Empowering processes in online support groups among people living with HIV/AIDS: A comparative analysis of ‘lurkers’ and ‘posters’

2010 ◽  
Vol 26 (5) ◽  
pp. 1183-1193 ◽  
Author(s):  
Phoenix K.H. Mo ◽  
Neil S. Coulson
Keyword(s):  
Comparative Analysis ◽  
Support Groups ◽  
Online Support ◽  
People Living With Hiv ◽  
Online Support Groups ◽  
Living With Hiv ◽  
Hiv Aids

Living with HIV/AIDS and Use of Online Support Groups

2010 ◽  
Vol 15 (3) ◽  
pp. 339-350 ◽  
Author(s):  
Phoenix K.H. Mo ◽  
Neil S. Coulson
Keyword(s):  
Support Groups ◽  
Online Support ◽  
Online Support Groups ◽  
Living With Hiv ◽  
Hiv Aids

Do online support groups help individuals affected by HIV/AIDS?: A systematic review of the quantitative and qualitative literature (Preprint)

2021 ◽  
Author(s):  
Neil Stewart Coulson ◽  
Heather Buchanan
Keyword(s):  
Systematic Review ◽  
Support Groups ◽  
Online Communication ◽  
Well Being ◽  
Qualitative Studies ◽  
Online Support ◽  
Illness Management ◽  
Online Support Groups ◽  
The Impact ◽  
Hiv Aids

BACKGROUND Online support groups provide opportunities for individuals affected by HIV/AIDS to seek information, advice and support from peers. However, if and how engagement with online support groups helps individuals affected by HIV/AIDS remains unclear. OBJECTIVE To systematically review the evidence (both quantitative and qualitative) around the benefits of online support groups for individuals affected by HIV/AIDS in terms of psychosocial wellbeing and/or illness management. In addition, the review sought to identify and describe any negative aspects experienced by individuals as well as the types of social support exchanged within such online groups. METHODS A systematic review of English language articles was undertaken using Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Databases searched included Medline, PubMed, EMBASE, CINAHL, PsycINFO, CENTRAL (Cochrane Register of Controlled Trials) and SCOPUS. Key findings were critically synthesized using a narrative and thematic approach. RESULTS 22 papers met the inclusion criteria from an initial pool of 4501 abstracts. These papers included 5 quantitative, 2 mixed-methods and 15 qualitative studies published between 2007 and 2019. CONCLUSIONS Some cross-sectional and qualitative studies suggest there may be an association between engagement and a range of psychosocial processes and outcomes. However, studies with robust methodological designs are needed to definitively establish whether HIV/AIDS-related online support groups improve psychosocial well-being and/or illness management. Qualitative data highlights users can have negative experiences in terms of interpersonal conflict and the challenges of encountering negative content. In addition, there may be aspects of the internet-mediated nature of the online communication which compromise member experiences. Finally, HIV/AIDS-related online support groups are venues through which individuals can solicit support, most commonly informational or emotional support. Future research should seek to examine the impact of engagement with online support groups over time including appropriate control or comparison groups. CLINICALTRIAL N/A

scholarly journals Analysis Of Counsel Support With The Time Of Disclosure Of Personal Status Of People with HIV/AIDS (ODHA) Against His Partners In Sumenep District

2020 ◽  
Vol 9 (2) ◽  
pp. 1128-1133
Author(s):  
Dian Permatasari ◽  
Eva Nurhidayati ◽  
Dian Ika Puspitasari
Keyword(s):  
Support Groups ◽  
Quantitative Research ◽  
Sampling Technique ◽  
Deficiency Syndrome ◽  
People Living With Hiv ◽  
Cross Sectional ◽  
Dependent Variables ◽  
Cross Sectional Design ◽  
Living With Hiv ◽  
Hiv Aids

Human Immunodeficiency Virus and Acquired Immuno Deficiency Syndrome  have become epidemics that seriously  of the world community. East Java is one of the provinces with the highest number of HIV / AIDS sufferers in Indonesia. As of September 2018, the number of people living with HIV / AIDS was 47,396 people.  This research is a quantitative research design with explanatory research which aims at research conducted to explain the influence between independent and dependent variables through testing. Cross sectional design because the independent and dependent variables were measured at the same time. The sampling technique used total sampling. The instrument in this study was a questionnaire. Data were analyzed using regression test. One of the solutions to overcome this problem is the role of peer support groups in providing support and services to ODHA by providing access to information and referrals about treatment. 

