scholarly journals Rehabilitation for children and adolescents after cancer: importance and implementation in Austria

2021 ◽  
Author(s):  
Gustav Fischmeister ◽  
David Riedl ◽  
Gabriele Sanio ◽  
Thomas Bogendorfer ◽  
Bernhard Holzner ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pediatric Patients ◽  
Inpatient Rehabilitation ◽  
Rehabilitation Center ◽  
Pediatric Rehabilitation ◽  
Quality Of Life Inventory ◽  
Before And After ◽  
Sick Children ◽  
After Cancer

SummaryUntil 2018 only adults had access to rehabilitation in Austria, but since then 5 centers for pediatric rehabilitation with different indications have been established with the goal of improving the health of sick children and young adults. The pediatric rehabilitation center “Leuwaldhof”, which is located south of Salzburg, is the only pediatric oncologic rehabilitation center in Austria. It offers rehabilitation and recovery for pediatric patients who suffered from malignancies, as well as for their families and siblings, but also for acute or chronic disease in metabolism or digestion. Cancer and its treatment significantly decrease the quality of life (QoL) of pediatric patients and their families. Families often have to split up during the months of chemotherapy if there are siblings in the family and very often it is the mother who stays with the sick child in the hospital. To facilitate recovery for the families in these difficult times, interdisciplinary and family-oriented inpatient rehabilitation has recently been implemented in Austria. To evaluate the improvements during the rehabilitation, the QoL of the patients and families has been routinely assessed since the opening of the center. In a specifically designed ‘life app’, patients and families complete the Pediatric Quality of Life Inventory (PedsQL; generic score and cancer module) before and after rehabilitation on their own electronic devices. Data of 98 patients and 124 parents between June 2018 and December 2019 show significant improvements in QoL. Our goal is to support the children and their families to help them return to normal life. Our results show rehabilitation helps achieve this important goal.

Updated clinical guidelines on the oral management of oncology patients

2019 ◽  
Vol 10 (2) ◽  
pp. 62-65
Author(s):  
Navdeep Kumar
Keyword(s):  
Quality Of Life ◽  
Cancer Treatment ◽  
Clinical Guidelines ◽  
Oral Care ◽  
Oncology Patients ◽  
Dental Services ◽  
Before And After ◽  
After Cancer

As the rate of dentists treating children and adults who present before and after cancer treatment increases, appropriate preventive regimens, timely oral care and improved dental services are crucial for improving patients’ quality of life. https://www.rcseng.ac.uk/dental-faculties/fds/publications-guidelines/clinical-guidelines/

FC26-03 - Comparison of quality of life and global function in chronic psychiatric patients before and after rehabilitation center in kashan (2009)

2011 ◽  
Vol 26 (S2) ◽  
pp. 1961-1961
Author(s):  
A. Ahmadvand ◽  
Z. Sepehrmanesh ◽  
R. Saei
Keyword(s):  
Quality Of Life ◽  
Psychiatric Patients ◽  
Rehabilitation Center ◽  
Global Function ◽  
Global Quality Of Life ◽  
Before And After ◽  
Quasi Experimental ◽  
The Mean ◽  
Time Of Admission

IntroductionThe concept of quality of life has considerably important in evaluation of efficacy of therapeutic and rehabilitation programs in all medical fields, especially psychiatric disabilities therefore any intervention which cannot improve patient’s quality of life, their effectiveness is doubt. The aim of this study is evaluation of quality of life of chronic mental patients, before and after residence in rehabilitation center.MethodesThis study is quasi experimental that carried out on all of patients in rehabilitation center in Kashan(Iran). Demographic, Quality of Life and Global Function Scale questionnaires were used at the time of admission and next 6 months. Data were analyzed by paired T-Test and correlation tests.ResultsThe mean of function level was at the time of admission 31/47+/−7/5 and after of 6 months 36/52+/−7/15, that this difference was significant (p = 0/0001).The mean of physical quality of life was 49/28+/−16/01 at the time of admission and after 6 months was 56/64+/−16/99, so the mean of mental quality of life at the time of admission was 37/20+/− 11/10 and after follow up 46/19+/−4/05.the mean of global quality of life was 42/75+/− 10/34 at the time of admission and after 6 months 54/59+/− 12/84, which this difference was significant.(p = 0/0001)In this study relation between age and quality of life was significant. (p = 0/0001)ConclusionResults showed that various factors may have role in this change. Such as type of provided services, quality of treatment, emotional support of staff and family, homogenous group therapy, organized life.

Regaining a satisfactory quality of life and predicting functional decline after major cancer surgery in older adults: The Geriatric Oncology Surgical Assessment and Functional rEcovery after Surgery (GOSAFE) study.

