Psychological distress and cognition among long-term survivors of adolescent and young adult cancer in the USA

2021 ◽  
Author(s):  
Elena O. Dewar ◽  
Chul Ahn ◽  
Salman Eraj ◽  
Brandon A. Mahal ◽  
Nina N. Sanford
Keyword(s):  
Psychological Distress ◽  
Young Adult ◽  
Adolescent And Young Adult ◽  
The Usa ◽  
Young Adult Cancer ◽  
Long Term Survivors

scholarly journals The long-term impact of cancer: Evaluating psychological distress in adolescent and young adult cancer survivors in Switzerland

2019 ◽  
Vol 28 (3) ◽  
pp. 577-585 ◽  
Author(s):  
Gisela Michel ◽  
Constanza François ◽  
Erika Harju ◽  
Silvia Dehler ◽  
Katharina Roser
Keyword(s):  
Psychological Distress ◽  
Young Adult ◽  
Cancer Survivors ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Long Term Impact ◽  
Young Adult Cancer

Limitations in health care access and utilization among long-term survivors of adolescent and young adult cancer

Cancer ◽  
2012 ◽  
Vol 118 (23) ◽  
pp. 5964-5972 ◽  
Author(s):  
Anne C. Kirchhoff ◽  
Courtney R. Lyles ◽  
Mark Fluchel ◽  
Jennifer Wright ◽  
Wendy Leisenring
Keyword(s):  
Health Care ◽  
Young Adult ◽  
Health Care Access ◽  
Adolescent And Young Adult ◽  
Care Access ◽  
Young Adult Cancer ◽  
Long Term Survivors

Health care experiences of long-term survivors of adolescent and young adult cancer

2016 ◽  
Vol 24 (9) ◽  
pp. 3967-3977 ◽  
Author(s):  
Sapna Kaul ◽  
Mark Fluchel ◽  
Holly Spraker-Perlman ◽  
Christopher F. Parmeter ◽  
Anne C. Kirchhoff
Keyword(s):  
Health Care ◽  
Young Adult ◽  
Adolescent And Young Adult ◽  
Health Care Experiences ◽  
Young Adult Cancer ◽  
Long Term Survivors

scholarly journals Self-reported late effects and long-term follow-up care among 1889 long-term Norwegian Childhood, Adolescent, and Young Adult Cancer Survivors (the NOR-CAYACS study)

2020 ◽  
Author(s):  
A. V. Mellblom ◽  
C. E. Kiserud ◽  
C. S. Rueegg ◽  
E. Ruud ◽  
J. H. Loge ◽  
...  
Keyword(s):  
Young Adult ◽  
Late Effects ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Follow Up Care ◽  
Long Term Follow Up ◽  
Young Adult Cancer

Abstract Purpose The majority of childhood, adolescent, and young adult cancer survivors (CAYACS) are at risk of late effects but may not receive long-term follow-up care for these. Here, we investigated (1) self-reported late effects, (2) long-term follow-up care, and (3) factors associated with receiving follow-up care in a population-based sample of Norwegian long-term CAYACS. Methods Survivors were identified by the Cancer Registry of Norway. All > 5-year survivors diagnosed between 1985 and 2009 with childhood cancer (CCS, 0–18 years old, excluding CNS), breast cancer (BC, stages I–III), colorectal cancer (CRC), leukemias (LEUK), non-Hodgkin lymphoma (NHL), or malignant melanoma (MM) at age 19–39 years were mailed a questionnaire (NOR-CAYACS study). Descriptive statistics and logistic regression models were used to analyze occurrence of late effects, long-term follow-up care for these, and associated factors. Results Of 2104 responding survivors, 1889 were eligible for analyses. Of these, 68% were females, with a mean age of 43 years at survey, on average 17 years since diagnosis, and diagnosed with CCS (31%), BC (26%), CRC (8%), NHL (12%), LEUK (7%), and MM (16%). Overall, 61.5% reported the experience of at least one late effect, the most common being concentration/memory problems (28.1%) and fatigue (25.2%). Sixty-nine percent reported not having received long-term follow-up care focusing on late effects. Lower age at survey (p = 0.001), higher education (p = 0.012), and increasing number of late effects (p = < 0.001) were associated with increased likelihood of follow-up care in the multivariate model. Conclusions The majority of survivors reported at least one late effect, but not receiving specific follow-up care for these. This indicates a need for structured models of long-term follow-up to ensure adequate access to care.

