scholarly journals Assessing fatigue in children and adolescents: Psychometric validation of the German version of the PROMIS® Pediatric Short Form v2.0 - Fatigue 10a in school children and pediatric chronic pain patients

2021 ◽  
Author(s):  
Ariane Sommer ◽  
Susanne Grothus ◽  
Kamila Grochowska ◽  
Benedikt B. Claus ◽  
Lorin Stahlschmidt ◽  
...  
Keyword(s):  
Chronic Pain ◽  
Children And Adolescents ◽  
School Children ◽  
Convergent Validity ◽  
Short Form ◽  
Psychometric Validation ◽  
German Version ◽  
Pediatric Chronic Pain ◽  
Chronic Pain Patients ◽  
Pain Patients

Abstract Purpose Fatigue is a common symptom in children and adolescents. Its negative impact on health outcomes is even more pronounced in those with chronic pain. There is currently no fatigue measurement tool in German that is validated for both children and adolescents with and without chronic pain. Therefore, this study aimed to gather quantitative validity evidence to support the use of the German version of the PROMIS® Pediatric Short Form v2.0 - Fatigue 10a (PROMIS® F-SF) in the German pediatric general population as well as in German pediatric chronic pain patients. Methods The 10-item self-assessment questionnaire was validated in a sample of N = 1348 school children (9–18 years; 52.4% female) and N = 114 pediatric chronic pain patients (8–17 years; 63.3% female). Construct and convergent validity, reliability, and item and scale characteristics were examined. Results Confirmatory factor analyses showed sufficient model fit for the 1-factor model of the questionnaire (school sample: CFI = 0.94, RMSEA = 0.10, SRMR = 0.04; patient sample: CFI = 0.90, RMSEA = 0.14, SRMR = 0.05). Convergent validity was supported by weak-to-large significant correlations with sleep quality, health-related quality of life (HRQoL), and pain characteristics. The questionnaire had excellent internal consistency in both samples (α = 0.92 and α = 0.93). Sex differences and age distributions of the PROMIS® F-SF showed that girls reported significantly higher fatigue than boys and that fatigue increased with age. Conclusion The PROMIS® F-SF is a reliable instrument with good psychometric properties. Preliminary evidence is provided that the questionnaire validly measures fatigue in children and adolescents with and without chronic pain.

scholarly journals The Pain of Invisibility: A Perspective on the Treatment of Pediatric Chronic Pain

2020 ◽  
Vol 7 (6) ◽  
pp. 845-847
Author(s):  
Grace S Kao
Keyword(s):  
Chronic Pain ◽  
Children And Adolescents ◽  
Family Relationship ◽  
Pediatric Chronic Pain ◽  
Chronic Pain Patients ◽  
Pain Patients

Although chronic pain can be debilitating and severely impacting, it can also be an affliction many take on privately. For many chronic pain patients and their families, the toll of symptom invisibility is often a prominent concern. The article expounds upon the theme of “symptom invisibility” and the need for and practice of developing a validating provider–family relationship in the treatment of children and adolescents with chronic pain. Suggestions for therapeutic pathways to building adaptive validation are provided.

scholarly journals Neuropsychiatric Symptoms in Pediatric Chronic Pain and Outcome of Acceptance and Commitment Therapy

2021 ◽  
Vol 12 ◽  
Author(s):  
Leonie J. T. Balter ◽  
Camilla Wiwe Lipsker ◽  
Rikard K. Wicksell ◽  
Mats Lekander
Keyword(s):  
Chronic Pain ◽  
Neuropsychiatric Symptoms ◽  
Autistic Traits ◽  
Pain Interference ◽  
Adhd Symptoms ◽  
Psychological Inflexibility ◽  
Autism Traits ◽  
Pediatric Chronic Pain ◽  
Chronic Pain Patients ◽  
Pain Patients

