Public attitudes to the use of remote data collection in clinical research

Memes are a prominent feature of global life in the 21st century. The author asserts that memes are significant to current and future qualitative research. In particular, the text establishes memes as: (a) part of everyday communication, expression, and explanation, thus useful in qualitative research; (b) valuable cultural units and symbols; (c) forms of rapport building and cultivating relational research; (d) approaches that bolster and sustain remote data collection; (e) methods that infuse agency, humor, and creativity into the research process. The author then showcases distinctive ways memes can be effectively incorporated in qualitative research pursuits and publications. The article concludes with the necessity of data collection and representation approaches that advance the meaningfulness and cultural-relevance of qualitative inquiry.

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Remote Data Collection and Control for Hydrogeologic Monitoring

Groundwater Monitoring & Remediation ◽

10.1111/j.1745-6592.1990.tb00013.x ◽

1990 ◽

Vol 10 (3) ◽

pp. 138-142 ◽

Cited By ~ 2

Author(s):

Martin Adomait ◽

Robert W. Gillham

Keyword(s):

Data Collection ◽

And Control ◽

Remote Data

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Collecting clinical data in primary ciliary dyskinesia- challenges and opportunities

F1000Research ◽

10.12688/f1000research.9323.1 ◽

2016 ◽

Vol 5 ◽

pp. 2031 ◽

Cited By ~ 3

Author(s):

Israel Amirav ◽

Mary Roduta Roberts ◽

Huda Mussaffi ◽

Avigdor Mandelberg ◽

Yehudah Roth ◽

...

Keyword(s):

Data Collection ◽

Clinical Research ◽

Clinical Data ◽

Primary Ciliary Dyskinesia ◽

Completion Rates ◽

End User ◽

Revision Process ◽

Data Collection And Analysis ◽

Challenges And Opportunities ◽

Ciliary Dyskinesia

Rationale: Primary ciliary dyskinesia (PCD) is under diagnosed and underestimated. Most clinical research has used some form of questionnaires to capture data but none has been critically evaluated particularly with respect to its end-user feasibility and utility. Objective: To critically appraise a clinical data collection questionnaire for PCD used in a large national PCD consortium in order to apply conclusions in future PCD research. Methods: We describe the development, validation and revision process of a clinical questionnaire for PCD and its evaluation during a national clinical PCD study with respect to data collection and analysis, initial completion rates and user feedback. Results: 14 centers participating in the consortium successfully completed the revised version of the questionnaire for 173 patients with various completion rates for various items. While content and internal consistency analysis demonstrated validity, there were methodological deficiencies impacting completion rates and end-user utility. These deficiencies were addressed resulting in a more valid questionnaire. Conclusions: Our experience may be useful for future clinical research in PCD. Based on the feedback collected on the questionnaire through analysis of completion rates, judgmental analysis of the content, and feedback from experts and end users, we suggest a practicable framework for development of similar tools for various future PCD research.

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Remote Data Collection: How Broadband Connectivity Affected the Conversion of Physical Performance Testing to the Remote Setting during COVID-19: A Research Assistant’s Assessment

10.15760/honors.1003 ◽

2021 ◽

Author(s):

◽

Ramyar Eslami

Keyword(s):

Data Collection ◽

Physical Performance ◽

Performance Testing ◽

Remote Setting ◽

Remote Data

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Utility of Short Message Service (SMS) for Remote Data Collection for HIV in Low- and Middle-Income Countries

Current HIV/AIDS Reports ◽

10.1007/s11904-020-00534-x ◽

2020 ◽

Vol 17 (6) ◽

pp. 654-662

Author(s):

Alison L. Drake ◽

Claire Rothschild ◽

Wenwen Jiang ◽

Keshet Ronen ◽

Jennifer A. Unger

Keyword(s):

Data Collection ◽

Short Message Service ◽

Short Message ◽

Middle Income ◽

Middle Income Countries ◽

Message Service ◽

Low And Middle Income ◽

Remote Data

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Secure Remote Data Collection System Using Data Encryption

IFAC-PapersOnLine ◽

10.1016/j.ifacol.2019.12.693 ◽

2019 ◽

Vol 52 (27) ◽

pp. 400-405

Author(s):

Bruno Rodrigues ◽

Alberto Cardoso ◽

Jorge Bernardino ◽

Nuno Simões ◽

José Marques

Keyword(s):

Data Collection ◽

Data Encryption ◽

Collection System ◽

Data Collection System ◽

Using Data ◽

Remote Data

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Based on ARM Embedded Remote Data Acquisition System

Advanced Materials Research ◽

10.4028/www.scientific.net/amr.614-615.1566 ◽

2012 ◽

Vol 614-615 ◽

pp. 1566-1569

Author(s):