scholarly journals A Retrospective Evaluation of Risk of Peripartum Cardiac Dysfunction in Survivors of Childhood, Adolescent and Young Adult Malignancies

Cancers ◽  
2019 ◽  
Vol 11 (8) ◽  
pp. 1046
Author(s):  
Chait-Rubinek ◽  
Mariani ◽  
Goroncy ◽  
Herschtal ◽  
Wheeler ◽  
...  
Keyword(s):  
At Risk ◽  
Young Adult ◽  
Cancer Diagnosis ◽  
Cardiac Dysfunction ◽  
Adolescent And Young Adult ◽  
Cardiac Events ◽  
Increased Risk ◽  
Cardiac Assessment ◽  
Long Term Survivors

Long-term survivors of childhood, adolescent and young adult (AYA) malignancies with past exposure to potentially cardiotoxic treatments are at risk of peripartum cardiac dysfunction. Incidence and risk factors for peripartum cardiac dysfunction and maternal cardiac outcomes in this population were investigated. Eligible long-term survivors were aged <30 years at cancer diagnosis, with ≥1 pregnancy occurring ≥5 years after diagnosis. “Peripartum” cardiac events were defined as occurring within pregnancy or ≤5months after delivery. Cardiac events were classified “symptomatic” or “subclinical”. “Peripartum cardiomyopathy” (PPCM) was defined as symptomatic dysfunction without prior cardiac dysfunction. Of 64 eligible women, 5 (7.8%) had peripartum cardiac events: 3 symptomatic, 2 subclinical. Of 110 live births, 2 (1.8%, 95% CI 0.2–6.4) were defined as PPCM: Significantly greater than the published general population incidence of 1:3000 (p < 0.001), representing a 55-fold (95% CI 6.6–192.0) increased risk. Risk factor analyses were hypothesis-generating, revealing younger age at cancer diagnosis and higher anthracycline dose. Postpartum, cardiac function of 4 women (80%) failed to return to baseline. In conclusion, peripartum cardiac dysfunction is an uncommon but potentially serious complication in long-term survivors of paediatric and AYA malignancies previously treated with cardiotoxic therapies. Peripartum cardiac assessment is strongly recommended for at-risk patients.

scholarly journals Patterns of diagnostic imaging and associated radiation exposure among long-term survivors of young adult cancer: a population-based cohort study

BMC Cancer ◽  
2015 ◽  
Vol 15 (1) ◽  
Author(s):  
Corinne Daly ◽  
David R. Urbach ◽  
Thérèse A. Stukel ◽  
Paul C. Nathan ◽  
Wayne Deitel ◽  
...  
Keyword(s):  
Cohort Study ◽  
Young Adult ◽  
Diagnostic Imaging ◽  
Radiation Exposure ◽  
Population Based ◽  
Young Adult Cancer ◽  
Long Term Survivors

scholarly journals Long‐term survivors of childhood, adolescent and young adult non‐Hodgkin lymphoma

2019 ◽  
Vol 185 (6) ◽  
pp. 1099-1110 ◽  
Author(s):  
Matthew J. Ehrhardt ◽  
Jessica Hochberg ◽  
Kari L. Bjornard ◽  
Tara M. Brinkman
Keyword(s):  
Young Adult ◽  
Hodgkin Lymphoma ◽  
Adolescent And Young Adult ◽  
Non Hodgkin Lymphoma ◽  
Long Term Survivors

scholarly journals Long‐term survival among 5‐year survivors of adolescent and young adult cancer

Cancer ◽  
2020 ◽  
Vol 126 (16) ◽  
pp. 3708-3718 ◽  
Author(s):  
Amy M. Berkman ◽  
J. A. Livingston ◽  
Kelly Merriman ◽  
Michelle Hildebrandt ◽  
Jian Wang ◽  
...  
Keyword(s):  
Young Adult ◽  
Adolescent And Young Adult ◽  
Term Survival ◽  
Long Term Survival ◽  
Young Adult Cancer
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