Cross-cultural adaptation of the SWAL-QOL and the Sydney Swallow Questionnaire (SSQ) into French-Canadian and preliminary assessment for their use in an oculopharyngeal muscular dystrophy (OPMD) population

Abstract Purpose. Patient-reported outcomes (PRO) assessing dysphagia are considered an essential component of clinical trials to consider how patients feel and function in response to treatments. The selected PRO needs to be translated in several languages using a systematic process ensuring its validity and equivalence for use in multicenter clinical trials. The main objective was to conduct the French-Canadian cross-cultural adaptation of the SWAL-QOL (FC SWAL-QOL) and the SSQ (FC SSQ) among an oculopharyngeal muscular dystrophy (OPMD) population. Methods. The principles of the International Society for Pharmacoeconomics and Outcomes Research Task Force method were followed for the FC SWAL-QOL and the FC SSQ. Cognitive interviews were conducted with 28 participants with OPMD. Known groups validity was assessed by comparison of the FC SWAL-QOL and the FC SSQ scores between groups of participants with OPMD known to differ in dysphagia severity, according to their drinking test score (n=21). Results. Equivalence issues were addressed during the cognitive interviews. Scores on the FC SSQ differed between the two groups divided by drinking test scores suggesting good known groups validity. Only two scales of the FC SWAL-QOL showed known group validity; the difference in the mean composite score was not significant, but this could be due to the small sample size. Conclusion: The SWAL-QOL and the SSQ were successfully translated into French-Canadian and adapted to an OPMD population. Additional validation should be considered depending on the intended population. The FC SSQ was better at discriminating dysphagia severity in a small sample size of OPMD participants.

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Cross-cultural Adaptation of the Pelvic Girdle Questionnaire for the French-Canadian Population

Journal of Manipulative and Physiological Therapeutics ◽

10.1016/j.jmpt.2016.06.002 ◽

2016 ◽

Vol 39 (7) ◽

pp. 494-499 ◽

Cited By ~ 9

Author(s):

Marie-Pier Girard ◽

Andrée-Anne Marchand ◽

Britt Stuge ◽

Stephanie-May Ruchat ◽

Martin Descarreaux

Keyword(s):

Cultural Adaptation ◽

Cross Cultural ◽

Pelvic Girdle ◽

French Canadian ◽

Cross Cultural Adaptation ◽

Canadian Population

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Cross-Cultural Adaptation of the Cardiff Fertility Knowledge Scale and the Fertility Status Awareness Tool for the French-Canadian Population

Journal of Obstetrics and Gynaecology Canada ◽

10.1016/j.jogc.2018.04.002 ◽

2019 ◽

Vol 41 (2) ◽

pp. 204-209

Author(s):

Claudine Blanchet ◽

Véronique Babineau ◽

Jacky Boivin ◽

Stephanie-May Ruchat

Keyword(s):

Cultural Adaptation ◽

Cross Cultural ◽

French Canadian ◽

Cross Cultural Adaptation ◽

Fertility Status ◽

Canadian Population ◽

Awareness Tool ◽

Knowledge Scale

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A cross-cultural adaptation of the Upper Limb Functional Index in French Canadian

Journal of Hand Therapy ◽

10.1016/j.jht.2013.12.005 ◽

2014 ◽

Vol 27 (3) ◽

pp. 247-253 ◽

Cited By ~ 6

Author(s):

Tokiko Hamasaki ◽

Louise Demers ◽

Johanne Filiatrault ◽

Ginette Aubin

Keyword(s):

Upper Limb ◽

Cultural Adaptation ◽

Cross Cultural ◽

French Canadian ◽

Functional Index ◽

Cross Cultural Adaptation

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French Canadian Cross-Cultural Adaptation of the Developmental Coordination Disorder Questionnaire '07: DCDQ-FC

Canadian Journal of Occupational Therapy ◽

10.2182/cjot.2011.78.5.7 ◽

2011 ◽

Vol 78 (5) ◽

pp. 318-327 ◽

Cited By ~ 19

Author(s):

Rose Martini ◽

Marie-France St-Pierre ◽

Brenda N. Wilson

Keyword(s):

Cultural Adaptation ◽

Developmental Coordination Disorder ◽

Parent Report ◽

Cross Cultural ◽

French Canadian ◽

Cross Cultural Adaptation ◽

Canadian Population ◽

Excellent Internal Consistency ◽

Low Sensitivity ◽

Coordination Disorder

Background. Parent-report measures, such as the Developmental Coordination Disorder Questionnaire'07 (DCDQ'07), are used to identify developmental coordination disorder (DCD) in children. Early identification of this condition is important to mitigate its social-emotional and health consequences. Unfortunately, few French-language assessments are available to therapists working with francophone populations. Purpose. The aim of this study was to undertake a formal translation of the English DCDQ'07 and begin to examine its psychometric properties. Methods. The translation was done using Beaton, Bombardier, and Guillemin's (2000) guidelines for cross-cultural adaptation. Methodologies described by Haccoun (1987) and Vallerand (1989) were used to address the psychometric qualities of the translation. Findings. The DCDQ'07 and its French translation (DCDQ-FC) are equivalent, with excellent internal consistency and test-retest reliability. Concurrent and construct validity were adequate for a screening measure; however, low sensitivity was obtained with both measures. Implications. The DCDQ-FC is a valid translation for use with a French Canadian population.

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