The Esophageal Online Patient Reported Outcomes (EsO-PRO) Questionnaire: Formal implementation and assessment of a combined clinical and research data collection tool.

2019 ◽  
Vol 37 (4_suppl) ◽  
pp. 37-37
Author(s):  
Shirley Xue Jiang ◽  
Shubhangi Shah ◽  
Elliot Charles Smith ◽  
Justine Baek ◽  
Mindy Liang ◽  
...  

37 Background: Systematic symptom monitoring improves quality of life, and possibly overall survival in cancer outpatients receiving chemotherapy. To reduce patient, staff, and resource burden, combining research surveys with electronic PRO assessments in a multidisciplinary academic esophageal cancer clinic may allow dual clinical-research goals to be met. Methods: EsO-PRO is a data collection tool directed at esophageal cancer outpatients created through expert feedback. Using the Canadian Institutes of Health research (CIHR) Knowledge-to-Action (KTA) framework, clinic flow and stakeholder maps were constructed. Facilitators and barriers were then identified, and responses were generated to address implementation barriers. Multiple iterations of the questionnaire were implemented; patient and clinic staff feedback was collected through key informant interviews, and major themes were described. Results: Creation of EsO-PRO included multiple validated tools: the FACT-E, modified Cancer Research UK esophageal cancer risk questionnaire, EQ5D-5L, PRO-CTCAE for common esophageal symptoms, and baseline clinico-demographic data. Four iterations of the KTA cycle for pilot implementation identified specific key facilitators (clinician champions, staff engagement, resource-integration, and clinician-researcher synergy) and barriers (familiarity with technology, survey length, and communication barriers). Qualitative assessment also identified perceived importance of questions as key to patient completion, and role delegation, staff burden, clinic flow interruption as critical issues to address. Splitting EsO-PRO into two separate visits for completion, allowing completion at home, and changing fill-in-the-blanks to check-off boxes were identified as potential solutions. Conclusions: The CIHR-KTA framework identified concrete methods for improved integration of a combined clinical-research survey tool for routine use in a multidisciplinary esophageal cancer outpatient clinic. Our process serves as an effective model for integration of innovations in multidisciplinary esophageal cancer clinics.

2021 ◽  
Vol 11 (2) ◽  
pp. 8-14
Author(s):  
PETR ADAMEC ◽  
MICHAL ŠIMÁNĚ

The text focuses on the issue of online learning during the COVID-19 pandemic. Specifically, the authors focus on capturing, describing and interpreting the perception of online learning through the online tools MS Teams and LMS Moodle. The paper is based on data obtained from a research survey based on a quantitative approach. A self-designed questionnaire was chosen as the data collection tool. The questionnaire survey was conducted electronically among university students in pedagogical fields in the period from November 2020 to March 2021. In total, the authors analysed data from 462 questionnaires received. Not only the basic descriptive results but also the statistical significance of the relationships between the selected variables were evaluated, using adequate parametric and non-parametric tests.


BMJ Open ◽  
2021 ◽  
Vol 11 (9) ◽  
pp. e051806
Author(s):  
Charlotte Jane Whiffin ◽  
Brandon George Smith ◽  
Ignatius N Esene ◽  
Claire Karekezi ◽  
Tom Bashford ◽  
...  

ObjectivesLow-income and-middle-income countries (LMICs) are increasing investment in research and development, yet there remains a paucity of neurotrauma research published by those in LMICs. The aim of this study was to understand neurosurgeons’ experiences of, aspirations for, and ability to conduct and disseminate clinical research in LMICs.DesignThis was a two-stage inductive qualitative study situated within the naturalistic paradigm. This study committed to an interpretivist way of knowing (epistemology), and considered reality subjective and multiple (ontology). Data collection used online methods and included a web-based survey tool for demographic data, an asynchronous online focus group and follow-up semistructured interviews. Data were analysed using Braun and Clarke’s Reflexive Thematic Analysis supported by NVivo V.12.SettingLMICs.ParticipantsIn April–July 2020, 26 neurosurgeons from 11 LMICs participated in this study (n=24 in the focus groups, n=20 in follow-up interviews).ResultsThe analysis gave rise to five themes: The local landscape; creating capacity; reach and impact; collaborative inquiry; growth and sustainability. Each theme contained an inhibitor and stimulus to neurosurgeons conducting and disseminating clinical research, interpreted as ‘the neurosurgical research potential in LMICs’. Mentorship, education, infrastructure, impact and engagement were identified as specific accelerators. Whereas lack of generalisability, absence of dissemination and dissemination without peer review may desensitise the impact of research conducted by neurosurgeons.ConclusionThe geographical, political and population complexities make research endeavour challenging for neurosurgeons in LMICs. Yet in spite of, and because of, these complexities LMICs provide rich opportunities to advance global neurosurgery. More studies are required to evaluate the specific effects of accelerators of research conducted by neurosurgeons and to understand the effects of desensitisers on high-quality, high-impact clinical research.


2014 ◽  
Vol 14 (2) ◽  
pp. 150-160 ◽  
Author(s):  
Susanne Bahn

Purpose – The purpose of this paper is to present a data collection tool that is not new, however, has been very effective as an assessment tool in a 2012 research study investigating the ability of new entrants to underground mining to effectively identify hazards within their work areas. Design/methodology/approach – The study set about to determine if after a full days’ health and safety induction training entrants new to the mining industry could identify hazards contained in photographs of the work areas they would be working in the next day. Findings – Using a picture-based survey as an assessment or data collection tool provides a fun way to access data. This is particularly useful when trying to engage participants who are unwilling to provide data, as in this case, after a full day's health and safety induction. The tool was viewed as a puzzle and therefore encouraged completion. In addition, if the tool is used to feedback the “answers” to the group after they have been assessed it also serves as a learning device. Research limitations/implications – The results of the research have been published elsewhere and are not the topic of this paper; instead in this paper a picture-based survey tool is presented as a valid and useful data collection method for qualitative research. Originality/value – The study results in terms of the use of a picture-based tool as an assessment is of value to those conducting health and safety induction training as it may achieve better engagement.