Qiang Liu ◽

Guo Hua Fu ◽

Xin Ge Lian ◽

Jun Wang

Keyword(s):

Data Collection ◽

Data Acquisition ◽

Data Acquisition System ◽

Video Data ◽

Acquisition System ◽

Price Ratio ◽

Collection System ◽

Application Range ◽

Sd Card ◽

Remote Data

Because of the data acquisition system is more and more wide application range, involved the signal source and the type of more and more of the requirement of measurement, more and more is also high, the domestic now has quite a few data collection system and measurement, but many systems are simple function, and acquisition channel, the sampling rate is low, less complex operation, and higher requirements for test environment. People need a wide application range, high performance/price ratio of data acquisition system. In this paper, the main content is the use of ARM9 processor C2440A primarily controller series 3, design an embedded data acquisition system. Using ARM9 chip do microprocessor design remote data acquisition system, through the embedded Linux system video data collection USB cameras, the JPEG compression coding, ARM9 chip control data acquisition by most industrial environmental restrictions for collection system that has a large capacity of the storage and wireless forwarding function. This paper to S3C2440A as the core, with A piece of FPGA and A piece of Ethernet CS8900A controller for auxiliary to realize the digital parts of the system hardware, analog part two way by the A/D acquisition, variable gain amplifier and basic amplifying circuit component. The system also realize the SD card memory function and various interface such as serial ports and JTAG mouth. In the software of realized in development platform on Linux system of transplantation, separately from the Bootloader transplantation, Linux kernel transplantation and root file system, the establishment of the three are expounded. And completion of the A/D converter, SD card and CS8900A in the drive design under Linux, and finally the data acquisition, storage design and forwarding program.

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Remote data collection on ice breakup dynamics: Saint John River case study

Cold Regions Science and Technology ◽

10.1016/j.coldregions.2011.03.005 ◽

2011 ◽

Vol 67 (3) ◽

pp. 135-145 ◽

Cited By ~ 17

Author(s):

Spyros Beltaos ◽

Robert Rowsell ◽

Patrick Tang

Keyword(s):

Data Collection ◽

Ice Breakup ◽

Saint John ◽

Remote Data

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The Esophageal Online Patient Reported Outcomes (EsO-PRO) Questionnaire: Formal implementation and assessment of a combined clinical and research data collection tool.

Journal of Clinical Oncology ◽

10.1200/jco.2019.37.4_suppl.37 ◽

2019 ◽

Vol 37 (4_suppl) ◽

pp. 37-37

Author(s):

Shirley Xue Jiang ◽

Shubhangi Shah ◽

Elliot Charles Smith ◽

Justine Baek ◽

Mindy Liang ◽

...

Keyword(s):

Esophageal Cancer ◽

Data Collection ◽

Clinical Research ◽

Demographic Data ◽

Qualitative Assessment ◽

Data Collection Tool ◽

Implementation Barriers ◽

Survey Tool ◽

Research Survey ◽

Patient Reported

37 Background: Systematic symptom monitoring improves quality of life, and possibly overall survival in cancer outpatients receiving chemotherapy. To reduce patient, staff, and resource burden, combining research surveys with electronic PRO assessments in a multidisciplinary academic esophageal cancer clinic may allow dual clinical-research goals to be met. Methods: EsO-PRO is a data collection tool directed at esophageal cancer outpatients created through expert feedback. Using the Canadian Institutes of Health research (CIHR) Knowledge-to-Action (KTA) framework, clinic flow and stakeholder maps were constructed. Facilitators and barriers were then identified, and responses were generated to address implementation barriers. Multiple iterations of the questionnaire were implemented; patient and clinic staff feedback was collected through key informant interviews, and major themes were described. Results: Creation of EsO-PRO included multiple validated tools: the FACT-E, modified Cancer Research UK esophageal cancer risk questionnaire, EQ5D-5L, PRO-CTCAE for common esophageal symptoms, and baseline clinico-demographic data. Four iterations of the KTA cycle for pilot implementation identified specific key facilitators (clinician champions, staff engagement, resource-integration, and clinician-researcher synergy) and barriers (familiarity with technology, survey length, and communication barriers). Qualitative assessment also identified perceived importance of questions as key to patient completion, and role delegation, staff burden, clinic flow interruption as critical issues to address. Splitting EsO-PRO into two separate visits for completion, allowing completion at home, and changing fill-in-the-blanks to check-off boxes were identified as potential solutions. Conclusions: The CIHR-KTA framework identified concrete methods for improved integration of a combined clinical-research survey tool for routine use in a multidisciplinary esophageal cancer outpatient clinic. Our process serves as an effective model for integration of innovations in multidisciplinary esophageal cancer clinics.

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