council ◽  
Current Status ◽  
Distress Screening ◽  
Cancer Centers ◽  
Care Services ◽  
Comprehensive Cancer Centers ◽  
Question Survey

AbstractObjective:We replicated a 1994 study that surveyed the state of supportive care services due to changes in the field and the increased need for such services. We provide an updated assessment, comparing the changes that have occurred and describing the current status of supportive care services in comprehensive cancer settings.Method:We used Coluzzi and colleague's 60-question survey from their 1995 Journal of Clinical Oncology article to frame the 98-question survey employed in the current study. Medical and palliative care directors for the 2011 National Cancer Institute (NCI) comprehensive cancer centers were surveyed regarding their supportive care services and their subjective review of the overall effectiveness of the services provided.Results:We achieved a 76% response rate (n = 31). The data revealed increases in the number of cancer beds in the hospitals, the degree of integration of supportive care services, the availability of complementary services, and the number of pain and palliative care services offered. There was also an overall shift toward centers becoming more patient centered, as 65% reported now having a patient and family advisory council. Our findings revealed a growing trend to offer distress screening for both outpatients and inpatients. Medical and palliative care directors' evaluations of the supportive care services they offered also significantly improved. However, the results revealed an ongoing gap in services for end-of-life care and timely referrals for hospice services.Significance of results:Overall, both the quantity and quality of supportive care services in the surveyed NCI-designated cancer centers has improved.

Supportive care in cancer organization in France: State of the art.

2012 ◽  
Vol 30 (15_suppl) ◽  
pp. e19640-e19640
Author(s):  
Florian Scotte ◽  
Christian Herve ◽  
Roland Bugat ◽  
Fadila Farsi ◽  
Moise Namer ◽  
...  
Keyword(s):  
Palliative Care ◽  
Supportive Care ◽  
Cancer Centers ◽  
Treatment Side Effects ◽  
Comprehensive Cancer Centers ◽  
Medical Oncologists ◽  
French Speaking ◽  
The Mean ◽  
Pain Care ◽  
Mean Time

e19640 Background: Second Cancer Act was defined in France in December 2009 including enhancement of supportive care in Cancer (SCC). How are supportive care organized in France? Are patients informed about supportive treatment side effects? Methods: The AFSOS (French Speaking Association for Supportive Care in Cancer) conducted this observational study to evaluate practices, organizations and informations given to patients (pts) about SCC. Among 1621 french medical doctors (MD) caring cancer pts who were sent an adhoc questionnaire, 20% (330 MD including 44% medical oncologists) answered. Results: Three different organizations were described: Single MD, transversal team and specific structure specialized in global care (specifically developed in comprehensive cancer centers-CCC). Psycho-oncology, palliative care, nutrition and pain care were the four main items considered as supportive care. During their disease, 68% of pts are receiving SCC, presented by their MD (88%) or nurse devoted to announcement of disease and SCC information (57%). Supportive care is more dispensed during palliative period (90%) than at diagnosis (44%). Patients information is rather supplied during palliative care (85%) than at diagnosis (52%) using a specific questionnaire for outpatient (20%) or specific supportive care session (17%). 71% of cancer department have a cross team to provide supportive care, with specific SCC team particularly in CCC (62%; p=0.01)). 37% have inpatient specific units. Only 40% have a specific organization in home care connection, more in CCC than in public or private centers (respectively 69%, 45%, 20%; p=0.01). 73% use specific financial valorization of CSC activity. Adverse events information is dispensed to 54% of the pts for erythropoiesis stimulating agents (ASE), 74% for biphosphonates and 94% for opioids treatments, rather by medical oncologist than other specialists (p=0.01). Conclusions: Specific organization developed especially in comprehensive cancer centers seems to facilitate SCC organization and information to pts. In the mean time, recommendations include this information, involvement in supportive care team and methods have to be enhanced. Further results compared with patient point of views are expected.

scholarly journals Integrating Palliative Care Into Comprehensive Cancer Centers: Consensus‐Based Development of Best Practice Recommendations

2016 ◽  
Vol 21 (10) ◽  
pp. 1241-1249 ◽  
Author(s):  
Julia Berendt ◽  
Stephanie Stiel ◽  
Steffen T. Simon ◽  
Andrea Schmitz ◽  
Birgitt Oorschot ◽  
...  
Keyword(s):  
Palliative Care ◽  
Best Practice ◽  
Cancer Centers ◽  
Practice Recommendations ◽  
Comprehensive Cancer Centers

scholarly journals PALLIA ‐10, a screening tool to identify patients needing palliative care referral in comprehensive cancer centers: A prospective multicentric study ( PREPA ‐10)

2019 ◽  
Vol 8 (6) ◽  
pp. 2950-2961 ◽  
Author(s):  
Yann Molin ◽  
Caroline Gallay ◽  
Julien Gautier ◽  
Audrey Lardy‐Cleaud ◽  
Romaine Mayet ◽  
...  
Keyword(s):  
Palliative Care ◽  
Screening Tool ◽  
Multicentric Study ◽  
Cancer Centers ◽  
Comprehensive Cancer Centers

scholarly journals Developing a “toolkit” to measure implementation of concurrent palliative care in rural community cancer centers

2017 ◽  
Vol 16 (1) ◽  
pp. 60-72 ◽  
Author(s):  
Lisa Zubkoff ◽  
J. Nicholas Dionne-Odom ◽  
Maria Pisu ◽  
Dilip Babu ◽  
Imatullah Akyar ◽  
...  
Keyword(s):  
Palliative Care ◽  
Rural Areas ◽  
Assessment Tool ◽  
Metastatic Cancer ◽  
Lessons Learned ◽  
Newly Diagnosed ◽  
National Guidelines ◽  
Cancer Centers ◽  
Early Palliative Care ◽  
Implementation Costs

ABSTRACTObjective:Despite national guidelines recommending early concurrent palliative care for individuals newly diagnosed with metastatic cancer, few community cancer centers, especially those in underserved rural areas do so. We are implementing an early concurrent palliative care model, ENABLE (Educate, Nurture, Advise, Before Life Ends) in four, rural-serving community cancer centers. Our objective was to develop a “toolkit” to assist community cancer centers that wish to integrate early palliative care for patients with newly diagnosed advanced cancer and their family caregivers.Method:Guided by the RE-AIM (Reach, Effectiveness–Adoption, Implementation, Maintenance) framework, we undertook an instrument-development process based on the literature, expert and site stakeholder review and feedback, and pilot testing during site visits.Results:We developed four instruments to measure ENABLE implementation: (1) the ENABLE RE-AIM Self-Assessment Tool to assess reach, adoption, implementation, and maintenance; (2) the ENABLE General Organizational Index to assess institutional implementation; (3) an Implementation Costs Tool; and (4) an Oncology Clinicians' Perceptions of Early Concurrent Oncology Palliative Care survey.Significance of results:We developed four measures to determine early palliative care implementation. These measures have been pilot-tested, and will be integrated into a comprehensive “toolkit” to assist community cancer centers to measure implementation outcomes. We describe the lessons learned and recommend strategies for promoting long-term program sustainability.

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