High tech and high touch: Recruitment strategies for enrolling African American stroke survivors in Community Based Intervention under Nurse Guidance after stroke (CINGS) trial

Abstract Nearly 30 years after the 1993 National Institute of Health Revitalization Act, minority groups’ low participation in research remains (which required the inclusion of women and racial/ethnic minority groups into government-funded clinical trials). This is particularly the case for participation in research on Alzheimer’s Disease and related dementias (ADRD). Deeply rooted historical race-based mistreatment in research and in the health care system at large persist as barriers to low-participation of minorities (i.e. Black/African American, Hispanic/Latino) and immigrants in research studies, who remain at disparate risk for adverse ADRD health outcomes and expedited mortality. The use of culturally adapted approaches in recruitment strategies and community-based interventions might be helpful to encourage the participation of underrepresented groups into research. As such, this presentation highlights three studies that seek to use cultural adaptation to inform recruitment strategies and community-based interventions. First, Dr. Parker will present how tenets from Critical Race Theory can be used to inform culturally-adapted recruitment strategies of Black/African American caregivers into community-based research by drawing upon two ongoing studies: a randomized trial providing caregiver support through Adult Day Services (ADS) and the evaluation of impact of ADS on stress levels of Black/African American using biomarker measures. Next, Ms. Johnson will present results on cultural adaptions to the ADS-Plus Program for Spanish-speaking populations. Finally, Dr. Nkimbeng will present on the process of culturally-tailoring dementia education for African immigrants in Minnesota. Findings from this presentation identify opportunities for researchers to use cultural adaptations to encourage participation of underrepresented populations into ADRD research.

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The Use of Critical Race Theory to Inform Culturally Adapted Recruitment Strategies for Community-Based Research

Innovation in Aging ◽

10.1093/geroni/igab046.1868 ◽

2021 ◽

Vol 5 (Supplement_1) ◽

pp. 486-486

Author(s):

Joseph Gaugler ◽

Laura Gitlin ◽

Lauren Parker

Keyword(s):

African American ◽

African Americans ◽

Critical Race Theory ◽

Recruitment Strategies ◽

Critical Race ◽

Race Theory ◽

Community Based ◽

Caregiver Support ◽

Black African ◽

Community Based Research

Abstract Black/African American participation in non-pharmacological randomized trials and community-based research on Alzheimer’s Disease and related dementias (ADRD) remains low. This presentation introduces Critical Race Theory (CRT), its tenets and how it can be used in tandem with national strategies to encourage participation of Black/African Americans in ADRD research. CRT is a transdisciplinary methodology that draws on anti-racist tenets to study and transform the relationships among race, racism, and power. We describe how CRT constructs (e.g., race consciousness, counter-storytelling) can be used to inform recruitment strategies to enroll Black/African American ADRD caregivers into community-based research by drawing upon two ongoing studies: a randomized trial providing caregiver support through Adult Day Services (ADS) and the evaluation of impact of ADS on stress levels of Black/African American using biomarker measures. In the spirit of CRT this presentation is a call for action and transformation of dementia care research to actively include Black/African Americans.

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Clinical Impressions of How Young Children Use AAC at Home and in Child Care Settings: A Canadian Perspective

Perspectives on Augmentative and Alternative Communication ◽

10.1044/aac19.1.21 ◽

2010 ◽

Vol 19 (1) ◽

pp. 21-28

Author(s):

Kathryn Wishart

Keyword(s):

Child Care ◽

Young Children ◽

High Tech ◽

Speech Language Pathologists ◽

Cultural Backgrounds ◽

Community Based ◽

Multicultural Community ◽

Canadian Perspective ◽

Communication Devices ◽

Stakeholder Input

Abstract Speech-language pathologists, working in a multicultural, community-based environment for young children with special needs in Vancouver, Canada, collected information on 84 clients using AAC from a chart review. The speech-language pathologists collected additional usage information and attended a group interview to discuss barriers and facilitators of AAC. Thirty-one percent of the children were using AAC. Children aged between 16 and 72 months typically relied on multiple modes of communication, including sign, communication boards and binders, and low- and high-tech communication devices. All of the children used at least one type of unaided mode. Fifty-five percent used pictures or communication boards/displays, and 29% used technology with speech output. Similarities in usage of AAC were noted in home and child-care settings with increased use of unaided in homes and a slightly increased use of aided communication in child care settings. Speech-language pathologists reported that the time needed for AAC intervention as well as limited funding for high-tech devices continue to be major barriers. Additional research is needed to describe current AAC practices with young children particularly from minority linguistic and cultural backgrounds. Stakeholder input is needed to explore perceptions of children's usage of AAC in daily life with familiar and unfamiliar communication partners.

