scholarly journals A Scoping Review of Dementia Symptom Management in Persons with Dementia Living in Home-Based Settings

2019 ◽  
Vol 8 (4) ◽  
pp. 291-301 ◽  
Author(s):  
Catherine E. Schneider ◽  
Alycia A. Bristol ◽  
Abraham Brody
2021 ◽  
Author(s):  
Arshia Madni ◽  
TPPCR

This TPPCR commentary discusses the 2020 paper by Miller et al., “The use of telemedicine for home-based palliative care for children with serious illness: a scoping review” published in Journal of Pain and Symptom Management


Author(s):  
S. Joseph Sirintrapun ◽  
Ana Maria Lopez

Telemedicine uses telecommunications technology as a tool to deliver health care to populations with limited access to care. Telemedicine has been tested in multiple clinical settings, demonstrating at least equivalency to in-person care and high levels of patient and health professional satisfaction. Teleoncology has been demonstrated to improve access to care and decrease health care costs. Teleconsultations may take place in a synchronous, asynchronous, or blended format. Examples of successful teleoncology applications include cancer telegenetics, bundling of cancer-related teleapplications, remote chemotherapy supervision, symptom management, survivorship care, palliative care, and approaches to increase access to cancer clinical trials. Telepathology is critical to cancer care and may be accomplished synchronously and asynchronously for both cytology and tissue diagnoses. Mobile applications support symptom management, lifestyle modification, and medication adherence as a tool for home-based care. Telemedicine can support the oncologist with access to interactive tele-education. Teleoncology practice should maintain in-person professional standards, including documentation integrated into the patient’s electronic health record. Telemedicine training is essential to facilitate rapport, maximize engagement, and conduct an accurate virtual exam. With the appropriate attachments, the only limitation to the virtual exam is palpation. The national telehealth resource centers can provide interested clinicians with the latest information on telemedicine reimbursement, parity, and practice. To experience the gains of teleoncology, appropriate training, education, as well as paying close attention to gaps, such as those inherent in the digital divide, are essential.


Author(s):  
Kimberly A. Miller ◽  
Jennifer Baird ◽  
Jessica Lira ◽  
Josseline Herrera Eguizabal ◽  
Shangnon Fei ◽  
...  

Author(s):  
Junhong Zhu ◽  
Kanyuan Shi ◽  
Chengyue Yang ◽  
Yanping Niu ◽  
Yingchun Zeng ◽  
...  

BMJ Open ◽  
2020 ◽  
Vol 10 (6) ◽  
pp. e035648
Author(s):  
Saeed Moradian ◽  
Monika Krzyzanowska ◽  
Roma Maguire ◽  
Vishal Kukreti ◽  
Eitan Amir ◽  
...  

IntroductionTechnology is emerging as a solution to develop home-based, proactive ‘real-time’ symptom monitoring and management in cancer care. The Advanced Symptom Monitoring and Management System—Canada (ASyMS-Can) is a remote phone-based symptom management system that enables real-time remote monitoring of systemic chemotherapy toxicities.Methods and analysisThis study is an open-label, prospective, mixed-method, Phase II, 2-arm parallel group assignment (ASyMS-Can vs usual care) feasibility study in patients with cancer receiving systemic (neo-adjuvant or adjuvant) chemotherapy at Princess Margaret Cancer Centre. A total of 114 patients will be recruited in oncology clinics prior to initiation of chemotherapy. Patients in both arms will complete a demographic and a set of questionnaires at enrolment, mid and end of treatment. Patients in intervention arm will be provided with an encrypted, secure, preprogrammed ASyMS phone for symptom reporting daily for the first 14 days of each chemotherapy treatment cycle up to sixth cycle (16 weeks). Feasibility metrics (recruitment, retention and protocol adherence) and outcomes to assess impact of ASyMS—Can include symptom severity, emotional distress, quality of life and acceptability to patients and clinicians.Ethics and disseminationThe study has received ethical and institutional approvals from the University Health Network. Dissemination will include presentations at national/international conferences, and publications in peer-reviewed journals.Trial registration numberNCT03335189.


SLEEP ◽  
2018 ◽  
Vol 41 (suppl_1) ◽  
pp. A215-A216
Author(s):  
R Iqbal ◽  
A Seixas ◽  
K Chery ◽  
N Tan ◽  
L Sanchez ◽  
...  

2019 ◽  
Vol 10 (1) ◽  
pp. 91-104 ◽  
Author(s):  
Colleen Pawliuk ◽  
Kim Widger ◽  
Tammie Dewan ◽  
Gina Brander ◽  
Helen L Brown ◽  
...  

BackgroundQ3 conditions are progressive, metabolic, neurological or chromosomal childhood conditions without a cure. Children with these conditions face an unknown lifespan as well as unstable and uncomfortable symptoms. Clinicians and other healthcare professionals are challenged by a lack of evidence for symptom management for these conditions.AimsIn this scoping review, we systematically identified and mapped the existing literature on symptom management for children with Q3 conditions. We focused on the most common and distressing symptoms, namely alertness, behavioural problems, bowel incontinence, breathing difficulties, constipation, feeding difficulties, sleep disturbance, temperature regulation, tone and motor problems and urinary incontinence. For children with complex health conditions, good symptom management is pertinent to ensure the highest possible quality of life.MethodsScoping review. Electronic database searches in Ovid MEDLINE, Embase and CINAHL and a comprehensive grey literature search.ResultsWe included 292 studies in our final synthesis. The most commonly reported conditions in the studies were Rett syndrome (n=69), followed by Cornelia de Lange syndrome (n=25) and tuberous sclerosis (n=16). Tone and motor problems were the most commonly investigated symptom (n=141), followed by behavioural problems (n=82) and sleep disturbance (n=62).ConclusionThe evidence for symptom management in Q3 conditions is concentrated around a few conditions, and these studies may not be applicable to other conditions. The evidence is dispersed in the literature and difficult to access, which further challenges healthcare providers. More research needs to be done in these conditions to provide high-quality evidence for the care of these children.


2016 ◽  
Vol 15 (1) ◽  
pp. 77-88 ◽  
Author(s):  
Saul Cobbing ◽  
Jill Hanass-Hancock ◽  
Hellen Myezwa

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