scholarly journals Quality of Life People Living with HIV/AIDS and Its Characteristic from a VCT Centre in Indonesia

1970 ◽  
Vol 29 (6) ◽  
Author(s):  
Sri Handayani ◽  
Nita Yunianti Ratnasari ◽  
Putri Halimu Husna ◽  
Marni . ◽  
Tantut Susanto
Keyword(s):  
Quality Of Life ◽  
Support Groups ◽  
Cross Sectional Study ◽  
High Risk Group ◽  
P Value ◽  
People Living With Hiv ◽  
Cross Sectional ◽  
Living With Hiv ◽  
Hiv Aids

BACKGROUND: The quality of life (QoL) construct has also contributed to understanding the comprehension of factors involved in the existence of people infected by the HIV/AIDS. The objective of this study is to assess the quality of life (QoL) of people with HIV/AIDS (PLWHA) in Wonogiri District, Indonesia.METHODS: A cross-sectional study was conducted from September to November 2017. Convenience sampling method was employed to recruit 39 people living with HIV/AIDS (PLWHA) at Voluntary Counselling and Testing (VCT) of Wonogiri, Indonesia. Research data were collected using a self-administered questionnaire of WHOQOL-HIV BREF. The data were further analysed using a ttest and a Chi-square test, while linear regression was used to evaluate factors that correlate with the PLWHAs’ quality of life.RESULTS: The results showed that the gross mean score of social relationships domain is 13.59; psychological domain is 13.31;environment domain is 13.28; spiritual/personal beliefs domainis 13.15; physical domain is 13.10; and level of independence domain is 13.77. The symptom of HIV is associated with quality of life (B =7.611, β = 0.362, t = 2,046, p value = 0.049).CONCLUSION: Healthcare provider should increase providerinitiated testing and counselling (PITC) to contracting group, high risk group, susceptible group, and the community. The PLWHA are recommended to actively participate in peer support groups (PSGs) so that they can improve their quality of life.

scholarly journals Do peer support groups have an effect on medication adherence? A study among people living with HIV/AIDS in Enugu State, Nigeria

2018 ◽  
Vol 27 (4) ◽  
pp. 256-264 ◽  
Author(s):  
Onyinye Hope Chime ◽  
Sussan Uzoamaka Arinze-Onyia ◽  
Christopher Ndukife Obionu
Keyword(s):  
Medication Adherence ◽  
Peer Support ◽  
Support Groups ◽  
Support Group ◽  
Study Groups ◽  
People Living With Hiv ◽  
Adherence To Medication ◽  
Enugu State ◽  
Living With Hiv ◽  
Hiv Aids

Background: The health benefits of antiretroviral treatment greatly depend on the extent to which people living with HIV/AIDS adhere to the prescribed daily dosing regimens. Peer support groups are expected to have a high impact on adherence to medication among people living with HIV/AIDS. Objectives: This study was designed to determine factors affecting adherence to medication among people living with HIV/AIDS in peer support and non-support groups attending antiretroviral clinics in Enugu State, Nigeria. Method: This was a cross-sectional, comparative study using qualitative and quantitative instruments among 840 people living with HIV/AIDS attending antiretroviral clinics in Enugu, Nigeria. Quantitative data was analysed using IBM SPSS version 22. A Chi-square test of statistical significance, a student t-test and multivariate analysis using binary logistic regression were used in the analysis. Manual content analysis was done for the qualitative data. Results: The mean age of respondents was comparable in both study groups: support group 38.5±9.6; and non-support group 38.5±10.1. A significantly higher proportion of respondents in the support group (91.9%) achieved good adherence compared with those in the non-support group (87.1%). A good medication adherence self-rating was a predictor of adherence in both study groups: support group (AOR 5.8, 95% CI: 2.7–12.2, p=<0.001) and non-support group (AOR 0.2, 95% CI: 0.1–0.4, p=<0.001). Conclusion: The peer-based intervention is a viable and effective tool for maintaining optimal adherence among people living with HIV/AIDS in resource-limited settings; hence, research should concentrate on interventions that do not focus on individuals alone, but rather on those that strengthen the capacity of groups to collectively participate in HIV programmes.

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