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Train the Trainer: A Community-Based Approach to Empowering African American Grandmothers Raising Grandchildren

PsycEXTRA Dataset ◽

10.1037/e539652007-001 ◽

2006 ◽

Author(s):

Ravi R. Mehta ◽

Kathryn Castle ◽

Deborah A. King

Keyword(s):

African American ◽

Community Based ◽

Train The Trainer ◽

Grandmothers Raising Grandchildren

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Evaluation of Community-Based Program for African-American Males: The Real Men, Real Heroes Project

PsycEXTRA Dataset ◽

10.1037/e628592012-042 ◽

2009 ◽

Author(s):

Felecia Arlene Lee ◽

Rhonda Lewis-Moss ◽

Jamilia Sly ◽

Shani Roberts

Keyword(s):

African American ◽

African American Males ◽

Community Based ◽

The Real

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African American men who become mental health advocates

International Journal of Social Psychiatry ◽

10.1177/00207640211012736 ◽

2021 ◽

pp. 002076402110127

Author(s):

Sandra Yaklin ◽

Miyong Kim ◽

Jacklyn Hecht

Keyword(s):

Mental Health ◽

African American ◽

African Americans ◽

Intervention Program ◽

African American Men ◽

Working Relationships ◽

Major Theme ◽

Community Based ◽

Tailored Messages ◽

Promote Mental Health

Using a narrative approach, this study explored how African American men became mental health advocates. This ancillary study is part of a formative within an ongoing community based intervention program that was designed to promote mental health of African Americans (AMEN) project within an ongoing community based intervention program that was designed to promote mental health of African Americans (AMEN) project. Narrative research techniques were used to analyze and synthesize the data. Analysis generated one major theme (interdependence) with four supporting sub-themes (credibility, social depression, stigma, and calling). These findings and insights through this qualitative study guided the AMEN project team to formulate effective communication strategies in establishing working relationships with community partners and wider stakeholders as well as crafting culturally tailored messages for African American participants.

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Caring in the recruitment of older African American adults with chronic health disease: An integrative review

Chronic Illness ◽

10.1177/1742395320905666 ◽

2020 ◽

pp. 174239532090566

Author(s):

Charlene J Gamboa ◽

Wrenetha A Julion

Keyword(s):

African American ◽

Chronic Illness ◽

Meta Analysis ◽

Integrative Review ◽

Recruitment Strategies ◽

Caring Behaviors ◽

Related Research ◽

African American Adults ◽

Recruitment Activities ◽

Research Studies

Objectives The aim of this integrative review is to accrue a comprehensive understanding of caring behavioral characteristics in the recruitment of older African-American adults into health-related research studies centered on chronic diseases. Methods Combined methodologies, Whittemore & Knafl and Kable, Pich & Maslin-Prothero in accordance with preferred items for systematic reviews and meta-analysis, were used to guide the data collection and to report the findings. The data were analyzed based upon recruitment categorization and Kristen Swanson’s middle-range theory of caring. Results Ten out of 260 publications comprised the final sample. They were analyzed and then aggregated by chronic illnesses, recruitment activities, contact level, and Swanson’s five caring behavioral concepts. Select cancers, diabetes, hypertension, and Alzheimer’s disease were the chronic illness foci of eight publications. Cardiovascular disease and stroke were the focus of two publications. Only three studies utilized all five Swanson’s caring concepts, and the frequently used concept throughout all 10 studies was enabling. Discussion Recruitment approaches employed to accrue older African-American adults into chronic illness-related research studies necessitate proactive recruitment strategies that incorporate caring behaviors. Future researchers ought to develop multi-modality recruitment strategies to improve older African-American adults’ representation.

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