Author(s):  
Risna Dewi Kinanti ◽  
Dudy Imanudin Effendi ◽  
Abdul Mujib

Tujuan dari penelitian ini yaitu untuk mengetahui proses bimbingan keagamaan, fungsi bimbingan keagamaan serta hasil bimbingan keagamaan dalam meningkatkan kecerdasan spiritual remaja di Boarding School SMK PPN Tanjungsari. Dengan pertanyaan penelitian 1) Bagaimana proses bimbingan keagamaan di Boarding School SMK PPN Tanjungsari?, 2) Bagaiamana fungsi bimbingan keagamaan di Boarding School SMK PPN Tanjungsari?, 3) Bagaimana hasil bimbingan keagamaan dalam meningkatkan kecerdasan spiritual remaja di Boarding School SMK PPN Tanjungsari?. Metode yang digunakan dalam penelitian ini adalah metode deskriptif kualitatif dengan teknik pengumpulan datanya dilakukan observasi, wawancara dan dokumentasi, dikarenakan masalah yang diteliti perlu dilukiskan secara sistematis dan faktual dengan menggambarkan keadaan atau status fenomena. Hasil bimbingan keagamaan di Boarding School SMK PPN adalah munculnya aspek-aspek kecerdasan spiritual pada remaja seperti kesadaran untuk menghayati proses ibadah bukan sebagai pengguguran kewajiban, terbiasa berperilaku baik, memiliki prinsip keadilan, memiliki prinsip kebenaran, mampu mengambil hikmah dari musibah yang dihadapinya, bersikap fleksibel, bersikap kritis dan merenungkan penyebab serta alasan segala sesuatu terjadi. Sehingga dapat disimpulkan bahwa bimbingan keagamaan di Boarding Schoool SMK PPN memiliki peranan yang sangat menunjang dalam meningkatkan kecerdasan spiritual remaja. The purpose of this study is to find out how the proccess of islamic guidance, function of islamic guidance, and result of islamic guidance to increase SpritualQuetiont in adolescence. With research questions 1) How the proccess of islamic guidance to increase spiritual quetiont on adolescence ?, 2) What is the function of islamic guidance to increase Spiritual Quetiont on adolescence?, 3) How are the results of islamic guidance to increase Spiritual Quetiont on adolescence?. The method used in this research is qualitative descriptive approach with subject and object of research is guidancer. While the data collection tool in this study through observation, direct interview and written interviews. From the results of research conducted at Boarding School SMK PPN Tanjungsari, it appears of Spiritual Quetiont in adolescents. Such as the behavior of living the worship process, get used to behave well, be fair, be wise, able to take lessons from the difficulties they experienced, be flexible, be critical. So, we can conclude that islamic Guidance has a very supportive role in increasing adolescent Spiritual Quetiont.


2019 ◽  
Vol 8 (4) ◽  
pp. 555 ◽  
Author(s):  
Cátia Caneiras ◽  
Cristina Jácome ◽  
Sagrario Mayoralas-Alises ◽  
José Ramon Calvo ◽  
João Almeida Fonseca ◽  
...  

The increasing number of patients receiving home respiratory therapy (HRT) is imposing a major impact on routine clinical care and healthcare system sustainability. The current challenge is to continue to guarantee access to HRT while maintaining the quality of care. The patient experience is a cornerstone of high-quality healthcare and an emergent area of clinical research. This review approaches the assessment of the patient experience in the context of HRT while highlighting the European contribution to this body of knowledge. This review demonstrates that research in this area is still limited, with no example of a prescription model that incorporates the patient experience as an outcome and no specific patient-reported experience measures (PREMs) available. This work also shows that Europe is leading the research on HRT provision. The development of a specific PREM and the integration of PREMs into the assessment of prescription models should be clinical research priorities in the next several years.


2021 ◽  
pp. 004723952110316
Author(s):  
Mustafa Serkan Günbatar

The purpose of this research was to determine the effectiveness of the instruction process using the flipped classroom (FC) model within the scope of Computer Networks and Communication course. Theoretically, the community of inquiry model was taken as a reference and the effectiveness of the instruction process was evaluated accordingly. Students were preservice teachers studying Computer Education and Information Technology in the third grade in the Van region in Turkey. There were a total of 19 students, of which 12 are male and seven are female. FC process was carried out in the spring semester of 2018–2019 and lasted 11 weeks in total. A mixed-method design was used to gathering the data. Therefore, the research design was an explanatory design from mixed-methods designs. The quantitative data collection tool was the Turkish version of the Community of Inquiry Survey. The quantitative data were analyzed by dividing the students into very low, low, high, and very high levels. The qualitative data collection tool was the interview form created concerning the community of inquiry model. The qualitative data were analyzed by the use of the community of inquiry coding template's themes. At the end of the instruction process, students had a very high level of cognitive, social, and teaching presence perception. This situation was detailed and supported with the qualitative data obtained. Concerning the cognitive presence, the students firstly talked about that they started the learning process with videos. Regarding the social presence, they mentioned the motivating effect of the questions. About the teaching presence, participants firstly mentioned the direct instruction role of the videos.


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