2020 ◽  
Vol 38 (15_suppl) ◽  
pp. 12051-12051
Author(s):  
Isacco Montroni ◽  
Giampaolo Ugolini ◽  
Nicole Saur ◽  
Antonino Spinelli ◽  
Siri Rostoft ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Functional Recovery ◽  
Functional Outcomes ◽  
Older Patients ◽  
Functional Decline ◽  
Geriatric Oncology ◽  
Cancer Surgery ◽  
Before And After ◽  
After Cancer

12051 Background: Older cancer patients value quality of life (QoL) and functional outcomes as much as survival but surgical studies lack specific data. The international, multicenter GOSAFE study (ClinicalTrials.gov NCT03299270) aims to evaluate patients’ QoL and functional recovery (FR) after cancer surgery and to assess predictors of FR Methods: GOSAFE prospectively collected functional and clinical data before and after major elective cancer surgery on senior adults (≥70 years). Surgical outcomes were recorded (30, 90, and 180 days post-operatively) with QoL (EQ-5D-3L) and FR (Activities of Daily Living (ADL), Timed Up and Go (TUG) and MiniCog), 26 centers enrolled patients from February 2017 to April 2019. Results: 942 patients underwent a major cancer resection. Median age was 78 (range 70-95); 52.2% males, ASA III-IV 49%. 934 (99%) lived at home, 51% lived alone, and 87% were able to go out. Patients dependent (ADL < 5) were 8%. Frailty was detected by means of G8 ≤14 in 68.8% and fTRST ≥2 in 37% of patients. Major comorbidities (CCI > 6) were reported in 36% and 21% had cognitive impairment according to MiniCog (2.2% self-reported). 25% had > 3 kg weight loss, 27% were hospitalized in the last 90 days, 54% had ≥3 medications (6% none). Postoperative overall morbidity was 39.1% (30 day) and 22.5% (90 day), but Clavien-Dindo III-IV complications were only 13.4% and 6.9% respectively. 30/90/180-day mortality was 3.6/6/8.9% (10/30/33% in patients with severe functional disability). At 3 months after surgery, QoL was stable/improved (mean EQ-5D index 0.78 was equivalent before vs. after surgery, while the EQ-5D VAS score > 60 raised from 74.3% at baseline to 80.2%, p < 0.01). 76.6% experienced postoperative FR/stability. Logistic regression analysis showed that ASA 3-4, CCI≥7 and CD III-IV complications are significantly associated with functional decline while a G8 > 14 has a positive association with functional recovery. Age is not associated with functional outcomes. Conclusions: The largest prospective study on older patients undergoing structured frailty assessment before and after major elective cancer surgery has shown that QoL remains stable/improves after cancer surgery. The majority of patients return to independence and G8 can predict functional recovery. Older patients with multiple comorbidities, high ASA score or postoperative severe complications are likely to functionally deteriorate after oncologic surgery Clinical trial information: NCT03299270 .

scholarly journals A Real-Time Mobile Intervention to Reduce Sedentary Behavior Before and After Cancer Surgery: Usability and Feasibility Study (Preprint)

2019 ◽  
Author(s):  
Carissa A Low ◽  
Michaela Danko ◽  
Krina C Durica ◽  
Abhineeth Reddy Kunta ◽  
Raghu Mulukutla ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Sedentary Behavior ◽  
Real Time ◽  
Perioperative Period ◽  
Cancer Surgery ◽  
System Usability Scale ◽  
Before And After ◽  
Mobile Intervention ◽  
After Cancer

BACKGROUND Sedentary behavior (SB) is common after cancer surgery and may negatively affect recovery and quality of life, but postoperative symptoms such as pain can be a significant barrier to patients achieving recommended physical activity levels. We conducted a single-arm pilot trial evaluating the usability and acceptability of a real-time mobile intervention that detects prolonged SB in the perioperative period and delivers prompts to walk that are tailored to daily self-reported symptom burden. OBJECTIVE The aim of this study is to develop and test a mobile technology-supported intervention to reduce SB before and after cancer surgery, and to evaluate the usability and feasibility of the intervention. METHODS A total of 15 patients scheduled for abdominal cancer surgery consented to the study, which involved using a Fitbit smartwatch with a companion smartphone app across the perioperative period (from a minimum of 2 weeks before surgery to 30 days postdischarge). Participants received prompts to walk after any SB that exceeded a prespecified threshold, which varied from day to day based on patient-reported symptom severity. Participants also completed weekly semistructured interviews to collect information on usability, acceptability, and experience using the app and smartphone; in addition, smartwatch logs were examined to assess participant study compliance. RESULTS Of eligible patients approached, 79% (15/19) agreed to participate. Attrition was low (1/15, 7%) and due to poor health and prolonged hospitalization. Participants rated (0-100) the smartphone and smartwatch apps as very easy (mean 92.3 and 93.2, respectively) and pleasant to use (mean 93.0 and 93.2, respectively). Overall satisfaction with the whole system was 89.9, and the mean System Usability Scale score was 83.8 out of 100. Overall compliance with symptom reporting was 51% (469/927 days), decreasing significantly from before surgery (264/364, 73%) to inpatient recovery (32/143, 22%) and postdischarge (173/420, 41%). Overall Fitbit compliance was 70% (653/927 days) but also declined from before surgery (330/364, 91%) to inpatient (51/143, 36%) and postdischarge (272/420, 65%). CONCLUSIONS Perioperative patients with cancer were willing to use a smartwatch- and smartphone-based real-time intervention to reduce SB, and they rated the apps as very easy and pleasant to use. Compliance with the intervention declined significantly after surgery. The effects of the intervention on postoperative activity patterns, recovery, and quality of life will be evaluated in an ongoing randomized trial.