Considerable heterogeneity among pediatric chronic pain patients may at least partially explain the variability seen in the response to behavioral therapies. The current study tested whether autistic traits and attention-deficit/hyperactivity disorder (ADHD) symptoms in a clinical sample of children and adolescents with chronic pain are associated with socioemotional and functional impairments and response to acceptance and commitment therapy (ACT) treatment, which has increased psychological flexibility as its core target for coping with pain and pain-related distress. Children and adolescents aged 8–18 years (N = 47) were recruited. Patients and their parents completed questionnaires pre- and post-ACT of 17 sessions. Correlational analyses and mixed-effects models were used to assess the role of autistic traits and ADHD symptoms in pretreatment functioning and ACT-treatment response. Outcome variables were degree to which pain interfered with daily activities (i.e., pain interference, sleep, and physical and school functioning), socioemotional functioning (i.e., depressive symptoms, emotional, and social functioning), psychological inflexibility, and pain intensity. Autistic traits and ADHD symptoms, pain frequency, and pain duration were measured at pretreatment only. Higher autistic traits were associated with greater pain interference, higher depression, and greater psychological inflexibility. Higher ADHD symptomatology was associated with greater pretreatment pain interference, lower emotional functioning, greater depression, and longer duration of pain. Across patients, all outcome variables, except for sleep disturbances and school functioning, significantly improved from pre- to post-ACT. Higher autistic traits were associated with greater pre- to post-ACT improvements in emotional functioning and sleep disturbance and non-significant improvements in pain interference. ADHD symptomatology was not associated with treatment outcome. The current results showed that neuropsychiatric symptoms in pediatric chronic pain patients are associated with lower functioning, particularly pain interfering with daily life and lower socioemotional functioning. The results suggest that not only pediatric chronic pain patients low in neuropsychiatric symptoms may benefit from ACT, but also those high in autism traits and ADHD symptoms. With the present results in mind, pediatric chronic pain patients higher in autistic traits may actually derive extra benefit from ACT. Future research could assess whether increased psychological flexibility, the core focus of ACT, enabled those higher in autism traits to cope relatively better with pain-related distress and thus to gain more from the treatment, as compared to those lower in autism traits. Moreover, to address specific effects of ACT, inclusion of an appropriate control group is key.

Clinical determinants of health-related quality of life in pediatric chronic pain patients

2005 ◽  
Vol 6 (3) ◽  
pp. S80
Author(s):  
B. Bursch ◽  
M. Meldrum ◽  
M. Nutkiewicz ◽  
L. Zeltzer ◽  
J. Heritage ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Pain ◽  
Determinants Of Health ◽  
Health Related Quality ◽  
Pediatric Chronic Pain ◽  
Chronic Pain Patients ◽  
Related Quality ◽  
Health Related ◽  
Pain Patients

scholarly journals Treatment Expectations for CAM Interventions in Pediatric Chronic Pain Patients and their Parents

2005 ◽  
Vol 2 (4) ◽  
pp. 521-527 ◽  
Author(s):  
Jennie C. I. Tsao ◽  
Marcia Meldrum ◽  
Brenda Bursch ◽  
Margaret C. Jacob ◽  
Su C. Kim ◽  
...  
Keyword(s):  
Chronic Pain ◽  
Treatment Adherence ◽  
Conventional Medicine ◽  
Pediatric Pain ◽  
Treatment Expectations ◽  
Child Treatment ◽  
Pediatric Chronic Pain ◽  
Chronic Pain Patients ◽  
Expected Benefits ◽  
Pain Patients

Patient expectations regarding complementary and alternative medicine (CAM) interventions have important implications for treatment adherence, attrition and clinical outcome. Little is known, however, about parent and child treatment expectations regarding CAM approaches for pediatric chronic pain problems. The present study examined ratings of the expected benefits of CAM (i.e. hypnosis, massage, acupuncture, yoga and relaxation) and conventional medicine (i.e. medications, surgery) interventions in 45 children (32 girls; mean age = 13.8 years ± 2.5) and parents (39 mothers) presenting for treatment at a specialty clinic for chronic pediatric pain. Among children, medications and relaxation were expected to be significantly more helpful than the remaining approaches (P< 0.01). However, children expected the three lowest rated interventions, acupuncture, surgery and hypnosis, to be of equal benefit. Results among parents were similar to those found in children but there were fewer significant differences between ratings of the various interventions. Only surgery was expected by parents to be significantly less helpful than the other approaches (P< 0.01). When parent and child perceptions were compared, parents expected hypnosis, acupuncture and yoga, to be more beneficial than did children, whereas children expected surgery to be more helpful than did parents (P< 0.01). Overall, children expected the benefits of CAM to be fairly low with parents' expectations only somewhat more positive. The current findings suggest that educational efforts directed at enhancing treatment expectations regarding CAM, particularly among children with chronic pain, are warranted.

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