Quality of life in pediatric patients before and after cosmetic camouflage of visible skin conditions

2014 ◽  
Vol 71 (5) ◽  
pp. 935-940 ◽  
Author(s):  
Michele L. Ramien ◽  
Sandra Ondrejchak ◽  
Roxanne Gendron ◽  
Afshin Hatami ◽  
Catherine C. McCuaig ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pediatric Patients ◽  
Before And After ◽  
Skin Conditions

scholarly journals Toward a comprehensive assessment of functional outcomes in pediatric patients with brain arteriovenous malformations: the Pediatric Quality of Life Inventory

2016 ◽  
Vol 18 (5) ◽  
pp. 611-622 ◽  
Author(s):  
Isaac Josh Abecassis ◽  
John D. Nerva ◽  
Jason Barber ◽  
Jason Rockhill ◽  
Richard G. Ellenbogen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Clinical Outcomes ◽  
Pediatric Patients ◽  
Performance Category ◽  
Quality Of Life Inventory ◽  
Related Quality ◽  
Health Related ◽  
Life Inventory

OBJECTIVE Brain arteriovenous malformations (bAVMs) are rare in pediatric patients but represent the most common cause of hemorrhagic stroke in this population. Pediatric patients demonstrate superior outcomes in comparison with adult patients with similar lesions and presentations. Most studies of clinical outcomes of pediatric bAVMs use the modified Rankin Scale (mRS), despite a lack of validation in pediatric patients. METHODS The authors interviewed the parents of 26 pediatric patients who underwent multimodality bAVM treatment and administered the Pediatric Quality of Life Inventory (PedsQL)—a well-validated tool for pediatric outcomes that quantifies performance in a physical, emotional, social, and school domains. They also reviewed clinical information from the patients' medical charts. Statistical analysis was performed using a log-transformed t-test, the Mann-Whitney exact test, the Kruskal-Wallis test, and Spearman correlation. In addition, the literature was reviewed for prior reports of clinical outcome of pediatric cases of bAVM. RESULTS The average PedsQL health-related quality of life score was 71 ± 24, with an average age at diagnosis of 12.5 years and an average follow-up period of 6.8 years. Seventeen patients (65%) presented with hemorrhage and 4 (15%) with seizures. PedsQL scores correlated strongly and at a statistically significant level (p < 0.001) with mRS, Pediatric Overall Performance Category (POPC), Pediatric Cerebral Performance Category (PCPC), and Glasgow Outcome Scale scores. Multivariate modeling validated special education, corrective devices, and cure status as significant predictors of PedsQL scores. Statistically significant risk factors for undergoing placement of a ventriculoperitoneal shunt included lower Glasgow Coma Scale motor scores on admission (p = 0.042), cerebellar location (p = 0.046), and nidus volume (p = 0.017). Neither treatment modality nor location statistically affected clinical outcomes at follow-up. CONCLUSIONS There have been few studies of long-term clinical outcomes of bAVM in pediatric patients, and previously published studies have used conventional metrics that have been validated in the adult population, such as the mRS. Although these metrics can serve as reasonable surrogates, an accurate understanding of overall health-related quality of life is contingent on utilizing validated toolsets, such as the PedsQL.

scholarly journals Depression, Anxiety, and Quality of Life of Breast Cancer Patients’ Husbands Before and After Treatment

2019 ◽  
Vol 12 (3) ◽  
pp. 36-46
Author(s):  
Akram Sajadian ◽  
Maryam Mazloom ◽  
Maryam Basiri ◽  
Shahpar Haghighat ◽  
Esmat Hashemi
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Cancer Patients ◽  
Behavioral Interventions ◽  
Three Dimensions ◽  
Breast Cancer Patients ◽  
Before And After ◽  
Posttreatment Period ◽  
After Cancer

Introduction: The incidence of breast cancer poses a variety of physical and psychological stresses to the patients and their families, especially husbands. The aim of this study was to evaluate anxiety, depression, and quality of life of husbands of breast cancer patients before and after cancer treatment. Methods: In this descriptive study, we recruited husbands of breast cancer patients (n = 142) under treatment at the Breast Cancer Clinic of the ACECR. The participants completed the Beck Depression Inventory, Beck Anxiety Inventory, and SF-36 before and after completion of their wives’ treatments. Results: The husbands had significantly lower anxiety (p < 0.001) and depression (p < 0.002) following their wives’ treatment However, their sexual satisfaction had declined at the posttreatment period. The mean scores on three dimensions of quality of life, i.e., physical functioning, general health perception, and mental health, were also declined after the treatment. Most of the husbands had more physical problems after the treatment of their spouses. Conclusion: It is necessary for health and medical organizations to provide extensive educational services and behavioral interventions to the patients and their families at different stages of diagnosis and treatment.

Sign in / Sign up

Export Citation Format

Share Document